Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Malaria Medications


OceanGirl78

Recommended Posts

OceanGirl78 Newbie

I need help with malaria meds!! I am traveling to Sudan, Africa in a few weeks and need to take malaria meds. There are four options from what I have discovered.

One I cannot take because the malaria strains are resistant to it.

One I cannot take because I have a history of depression.

Doxycycline makes you extremely sensitive to the sun (I am blonde and very fair - already have problems with the sun AND I am traveling directly from there to the Seychelle ISLANDS to get married and relax on the beach for 10 days). They said I would need to wear a widebrim hat and keep completely covered while in the sun...not going to be possible!!! :o

The last one that they want to give me is malarone and I am currently battling with Glaxo Smith Kline about the fact that they do not know where their starch comes from...at present I am waiting for a return call from someone there. There is not a generic. :angry:

Does anyone have experience with this sort of situation, or with malarone? I spoke to my pharmacist and he told me to speak with a supervisor and mention a law suit because he said there is no way that they do not know what is in the medication....He said I just need to squeeze it out of them basically.... :(

Laurie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

CarlaB should know...she is either on it now, or about to be on it. If she doesn't see this, PM her.

CarlaB Enthusiast

Currently I'm on Mepron, which is anti-protozoal (malaria). It's a horrid tasting liquid and is stronger than Malarone. Malarone contains the active ingredient of Mepron in it.

I haven't checked on the Malarone for it's gluten status because I wasn't ready to switch to something weaker yet ... the infection is still too strong.

What about quinine? Or Artemisia Annua?

Don't take the doxy ... I got sunburned with #35 sunscreen on THROUGH the car window!!!

BTW, I'm on Mepron in conjunction with Biaxin and Artemisia. The combination prevents resistance. I'm taking it for Babesia, which is malaria-like.

OceanGirl78 Newbie

Thanks Carla for the info!!!! I REALLY appreciate it! :rolleyes::P

I hope your infection starts to decrease soon! I'll let you know if/when I hear from GSK about the malarone. :o

Laurie

dlp252 Apprentice

This is probably the same info you already have because it looks like what might be included with the meds, but I found this on their website:

The inactive ingredients in both tablets are low-substituted hydroxypropyl cellulose, magnesium stearate, microcrystalline cellulose, poloxamer 188, povidone K30, and sodium starch glycolate. The tablet coating contains hypromellose, polyethylene glycol 400, polyethylene glycol 8000, red iron oxide, and titanium dioxide.

Open Original Shared Link

CarlaB Enthusiast

I'll look forward to hearing about the Malarone. When I previously researched sodium starch glycolate, I discovered that it's usually not from wheat ... so I took the chance. This was for a different medication than Malarone though. I usually react to small amounts, so I thought that would be the tell-tale sign. I'm on meds long term though ... I don't know that I'd do that right before a trip. ;)

Thanks for the well-wishes. The Babesia infection has gone down significantly and I only have symptoms for a few days a month. I have to have no symptoms for two months to get off the anti-malarials. It will take longer to get rid of the Lyme Disease though.

Have a wonderful trip!

Did you know tonic water was made to help prevent malaria? There is a small amount of quinine in it, so small I don't know how effective it is on its own, but it was areas that had malaria where gin and tonics were consumed.

Felidae Enthusiast

I took malarone in the past, but I didn't realize I was gluten intolerant at the time. Everyone I was with took the other options and they had some issues, not celiac related. I loved malarone, so if you can get the starch information from the manufacturer hopefully, you'll get some insight. That's pretty bad that they don't know their starch source.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
GeoGigi Newbie

I just faced the same decision about taking Malarone. I spoke to a representative from Glaxo Smith Kline. Some of the starch ingredients listed are questionable but they told me the sources were all from wood, cotton or potato. One of the starch ingredients was from an unspecified "fibrous starch" which they said usually means wood or cotton but they could not know for sure. That was good enough for me to decide to take it. Of course, they have the disclaimer that there may be minute traces of gluten before the ingredients reach them. I am going to take it and hope it will be fine.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,071
    • Most Online (within 30 mins)
      7,748

    Gigic
    Newest Member
    Gigic
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.