Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Positve Bloodwork-biopsy Gastritis And Colitis No Celiac

kay777

Recommended Posts

kay777 Newbie
kay777
Posted

I have been reading the forum for a couple months trying to learn what is going on with my health. When I was 2 years old I was in the hospital for diverticulitis and I don' know about infancy, however, I have had digestion, fatigue and anemia issues ever since. Here's the deal. I had asked my doctor to test me for wheat allergies and it came back:

(tTG) IgA 4 weak positive 4-10

Abs IgG 21 Positive>9

Abs IgA 7 Positve > 4

Endoscopy - Gastritis

Colonoscopy - Colitis

My doctor does not seem to understand that I would be releived to know that the problem was gluten and could get better. He still is not convinced that I have Celiac. due to the negative biopsies. He has me taking Pepto Bismo for 6 weeks and then the swallow the camera capsule deal. These tests are expensive and I guess what I'm asking is ...is the bloodwork enough to go on and the fact that I feel better on the gluten free diet. My concern is the "d" as everyone puts it has not gotten better and makes me nervous that there is something else wrong and it is not related to the gluten. I so just want to get on with my life and take care of the "d" and have some energy for a change. Would love to hear your thoughts! Thanks in advance!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Are you still consuming dairy? That is a possible reason why you still have diarrhea despite being gluten-free. Try eliminating all gluten and dairy (and I'd recommend soy as well) to see if it makes a difference.

TrillumHunter Enthusiast
TrillumHunter
Posted

Positive is positive! They have to draw a cut off number somewhere and you have reached it. There are researchers that would argue a positive biopsy is unnecessary.

I was diagnosed solely on positive blood work about eight weeks ago and I HAVEN'T FELT THIS GOOD IN 13 YEARS!!!! I cannot tell you what an enormous difference this has made in my life. Yes, it can be an adjustment but what a difference to wake up without pain, D and depression. I can't eat dairy yet either and really, if I never can, I don't care. I can ride my bike with my kids! I can go to the store without a list! I am alive now!!! I'm toying with the idea of getting my master's now! Unheard of for me!

Give up dairy. Get all sources of gluten out of your life. (there are lots!) Eat simple, low fat, gluten-free meals for a while and see what happens! You won't lose any thing and you might actually gain your life!! I know I did!

kay777 Newbie
kay777
Posted
  • Author
Are you still consuming dairy? That is a possible reason why you still have diarrhea despite being gluten-free. Try eliminating all gluten and dairy (and I'd recommend soy as well) to see if it makes a difference.

I am still trying to understand how to work the forum and gluten...now I am moving on to dairy and soy. I had just started to add soy and not completely taken out the dairy, but I had a feeling the dairy had to go...never thought about soy, but I have been reading about it and it sounds like it needs to go too. I'm getting ready to go back to work tomorrow after being off and working at home for awhile and dealing with my meals...figuring out lunch and breakfast for 5am feels like a full time job? Any ideas? P.S. Does itchy ears have anything to do with dairy...and how did you find out you were allergic to potatoes....I crave them! Thanks!

kay777 Newbie
kay777
Posted
  • Author
Positive is positive! They have to draw a cut off number somewhere and you have reached it. There are researchers that would argue a positive biopsy is unnecessary.

I was diagnosed solely on positive blood work about eight weeks ago and I HAVEN'T FELT THIS GOOD IN 13 YEARS!!!! I cannot tell you what an enormous difference this has made in my life. Yes, it can be an adjustment but what a difference to wake up without pain, D and depression. I can't eat dairy yet either and really, if I never can, I don't care. I can ride my bike with my kids! I can go to the store without a list! I am alive now!!! I'm toying with the idea of getting my master's now! Unheard of for me!

Give up dairy. Get all sources of gluten out of your life. (there are lots!) Eat simple, low fat, gluten-free meals for a while and see what happens! You won't lose any thing and you might actually gain your life!! I know I did!

Thank you for the support! I have been dealing with this for 48 years so I think I was a little impatient with the GI doctor's insensitivity. I don't think I will go back and will look for a more alternative doctor. I am working on taking the dairy and soy out today. My mood had been really up beat when I took the gluten out of my diet after finding out about my blood work from my primary doctor...except for a period of withdrawl....hmmm...wonder if it could have been from the gluten???? Do you have times when you question if you got some gluten in by mistake or did taking the dairy out pretty much clear things up? again thanks for the support.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,915
    • Most Online (within 30 mins)
      7,748
    marcusdarrell1
    Newest Member
    marcusdarrell1
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you, a little expensive but glad to have this source. 
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.