Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casiens - Revisted


SunnyDyRain

Casien  

7 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

SunnyDyRain Enthusiast

I am just handling This casien thing harder than gluten, I think it's because there is hope I one day will...

I just want to know about your experinces, and if anyone has any info on villi damage due to casiens.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

I didn't take the poll, but wanted to say that I tested positive for casein intolerance, went off it for six months and saw no improvement whatsoever. I went back on it and saw no change for the negative.

I didn't really fit into the criteria for the poll, but wanted to tell you that. Try being casein free for a while, then challenge it to see if you really are.

tarnalberry Community Regular

you can check pubmed for the casein-induced enteropathy studies.

MySuicidalTurtle Enthusiast

I could not stop getting sick from casein after going gluten-free but am a vegan now and avoid it anyway.

marciab Enthusiast

I wasn't tested (I won't go there), but everytime I ate or drank anything with dairy in it my stomach would go into spasm or I would get nauseas. Lactaid did not help ...

Having said that, for some reason I have been able to drink kefir made from organic cow's milk ever since going gluten free. This is really good with frozen fruit ... And a good probiotic.

I recently tested to see if I could handle cheese and I was fine. No pains, no nausea.

I'm not planning on adding it back in all the time though. I've read too much about how bad dairy is for us and I am still trying to heal.

Clear as mud, huh ?? Marcia

pedro Explorer

Hi.

I was hoping for the same, that one day soon I will be able to eat dairy products, but since I started the diet I knew in my heart that I will never can eat dairy products again. I need it confirmation, thats when I called EnteroLabs and they told me what I was suspecting all along.

This diet is for ever.

Best regards to everyone.

aikiducky Apprentice

I've been casein free for a couple years now, and if anything, I'm more sensitive to it (just like with gluten), although my reactions are not as violent any more as they once were (also just like with gluten). I did eat goats cheese up till two weeks ago, but I've stopped that as well for now and I'm planning to reintroduce it in a month or so to see if I react to goats cheese, too. I'm pretty sure I'll be cow milk free for life though.

It's almost harder to avoid casein isn't it? I find it's the combination of avoiding both gluten and casein that makes it very tricky, a lot of gluten free foods still have casein so it limits my choices much more. But hang in there, you really need to give it a good chance before you try to reintroduce.

Pauliina


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SunnyDyRain Enthusiast
I didn't take the poll, but wanted to say that I tested positive for casein intolerance, went off it for six months and saw no improvement whatsoever. I went back on it and saw no change for the negative.

I didn't really fit into the criteria for the poll, but wanted to tell you that. Try being casein free for a while, then challenge it to see if you really are.

I haven't been tested, but I know I react to dairy, pretty much the same way as I react to gluten. I am goin out of my mind trying to do this. I keep getting caisen, even the "non dairy creamer" has dairy. I am trying to find Vegan stuff, but it's not good subtitutes.

Every week or so I seem to slip up and am confirmed again, I still can't eat it.

dlp252 Apprentice

I was tested through Enterolabs, but that merely confirmed what I already knew. I will probably not ever be able to eat dairy regularly. I did buy a very small (6 oz) container of plain (unflavored, unsweetened) goatmilk yogurt last week...I ate half of it one day and half the next. That's it, I don't think I could eat more than that and be okay. Half the container seemed to work okay, but I think if I ate it every day I'd have problems.

jnclelland Contributor
I haven't been tested, but I know I react to dairy, pretty much the same way as I react to gluten. I am goin out of my mind trying to do this. I keep getting caisen, even the "non dairy creamer" has dairy. I am trying to find Vegan stuff, but it's not good subtitutes.

If you can tolerate soy, Silk makes a very good casein-free coffee creamer. I adored it until I realized that soy was causing me problems too! :(

Jeanne

SunnyDyRain Enthusiast
If you can tolerate soy, Silk makes a very good casein-free coffee creamer. I adored it until I realized that soy was causing me problems too! :(

Jeanne

I have been using Silk Soy Milk in my coffee, it's ok, not perfect but passable.

I may buy creamer for work though..

jnclelland Contributor
I have been using Silk Soy Milk in my coffee, it's ok, not perfect but passable.

I may buy creamer for work though..

I never did like milk in my coffee; it HAD to be half and half. But the Silk creamer is a pretty good imitation of half and half, and I really liked it.

Jeanne

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Shellly posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      New labs are now very elevated

    2. - Scott Adams replied to Elena1234's topic in Gluten-Free Restaurants
      3

      Is Cracker Barrel`s gluten-free menu safe for kids with celiac disease?

    3. - trents replied to Elena1234's topic in Gluten-Free Restaurants
      3

      Is Cracker Barrel`s gluten-free menu safe for kids with celiac disease?

    4. - Russ H replied to Elena1234's topic in Gluten-Free Restaurants
      3

      Is Cracker Barrel`s gluten-free menu safe for kids with celiac disease?

    5. - Elena1234 posted a topic in Gluten-Free Restaurants
      3

      Is Cracker Barrel`s gluten-free menu safe for kids with celiac disease?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,181
    • Most Online (within 30 mins)
      7,748

    Lisa Miller
    Newest Member
    Lisa Miller
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Shellly
      Hello, I was very stick,  with flu like symptoms, but my virus panel came back negative and we couldn’t figure out what’s going on. The doctor then added a celiac panel.  Has anyone ever had such a dramatic change?  What are the odds this is true celiac I am going to have an endoscopy, but it’s expensive and I just feel like why can’t the labs be enough? 
    • Scott Adams
      Eating out in general is full of risks, but this article may help:  
    • trents
      This kind of question is always difficult to give a definitive answer to because of so many variables. One such variable is the sensitivity of the individual celiac to small amounts of gluten cross contamination. An amount that causes a reaction in one celiac many not in another, or at least not be discernable which, of course, does not exactly equate to being "safe".
    • Russ H
      I don't live in the US, but based on this thread, I wouldn't risk it:   https://www.reddit.com/r/glutenfree/comments/1n2ehw8/cracker_barrel/   This app is helpful: https://www.findmeglutenfree.com/
    • Elena1234
      I see that Cracker Barrel restaurants have a gluten free menu (not all locations, but one confirmed that they do). I was wondering if it is safe for my 5 year old son with celiac disease? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.