Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking Like This Is It


megdog1992ms

Recommended Posts

megdog1992ms Newbie

Greetings,

I am a new guy here. It seems that all the symptoms are stacking up to be celiac disease. I was browsing a forum (don't know which one) the topic of MS was noticed. Am I to understand that it may be possible to mis-diagnose celiac disease as MS? I have the brain spots and other symptoms, the definative test is the spinal fluid test for MS, Can celiac disease "throw a false positive" on the oligaclonal banding in the spinal fluid?

Within the last 2 months a nasty bout of roaming joint pain sent me to the doc, not -RA, with a random conversation a friend said look at Ceilac's Looking back, the GI tract symptoms are there and at the time of the joint disaster I was taking a Cake decorating class and was having 2-3 cakes a week. I could not gain a pound if my life depended upon it.

Any feedback?

Respectfully,

Mark


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfpaperdoll Rookie

You might find this article informative

Open Original Shared Link

And from another board:

"Dr. Fasano lists M.S. as an autoimmune disease affected by gluten/too much zonulin/leaky gut. Here's a good article: Open Original Shared Link "

I have read many articles on MS & celiac diet, I think it is now being looked at by a lot of people with MS. You might also try googling it to find other discussions.

my personal opinion is that MS is nothing more than a form of celiac disease that could benefit from a gluten free diet & I think also the elimination of a few other foods like dairy & legumes...

But then again I believe that the human body is perfect but that we just feed it a combination of the wrong foods which causes disease (unless there is a physical defect in addition to...) If you read some of the books out there like Dangerous Grains, Dr Peter Green's "Celiac Disease, A Hidden epidemic" you will get introduced to the evolution of the human species and the changes they have made in their diet. & see that when wheat was introduced to the diet we also began to die younger & have more disease...

TrillumHunter Enthusiast

You certainly could have celiac not MS. For years I faced an MS diagnosis when it was really celiac. I too, had the brain spots. I'm gluten-free for about three months now and feeling fantastic. I was very happy to have celiac and not MS. If you've been eating gluten you can have a simple blood test to find out.

Best wishes to you!

confusedks Enthusiast

If you want to find out if you have celiac...make SURE you don't take gluten out of your diet!

Kassandra

Belinda Meeker Apprentice
Greetings,

I am a new guy here. It seems that all the symptoms are stacking up to be celiac disease. I was browsing a forum (don't know which one) the topic of MS was noticed. Am I to understand that it may be possible to mis-diagnose celiac disease as MS? I have the brain spots and other symptoms, the definative test is the spinal fluid test for MS, Can celiac disease "throw a false positive" on the oligaclonal banding in the spinal fluid?

Within the last 2 months a nasty bout of roaming joint pain sent me to the doc, not -RA, with a random conversation a friend said look at Ceilac's Looking back, the GI tract symptoms are there and at the time of the joint disaster I was taking a Cake decorating class and was having 2-3 cakes a week. I could not gain a pound if my life depended upon it.

Any feedback?

Respectfully,

Mark

Hey Mark,

Sorry to hear u too maybe have this awful disease, but I'm sure it better then the MS.

My brother-in-law was DXD about 10+ years ago with MS but now his brother (my hubby) is having symptoms of celiac disease (we have a Celiac Spru son age 17) and I too have celiac disease so myabe bro-in-law too?

Not sure but we r going for gene test in September, maybe a suggestion for u too !

U said u ate 2-3 cakes a week? Maybe that was ur problem all along.....son got brain fogs from goodies for years just now found the culprete 15 years later.

Well best of luck to u finding the source and welcome :)

Belinda

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,220
    • Most Online (within 30 mins)
      7,748

    Dye42
    Newest Member
    Dye42
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.