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Fructose Intolerance


Calle

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Calle Rookie

Has anyone out there discovered that they also have issues with fructose? I just read by doing some research on the internet that it is common with some people with Celiac to also have issues with fructose. I noticed years ago that fructose seem to be a problem for me before I ever realized that gluten was an issue. I also have a problem with casein. Sorbitol is like poison to me. So I'm thinking what am I supposed to eat!!!! If I didn't have to eat to survive I would just give up on eating. It is so stressful to me to try and eat ALL the right things. I have been pretty much gluten free for two months now and I'm not feeling any better. I'm just having a bad day today. I certainly don't want to feel sorry for myself, but if I would get to feeling good then I would eat whatever it is to continue to feel that way. I haven't felt normal (whatever that is) for over 20 years with my stomach.

Calle


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JamiD Apprentice

Yes, I have. Have you cut out any other food groups ie dairy?

Another poster provided me with these links. They have info on fructose.

Open Original Shared Link

Open Original Shared Link

I found that eliminating apples and peaches, that I was eating a lot of, has helped a lot.

I'm now sticking to berries, cantaloupe, and bananas.

Still I think fruit in the amounts that I'm eating is troublesome to me. My plan, when I get organized, is to quit fruit for a few days, stick to just meat and green veggies, and re-try some other foods such as rice or legumes just to see if fruit has been the problem.

It's all a PITA, but I'm trying to look at my food experimentation as a challenge that I will eventually find a solution to. Hang in there!

Jami

momofgirlswithcurls Newbie

Hi -

My 4 year old daughter was just diagnosed with fructose intolerance on top of celiac on top of her allergies to milk, eggs, soy, and several nuts. You can do this with a breath test and I suggest it. It is very stressful and I am so sorry that you are going through this too. It means (depending on how sensitive you are) to almost all fruits and a host of veggies, honey, and other sweeteners. I do know that if you have the fructose problem you may have to also give up sugar (some are OK with it some are not) and that we can substitute glucose/dextrose. But, if any readers out there are fructose intolerant, I would love to ask them some questions. Good luck.

Dorothy

Has anyone out there discovered that they also have issues with fructose? I just read by doing some research on the internet that it is common with some people with Celiac to also have issues with fructose. I noticed years ago that fructose seem to be a problem for me before I ever realized that gluten was an issue. I also have a problem with casein. Sorbitol is like poison to me. So I'm thinking what am I supposed to eat!!!! If I didn't have to eat to survive I would just give up on eating. It is so stressful to me to try and eat ALL the right things. I have been pretty much gluten free for two months now and I'm not feeling any better. I'm just having a bad day today. I certainly don't want to feel sorry for myself, but if I would get to feeling good then I would eat whatever it is to continue to feel that way. I haven't felt normal (whatever that is) for over 20 years with my stomach.

Calle

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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