Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Request #3


BamBam

Recommended Posts

BamBam Community Regular

My girlfriend joined toe boards last week, she got no responses to her simple questions, so I wrote to the board asking the same thing and have yet to get an answer, so I will ask again.

I've never been doctor diagnosed with celiac, I am self-diagnosed so have not had any blood work done. But we need to know what blood tests to request to be checked for celiac/gluten intolerance. My girlfriend has many symptoms.

Also what other test is recommended for other food allergies, we think she is highly intolerant of corn products. When she eats them she is running for bathrooms almost immediately. I've heard of Enterolab, and wasn't sure if there were any others or not.

I thank you in advance for any advice! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ArtGirl Enthusiast

I don't have this knowledge to relate to you, but I did a search on this board "blood tests to request" and came up with several threads on the subject.

This one Open Original Shared Link lists these tests:

Tissue Transglutaminase Antibody IgA and IgG

Gliadin Antibody IgA

Total IgA

You might want to do the search yourself and read the other threads that come up. You go to the search feature near the top of the screen - the one that gives the sample of tomato sauce - and key in the words you want to search on there - be sure you don't delete the word "site" at the end of the string.

Canadian Karen Community Regular

Here is the list I found on here:

They can test you for Celiac disease if you havent been tested and are still consuming gluten. These are the tests for the Celiac Panel:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

Karen

Canadian Karen Community Regular

Keep in mind that if the problem is gluten intolerence, but not full blown Celiac, that will not show up on any bloodwork....... I firmly believe that is the case with most people who test negative on the bloodwork: They don't have full blown celiac, but are definitely gluten intolerant......

Karen

ArtGirl Enthusiast
Keep in mind that if the problem is gluten intolerence, but not full blown Celiac, that will not show up on any bloodwork....... I firmly believe that is the case with most people who test negative on the bloodwork: They don't have full blown celiac, but are definitely gluten intolerant......

Karen

So true. I am "only" gluten intolerant. I did have a blood panel for food sensitivities 10 years ago which showed up gliadin, wheat and gluten - but the doctor didn't even see that as a red flag, and I, of course, didn't understand the significance. After finding this forum I did finally go thru Enterolab and found that I have two genes for "intolerance" but none for Celiac. So probably if the doctors HAD run the tests they'd have been negative for Celiac and I'd still have had to figure it out for myself.

Edit...

I just reread your post and see that your girlfriend has a problem with corn. I do, too. I didn't fully recover symptom-wise until I eliminated corn and all corn derivitaves, including citric acid. There's a forum Open Original Shared Link that has been was very helpful to me. I have other links that give lists of foods to avoid (regarding corn) and if you're interested, just PM me and I'll send them to you.

holdthegluten Rising Star

For the food allergy test you can try US Biotek and order the food allergy panel (your doctor has to order it), if you want convenience you can order an at home finger prick test (96 food allergy panel ELISA) from optimum health resources $379 Open Original Shared Link

BamBam Community Regular

Thank you so much for the quick responses. Rebecca will be back to work on Monday and I will have some good information for her.

Good to hear from you Canadian Karen - you're one of the oldies but goodies!! I miss hearing from some of the old timers!

BamBam


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

BamBam,

Also remember that it is the summer and many of the regulars aren't on the board as much....vacation, kids out of school, trips, nice weather, etc. The board has had a lot of new posters lately and it is hard to keep up.

I am happy that your question was answered. You are a good friend for helping her.

gfpaperdoll Rookie

Yep, Karen gave you the right info on the blood tests. Just be sure to remind your friend that a negative blood test does not mean that she does not have celiac or gluten intolerance.

Not a blood test, but I really like Enterolab.com

Please also remind your friend that dietary trial is the real proof.

Sorry she did not get a reply to her question.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.