Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Changes In Sleep Patterns


blueeyedmanda

Recommended Posts

blueeyedmanda Community Regular

I have never had a problem getting to sleep before I had celiac. I have been gluten free for about 3 years now. Since April I have noticed I have trouble falling asleep. I will toss and turn. I feel physically tired but as soon as I hit the pillow it is as if I am wide awake. Now here is the strange part, only happens during the work week.

Our usual bedtime is 11. We wake up between 6:15-6:30. Some nights I even take Tylenol PM. On the weekend..Fri/Sat night I can be half asleep by 11:30. It is driving me crazy. Last night I was so fed up, I was practically throwing pillows/blankets all over the house. I could not get comfortable to even begin to fall asleep. I felt so bad for John, he was doing everything he could to make me comfortable and calm but nothing would help. Tonight after work we are going to buy me some new pillows.

Anyone have this problem or have any suggestions?

I thought I was nervous about work, but things have been smooth at work since Jan so I am not sure what is causing this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Michi8 Contributor

I've got the same issue...I can be really tired, nodding off on the couch, but the minute I go to bed I'm tossing and turning. Or I fall asleep but wake frequently at night. On weekends I sleep in to catch up, but I will still wake up exhausted. I'm sure part of it is sleeping a different schedule on the weekends...it's really best to keep the same sleep schedule throughout the week to keep from resetting one's internal clock.

That said, I'm convinced that my sleep issues, plus my long list of other health complaints are thyroid and/or andrenal related. Unfortuantely, my labs are all "normal." I'm sure that I'm one of those people who have a normal looking TSH, but the number (2.49) is high for me. (I've read that anything over 1.5 should be considered hypo.)

Michelle

Guhlia Rising Star

Yeah, same here... I have a much harder time falling asleep now than I did pre-dx. I also have a very hard time staying asleep. I rarely feel well rested in the morning. I keep the same schedule all week long (stay at home mom) and it doesn't make a bit of difference for me. If you figure anything out, let us know. I would love to have a good night's sleep again. I always just thought that my sleep issues were related to becoming a mom. Maybe not though...

nowheatnomilk Rookie

good it's not just me... I'm up till 4:00 am sleep till 8:oo am. I guess Physical exercise should be a recommendition, I understand That now my body is absorbing nutriants so i am wondering if that might be why energy levels changing or starting to change.

Rosewynde Rookie

Have you tried some bed time routine to get you relaxed? I've always read some before sleeping. I frequently fall asleep with it still in my hands ; D If i try to go to sleep without reading it usually takes me a long while because my mind wanders over things I've done that day repeatedly. Maybe taking a brisk walk, hot shower, or hot cup of tea might help, I've heard of all of those being part of a bedtime routine.

blueeyedmanda Community Regular

Thanks everyone. I feel so much better knowing it is not just me. I am thinking of trying a relaxing bath/reading while in there tonight before bed. I will report back. I would also like to get my hands on some lavender oil, which they say relaxes you too.

KAG Rookie

Here are some ideas that might help you get to sleep. See if any might work for you. Fortunately I do not have sleep problems usually. I am back on gluten for awhile for testing and now I wake up in the middle of the night and can't get back to sleep. I have been taking a hot bath with lavendar and drinking something warm. It really helps. Also sleeping in complete darkness really helps.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

I never had any problems sleeping until 3-4 years ago, and then it was only once in awhile. About 2 years ago, suddenly I couldn't sleep through the night. Go to sleep but then wake in a couple of hours and couldn't get back to sleep.

Dr. checked and tried several things. Not sure I can remember them all. Cortisol levels was one--but it made me worse to treat that. L-tryptophan powder has helped. Doc said it helps about 50% of people. (The sleeping making protein in turkey).

For me it has seemed to be hormone related. Started going on low dose HRT and it helped but still fluctuates at times. Like I'll be fine for 6 weeks and then have 1-2 weeks where I need sleeping medication.

I've read with interest the celiacs who get over insomnia after gluten-free, but so far that's not me. Maybe eventually as I am only 2 months gluten-free.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748

    Estee
    Newest Member
    Estee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...