Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Request #3


BamBam

Recommended Posts

BamBam Community Regular

My girlfriend joined toe boards last week, she got no responses to her simple questions, so I wrote to the board asking the same thing and have yet to get an answer, so I will ask again.

I've never been doctor diagnosed with celiac, I am self-diagnosed so have not had any blood work done. But we need to know what blood tests to request to be checked for celiac/gluten intolerance. My girlfriend has many symptoms.

Also what other test is recommended for other food allergies, we think she is highly intolerant of corn products. When she eats them she is running for bathrooms almost immediately. I've heard of Enterolab, and wasn't sure if there were any others or not.

I thank you in advance for any advice! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ArtGirl Enthusiast

I don't have this knowledge to relate to you, but I did a search on this board "blood tests to request" and came up with several threads on the subject.

This one Open Original Shared Link lists these tests:

Tissue Transglutaminase Antibody IgA and IgG

Gliadin Antibody IgA

Total IgA

You might want to do the search yourself and read the other threads that come up. You go to the search feature near the top of the screen - the one that gives the sample of tomato sauce - and key in the words you want to search on there - be sure you don't delete the word "site" at the end of the string.

Canadian Karen Community Regular

Here is the list I found on here:

They can test you for Celiac disease if you havent been tested and are still consuming gluten. These are the tests for the Celiac Panel:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

Karen

Canadian Karen Community Regular

Keep in mind that if the problem is gluten intolerence, but not full blown Celiac, that will not show up on any bloodwork....... I firmly believe that is the case with most people who test negative on the bloodwork: They don't have full blown celiac, but are definitely gluten intolerant......

Karen

ArtGirl Enthusiast
Keep in mind that if the problem is gluten intolerence, but not full blown Celiac, that will not show up on any bloodwork....... I firmly believe that is the case with most people who test negative on the bloodwork: They don't have full blown celiac, but are definitely gluten intolerant......

Karen

So true. I am "only" gluten intolerant. I did have a blood panel for food sensitivities 10 years ago which showed up gliadin, wheat and gluten - but the doctor didn't even see that as a red flag, and I, of course, didn't understand the significance. After finding this forum I did finally go thru Enterolab and found that I have two genes for "intolerance" but none for Celiac. So probably if the doctors HAD run the tests they'd have been negative for Celiac and I'd still have had to figure it out for myself.

Edit...

I just reread your post and see that your girlfriend has a problem with corn. I do, too. I didn't fully recover symptom-wise until I eliminated corn and all corn derivitaves, including citric acid. There's a forum Open Original Shared Link that has been was very helpful to me. I have other links that give lists of foods to avoid (regarding corn) and if you're interested, just PM me and I'll send them to you.

holdthegluten Rising Star

For the food allergy test you can try US Biotek and order the food allergy panel (your doctor has to order it), if you want convenience you can order an at home finger prick test (96 food allergy panel ELISA) from optimum health resources $379 Open Original Shared Link

BamBam Community Regular

Thank you so much for the quick responses. Rebecca will be back to work on Monday and I will have some good information for her.

Good to hear from you Canadian Karen - you're one of the oldies but goodies!! I miss hearing from some of the old timers!

BamBam


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

BamBam,

Also remember that it is the summer and many of the regulars aren't on the board as much....vacation, kids out of school, trips, nice weather, etc. The board has had a lot of new posters lately and it is hard to keep up.

I am happy that your question was answered. You are a good friend for helping her.

gfpaperdoll Rookie

Yep, Karen gave you the right info on the blood tests. Just be sure to remind your friend that a negative blood test does not mean that she does not have celiac or gluten intolerance.

Not a blood test, but I really like Enterolab.com

Please also remind your friend that dietary trial is the real proof.

Sorry she did not get a reply to her question.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.