Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Daughter Going For Diagnostic Biopsy


lob6796

Recommended Posts

lob6796 Contributor

I've been convinced that regardless of her negative blood results, because of her symptoms and age, that she should be biopsied. What should I expect? She is 2, so it makes me so nervous.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mairin Apprentice

My just turned 9 year old daughter was biopsed in March. I'm not sure if the procedure is the same for such a toddler but would presume it is.

My daughter did very well. I was able to go into the OR and be with her as she fell asleep. That was so calming for me. She drifted off to sleep easily. I met all the nurses and others. And it was comforting for my daughter to have me there. It really wasn't scary. If I hadn't been allowed to go right into the OR with her, I would have been more tense.

We were in the hospital for about 3.5 hours before the procedure. I was in the waiting area for about 20 minutes before the GI Dr. came to me. I was suprised the procedure was so quick. He didn't see visible damage, but when we got the biopsy results, she did have extensive damage.

Her recovery was okay, she was pretty nauseous afterwards. I saw her within 45 minutes after leaving her. She was eating a strawberry popsicle. Do not let your kid eat a red popsicle as if they vomit, they vomit red and you think that they have thrown up blood. Get them to choose a different type. She slept a bit, and once she finally got sick she felt much better. We went home about 3-4 hours after the biopsy. The nurses were terrific.

She experienced no side effects from the procedure.

We took part in an orientation a week before which really helped my daughter. One girl, same age, had already had an operation so was able to talk about it and really helped explain that it is all okay. I doubt that this would be useful to a 2 year old.

The hardest part was not eating or drinking since midnight as the procedure didn't happen until noon or so.

As my daughter was asympomatic, and despite 2 positive blood tests, I felt that the biopsy was essential for diagnosis. A gluten-free diet, which is an excellent indication of celiac if symptoms resolve, would not have been a diagnositic tool for us as she had no symptoms.

Good luck with your decision and I hope this info is useful.

buffettbride Enthusiast
My just turned 9 year old daughter was biopsed in March. I'm not sure if the procedure is the same for such a toddler but would presume it is.

My daughter did very well. I was able to go into the OR and be with her as she fell asleep. That was so calming for me. She drifted off to sleep easily. I met all the nurses and others. And it was comforting for my daughter to have me there. It really wasn't scary. If I hadn't been allowed to go right into the OR with her, I would have been more tense.

We were in the hospital for about 3.5 hours before the procedure. I was in the waiting area for about 20 minutes before the GI Dr. came to me. I was suprised the procedure was so quick. He didn't see visible damage, but when we got the biopsy results, she did have extensive damage.

Her recovery was okay, she was pretty nauseous afterwards. I saw her within 45 minutes after leaving her. She was eating a strawberry popsicle. Do not let your kid eat a red popsicle as if they vomit, they vomit red and you think that they have thrown up blood. Get them to choose a different type. She slept a bit, and once she finally got sick she felt much better. We went home about 3-4 hours after the biopsy. The nurses were terrific.

She experienced no side effects from the procedure.

We took part in an orientation a week before which really helped my daughter. One girl, same age, had already had an operation so was able to talk about it and really helped explain that it is all okay. I doubt that this would be useful to a 2 year old.

The hardest part was not eating or drinking since midnight as the procedure didn't happen until noon or so.

As my daughter was asympomatic, and despite 2 positive blood tests, I felt that the biopsy was essential for diagnosis. A gluten-free diet, which is an excellent indication of celiac if symptoms resolve, would not have been a diagnositic tool for us as she had no symptoms.

Good luck with your decision and I hope this info is useful.

That experience practically sums up what my daughter (who is also 9) experienced for her endoscopy as well, although my daughter was mildly symptomatic.

My main suggestion would be to try and have the procedure earlier in the morning rather than later because there's no food after midnight the night before. That would make for a very cranky 2 year old!

The endoscopy was a very positive experience for us and my husband and I were able to stay with her until she fell asleep. It is a very quick procedure.

Juliet Newbie

My son was two years and two months old when he had his biopsy done. I wasn't able to be in the OR room, but they only took him away from us as soon as they were ready to go. They put him under very lightly, the procedure itself was done 15 minutes after they took him away, and he was back another 10 minutes after that since the moment he started opening his eyes they brought him back. They waited until he was drinking and eating before he left, especially since he did need to completely fast (no food or water) before the procedure. We got there at 8:00 a.m. and left at 10:15 a.m. It was very easy - not nearly as scary as we thought it would be.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,204
    • Most Online (within 30 mins)
      7,748

    JaymeC
    Newest Member
    JaymeC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.