Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Good Doctors From Sydney, Australia?


ellie-kate

Recommended Posts

ellie-kate Newbie

haha I don't even know if there is anybody on these boards from sydney..im sure there is. But yeh if there is can you please tell me about the doctor you see/saw??

Thanks :)

  • 4 years later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sadsickgirl Newbie

haha I don't even know if there is anybody on these boards from sydney..im sure there is. But yeh if there is can you please tell me about the doctor you see/saw??

Thanks :)

Hi I'm just bumping this up. I'm in Sydney and am having a really hard time with doctors at the moment. I feel like I have some celiac symptoms such as joint pain, fatigue, flatulence, nausea, depression, sporadic tingling in hands and feet, random unexplained stomach pain and that this could potentially be celiac disease. However I've been to see a number of doctors about my symptoms and have had the blood test done which has always come back negative. Its got to the point where no one will take me seriously and I'm beginning to think that maybe I'm just crazy and should see a psychologist. I'm really not keen to just try the diet and see how I feel before trying more testing as my family most definitely won't take me seriously without a proper diagnosis (they already think I'm a hypochondriac). Sorry for the long ramble but if there is anyone in Sydney that can point in the direction of a knowledgeable GP or celiac specialist I would be so, so, so grateful. Thanks in advance for your help :).

beachbirdie Contributor

haha I don't even know if there is anybody on these boards from sydney..im sure there is. But yeh if there is can you please tell me about the doctor you see/saw??

Thanks :)

Hi I'm just bumping this up. I'm in Sydney and am having a really hard time with doctors at the moment. I feel like I have some celiac symptoms such as joint pain, fatigue, flatulence, nausea, depression, sporadic tingling in hands and feet, random unexplained stomach pain and that this could potentially be celiac disease. However I've been to see a number of doctors about my symptoms and have had the blood test done which has always come back negative. Its got to the point where no one will take me seriously and I'm beginning to think that maybe I'm just crazy and should see a psychologist. I'm really not keen to just try the diet and see how I feel before trying more testing as my family most definitely won't take me seriously without a proper diagnosis (they already think I'm a hypochondriac). Sorry for the long ramble but if there is anyone in Sydney that can point in the direction of a knowledgeable GP or celiac specialist I would be so, so, so grateful. Thanks in advance for your help :).

I was looking around the 'net a bit, and found a Open Original Shared Link in australia...can't figure out exactly where, but they might be able to connect you with others in Oz!

Have you had any luck with groups like Open Original Shared Link?

There will be a "Open Original Shared Link" in Sydney later this year...maybe you could find helpful information through their site.

beebs Enthusiast

Hiya - I'm from Sydney. There is a woman in Balmain who is both a GP and Coeliac researcher - she is meant to be really good. Her name is Dr Carole Hungerford. Good luck I believe her waiting list is quite long.

beebs Enthusiast
Open Original Shared Link
anabananakins Explorer

I've seen her too Beebs and she's very supportive.

auzzi Newbie

Dr Rita Lin Westmead


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beebs Enthusiast

I didn't see her ana - a family friend is a doctor who went to medical school with her and she was saying for Gluten she is the best.

anabananakins Explorer

I didn't see her ana - a family friend is a doctor who went to medical school with her and she was saying for Gluten she is the best.

Ah, I missed that. Well she's a great recommendation, worth the wait.

sadsickgirl Newbie

Hi everyone, thanks for the suggestions. I've decided to follow up with Dr Hungerford and hopefully will be able to see her in July. I really appreciate the help :) .

  • 2 years later...
scorpio Apprentice

Sadsickgirl (and others) - if you're still on the forum, how was Dr Carole Hungerford? I've got an appointment with her but I've been to multiple doctors who aren't sure whether the symptoms i'm experiencing are caused by Celiac Disease (I've already been diagnosed) and can't really help me. She's very expensive but if she will be of help to me then I'm willing to see her. Thanks :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.