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Anyone Have Very Stiff Neck/eye Pain And Twiching On Right Side Of Stomach?

breadless in wonderland

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breadless in wonderland Newbie
breadless in wonderland
Posted

I was diagnosed in March of this year and have been Gluten free since April. They also found I am Calcium/Vitamin D deficenty and have ostepenia. I am now having severe swollen neck pain on my right side and pain and pressure in my right eye. Also having spastic nerve of muscle twich on my lower right side of my waist. I was wondering if this could be any kind of complication to celiac...

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alamaz Collaborator
alamaz
Posted

The right side of my neck gets stiff when I eat something that doesn't agree with me, not necessarily gluten. I love these coconut/mango bars by Oskri and they are gluten-free but if I eat one, in 30/45 mins. my neck is stiff (but I eat them because I love them- so bad!!! :( ). I find that most of my symptoms occur on the right side of my body when I eat something that doesn't work for me. Have you eliminated dairy and soy as well? Try keeping a food log. Write down everything you eat (including individual ingredients) and write down your reactions as soon as you notice them (even if there is none).

dionnek Enthusiast
dionnek
Posted

That's so funny b/c all of my problems are on my left side of my body - split us in half and we'd make a perfect body! :lol:

When I first went gluten free I developed a throbbing pain in the left side of my neck - turns out it was a goitter (thyroid problem) - I think b/c I substituted soy for a lot of gluten and supposedly soy is bad for thyroid problems (I already had Hashimotos pre celiac dx). You might want to get your thryoid checked - if you've ever had thyroid problems I would suggest seeing an endocrinologist and having an ultrasound of your neck - that's how they can see the goiter if that is what it is. I didn't have any of the other symptoms you are having though, so it might not be that.

  • 2 weeks later...
breadless in wonderland Newbie
breadless in wonderland
Posted
  • Author

Thanks so much.. I've been to an endo doctor and he say's I'm fine, but I don't believe him...he hasn't done an ultrasound, just blood work.

He said my thyroid is enlarged but the blood work was negative, so I don't know what to think!

That's so funny b/c all of my problems are on my left side of my body - split us in half and we'd make a perfect body! :lol:

When I first went gluten free I developed a throbbing pain in the left side of my neck - turns out it was a goitter (thyroid problem) - I think b/c I substituted soy for a lot of gluten and supposedly soy is bad for thyroid problems (I already had Hashimotos pre celiac dx). You might want to get your thryoid checked - if you've ever had thyroid problems I would suggest seeing an endocrinologist and having an ultrasound of your neck - that's how they can see the goiter if that is what it is. I didn't have any of the other symptoms you are having though, so it might not be that.

Janeti Apprentice
Janeti
Posted
I was diagnosed in March of this year and have been Gluten free since April. They also found I am Calcium/Vitamin D deficenty and have ostepenia. I am now having severe swollen neck pain on my right side and pain and pressure in my right eye. Also having spastic nerve of muscle twich on my lower right side of my waist. I was wondering if this could be any kind of complication to celiac...

Thanks

HELLO, OUR POOR BODIES, AND EVERYTHING IT GOES THROUGH... I STILL GET STOMACH AND RIB PAIN, THEN I GET PAINS ALSO ON MY RIGHT SIDE. WHEN I WAKE UP IN THE MORNING, AND I AM STILL, I CAN FEEL MUSCLES TWITCHES ALL OVER MY BODY. SOMETIMES BEFORE I FALL ASLEEP AT NIGHT, I PUT THE HEATING PAD ON LOW, AND THAT HELPS WITH MUSCLE TWITCHING ON MY STOMACH, AND ALSO RELIEVES SOME OF THAT STOMACH PAIN. :)

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      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
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    • Scott Adams
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    • Scott Adams
      Nausea

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      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
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