Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened From Miniscule Amount?

geelet

By geelet
in Coping with Celiac Disease

Recommended Posts

geelet Newbie
geelet
Posted

Hi - I have celiac and have been on the gluten-free diet for 9 months. I'm not exactly sure what getting "glutened" feels like. Yesterday, because of a misunderstanding at a friend's house I put a chip in my mouth and started chewing. Right then my friend realized the mistake and told me not to eat it. I spit it out before swallowing and rinsed my mouth several times.

Today, I have a sore throat, diarrhea and am very tired. I have had these "episodes" on other occasions and have never been able to pinpoint the exact cause as I do try to be very careful. Is it possible that I could have been glutened from the miniscule amount of chip that I might not have managed to wash out from my mouth? Is there anyone else who gets "episodes" like this and if so, do you think it is from being glutened by a tiny amount of wheat or just a general weak stomach that may have nothing to do with gluten?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pnltbox27 Contributor
pnltbox27
Posted

i guess it really depends on how sensitive you are to gluten . in my short time on the gluten free diet ive only felt really "glutened" mabey once or twice, the first time was a rookie mistake , we went out for dinner and i ordered a cheeseburger with the bun and just took it off,i really didnt think it was going to be a big deal. bad mistake.other than that i am constantly in contact with gluten i just dont eat it, making kids lunches ,dinner etc...and i really dont have reactions , ive never felt better.im crossing my fingers as i write this that i never become as sensitive as some on this board. my heart goes out to you guys.good luck. hope you feel better

Guest j_mommy
Guest j_mommy
Posted

Could be from that!!! Like the previous poster said it is about how sensitive you are!

Hope you feel better soon!

oceangirl Collaborator
oceangirl
Posted
Could be from that!!! Like the previous poster said it is about how sensitive you are!

Hope you feel better soon!

Hi.

Well, if you are one of the "lucky" celiacs (I'm being a bit sardonic...) who respond beautifully to only eliminating gluten maybe that would be far-fetched. There are many of us, however, who not only are intolerant to gluten but find we are also intolerant to many, many other foods and must discern which by the painful, slow process of elimination and reintroduction. We also are HYPER-sensitive to even the smallest amounts of gluten. If, (sadly) you are one of us, I find what happened to you not hard to believe as it's happened MANY, MANY times to me and many others on this board. I am a year into gluten, soy, corn, legume, nightshade and mostly dairy-free. (Yes, I eat only rocks...... kidding) My gluten-intolerance genes are two Double DQ 1s (an apparently, anecdotally at least, pair of nasty ones), and am doing MUCH better, but it IS a vigil. I hope you will not turn out to be that sensitive in the long run, but, if you are, you will need to be incredibly cautious. Hope this is useful and very good luck to you!

lisa

Karen B. Explorer
Karen B.
Posted

I didn't believe the reaction could be so sensitive that a peck from my hubby after he ate gluten could make me sick. We've been married 20+ years and I'm talking a goodbye peck in the morning, not a major lip lock.

I kept getting mild gluten hits and couldn't figure out where it was coming from. The sneaky man keep track for 2 weeks and didn't tell me until he had two weeks of data -- it was really clear. He ate raisin bran, I got sick. He ate grits, I didn't get sick. Now, he brushes his teeth before we say goodbye in the morning.

Yes, you really can get sick from very small exposures to gluten.

casnco Enthusiast
casnco
Posted
I didn't believe the reaction could be so sensitive that a peck from my hubby after he ate gluten could make me sick. We've been married 20+ years and I'm talking a goodbye peck in the morning, not a major lip lock.

I kept getting mild gluten hits and couldn't figure out where it was coming from. The sneaky man keep track for 2 weeks and didn't tell me until he had two weeks of data -- it was really clear. He ate raisin bran, I got sick. He ate grits, I didn't get sick. Now, he brushes his teeth before we say goodbye in the morning.

Yes, you really can get sick from very small exposures to gluten.

Unfortunatly I have the same responce to kissing someone who has consumed gluten. What a bummer!!!! Fortunately my hubby has decided to be gluten free with me. Now there is a nice guy!! And he can now have kisses anytime he wants one.

I wash my hands before I eat everytime. If I am at work I know I can count on people not being carefull with the microwave. So I place a papertowl down before my container. Then when I put my empty container back in my lunch box there is no chance of cross contamination. There are alot of things to be carefull of when you are as sensitive as some of us. Sorry you seem like you could be one of the sensitive ones. Good luck.

cruelshoes Enthusiast
cruelshoes
Posted

It has been my experience that the longer I am gluten-free, the less gluten it takes for me to get a reaction. I know that many others have experienced the same. How's that for a rude joke - the more careful I am, the less it takes to make me sick. No fair! ;)

Early on after my diagnosis, I used the communal toaster at work to toast my gluten-free bread. Surely a few crumbs could not get me to react. Ooooh - was I wrong. It took 3+ days for the symptoms to go away. So I would say yes, the amount in that chip could be enough for you to react.

Hope you feel better!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GeoffCJ Enthusiast
GeoffCJ
Posted

I got glutened during finals last month. A friend handed me a red vine while studying, I bit off a piece, hcewed once or twice, thought about it, spit it out. I was still sick.

My wife is not gluten-free, but our house is mostly gluten-free now. She's very careful not to kiss me after eating something with gluten.

Geoff

Karen B. Explorer
Karen B.
Posted
Unfortunatly I have the same responce to kissing someone who has consumed gluten. What a bummer!!!! Fortunately my hubby has decided to be gluten free with me. Now there is a nice guy!! And he can now have kisses anytime he wants one.

I wash my hands before I eat everytime. If I am at work I know I can count on people not being carefull with the microwave. So I place a papertowl down before my container. Then when I put my empty container back in my lunch box there is no chance of cross contamination. There are alot of things to be carefull of when you are as sensitive as some of us. Sorry you seem like you could be one of the sensitive ones. Good luck.

Hubby decided to go with a completely gluten-free house after all that. We went through the pantry and gave away everything that had gluten in it (he eats buckwheats for breakfast now). Funny thing is we gave most stuff to my Mom and she was diagnosed with Celiac a year later.

geelet Newbie
geelet
Posted
  • Author

Yes, unfortunately, I think I may be one of the "unlucky" celiacs. I already couldn't eat dairy, and seem to have developed a legume intolerance since going gluten free. I'm still having episodes with the big D every couple of weeks. I actually thought I was doing a lot better since it's not every day anymore! However, my doctor doesn't think that's good enough after 10 months on the diet and I will be getting a repeat endoscopy/colonoscopy soon. I really appreciate all the responses on here. I have not yet looked into things like shampoo/face lotion (although i have checked my hand lotion and lipstick, figuring those can end up in the mouth pretty easily). But I think i may need to just be extra, extra vigilant (like it wasn't already hard enough. grr.) since i am so sensitive. Maybe I'll try some other food eliminations too. that should be fun.

Hi.

Well, if you are one of the "lucky" celiacs (I'm being a bit sardonic...) who respond beautifully to only eliminating gluten maybe that would be far-fetched. There are many of us, however, who not only are intolerant to gluten but find we are also intolerant to many, many other foods and must discern which by the painful, slow process of elimination and reintroduction. We also are HYPER-sensitive to even the smallest amounts of gluten. If, (sadly) you are one of us, I find what happened to you not hard to believe as it's happened MANY, MANY times to me and many others on this board. I am a year into gluten, soy, corn, legume, nightshade and mostly dairy-free. (Yes, I eat only rocks...... kidding) My gluten-intolerance genes are two Double DQ 1s (an apparently, anecdotally at least, pair of nasty ones), and am doing MUCH better, but it IS a vigil. I hope you will not turn out to be that sensitive in the long run, but, if you are, you will need to be incredibly cautious. Hope this is useful and very good luck to you!

lisa

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    3. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    4. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
    5. knitty kitty
      - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

      @EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,691
    • Most Online (within 30 mins)
      7,748
    4Nic8ion
    Newest Member
    4Nic8ion
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Dizziness after eating green beans?

      By trents · Posted

      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.