Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Someone Help Me With My Blood Results?


good-trojan

Recommended Posts

good-trojan Newbie

Hi everyone,

First poster here with request for help!

I recently requested to be tested for Celiac due to months of sudden and escalating joint pain. The joint /bone pain moves around. I have had a number of other blood tests for ANA , CRP, RA, Lymes and all so far are negative.

What we have found so far is:

Anaemia at 9.1 (not pern.anaemia..all reds are low)

Thyroid Underactive

After reading about Celiac Disease..I felt this strange kind of... connection - like all those other "smaller" things Id lived with all my life may have a connection to this bone pain. The other lifelong "smaller" things being:

tiredness and nausea sometimes after meals

weak stools (they always float lol. in fact until i read about celiac, i thought everyones did!)

accelerated digestion (i usually have stools at 2-4 times a day)

flatulence

abdominal distention

muscle cramps

I was an awkward kid who when ill, threw up until i reached my stomach green bile

So.... I ask my doc to test for Celiac. I collected my results today and he advised "negative"

But I look at my results and I see only three possible Celiac things on my blood count, these being

Transglut igA 1.2

transglut igA 1.2

Gliadin 1.2

Now Im an english speaker living in germany, so the titles may look a tad different... but Im a bit puzzled when i read my numbers here above, and compare with sarahelizabeth


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

unfortunately, you can't use another labs reference ranges against your tests. you need to find out the reference ranges for the lab that your tests were performed at, in order to interpret the results.

good-trojan Newbie
unfortunately, you can't use another labs reference ranges against your tests. you need to find out the reference ranges for the lab that your tests were performed at, in order to interpret the results.

thanks Tarnalberry!

Do you know which of the above tests though, my test were?

Like I see five test results often in other threads on this and other sites, but I only have three on my bloodcount.

Transglut igA 1.2

transglut igA 1.2

Gliadin 1.2

I don

tarnalberry Community Regular

no, I don't really understand the results. the first two things you right are the same thing, too. unless it was a typo - were one of those IgG, not both IgA?

but yes, at least some tests are missing.

good-trojan Newbie
no, I don't really understand the results. the first two things you right are the same thing, too. unless it was a typo - were one of those IgG, not both IgA?

but yes, at least some tests are missing.

thanks tarnalberry. You

NY547 Newbie

Guten Tag!

I think it is quite a coincidence that all 3 results came out 1.2 I would question the results if they were mine!

Many doctors just order the Tissue transglutaminase test (TtG IgA) as a screen. It is good your doctor included the IgG as well and also the gliadin antibody. I would also ask for the total IgA (total immunoglobulin A) as well.

The endomysial antibodies you see on these boards are often part of an initial screen, but are only positive in 60% of confirmed celiacs anyway. So many doctors just order the TTg instead, which is fine as an initial screening.

It is possible that 1.2 is the low end sensitivity of the tests, so that is what they report, while many labs just report the numbers as <1 or less than 3, whatever the cutoff value is. I would ask the doctor if that was the case, then it would make sense that all 3 numbers were the same.

I hope this helps! And the symptoms you describe do sound like celiac! I would definately follow up.

  • 3 weeks later...
good-trojan Newbie
Guten Tag!

I think it is quite a coincidence that all 3 results came out 1.2 I would question the results if they were mine!

Many doctors just order the Tissue transglutaminase test (TtG IgA) as a screen. It is good your doctor included the IgG as well and also the gliadin antibody. I would also ask for the total IgA (total immunoglobulin A) as well.

The endomysial antibodies you see on these boards are often part of an initial screen, but are only positive in 60% of confirmed celiacs anyway. So many doctors just order the TTg instead, which is fine as an initial screening.

It is possible that 1.2 is the low end sensitivity of the tests, so that is what they report, while many labs just report the numbers as <1 or less than 3, whatever the cutoff value is. I would ask the doctor if that was the case, then it would make sense that all 3 numbers were the same.

I hope this helps! And the symptoms you describe do sound like celiac! I would definately follow up.

Thanks NY547!

I saw an Endocrinologist 14 days back who diagnosed Autoimmune Hypothyroidism. My doc has since advised that they want to wait 4 weeks to monitor improvements in joint/muscle pain during that time to give the Thyroxin chance to help my body. On the one hand I understand the logic of this. On the other I am impatient and unconfident in this approach. I seem to have a sore throat almost daily now, and these strange 60 minute Irritability hours that are developing. On top of the joint pain, anemia, the immensely itchy skin and the abdominal pain- waiting 4 weeks seems to me like an age.

I believe I should be tested further for Celiac, but somehow I always feel like I have to push for this. It


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

False negative abound in celiac testing. Going on the gluten free diet to see if it helps is only going to improve your thyroid if the diet is needed. The diet will not mask any other disorders or disease. Sometimes the best diagnostic there is is your response to the diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd posted a topic in Related Issues & Disorders
      0

      Basic metabolic panel results - more flags

    2. - xxnonamexx posted a topic in Related Issues & Disorders
      0

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    5. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,317
    • Most Online (within 30 mins)
      7,748

    RickT
    Newest Member
    RickT
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Hey all  Has anyone on here experienced any of the following on their basic metabolic panel results ? This is what mine is currently flagging : - low sodium  - nearly too low potassium - nearly too low chloride - high CO2  - low anion gap  This is now after being nearly gluten-free for over a year (although I admit I make mistakes sometimes and pay dearly for it). My TtG went down to undetectable. I was so sensitive to so many foods I am now avoiding meat dairy and don’t eat a lot of cooked food in general (raw veggies, white rice, avocados and boiled eggs are my usual go-to meal that doesn’t make me sick). But my abdomen still hurts, i have a range of other symptoms too (headaches that last for days before letting up, fatigue, joint pain, bladder pain). Anyway im hoping my urologist (that’s now the latest specialist I’ve seen on account of the bladder pain and cloudy urine after eating certain foods) will help me with this since he ordered this metabolic panel. But I’m bouncing around a lot between specialists and still not sure what’s wrong. Also went back to the GI doctor and she thought maybe the celiac is just not healed or I have something else going on in the colon and I should have that looked at too. I’m still anemic too BTW. And I’m taking sooo may vitamins daily. 
    • xxnonamexx
      I know I haven't been tested but self diagnosed that by avoiding gluten the past 7 months I feel so much better. I have followed how to eat and avoid gluten and have been good about hidden gluten in products, how to prep gluten-free and flours to use to bake gluten-free and have been very successful. It has been a learning curve but once you get the hang of it and more aware you realize how many places are gluten-free and contamination free practices etc. One thing I have read is how soy is like gluten. How would one know if soy affects you? I have eaten gluten free hershey reeses that say gluten free etc some other snacks say gluten free but contain soy and I dont get sick or soy yogurt no issues. Is there adifference in soys?
    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.