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Looking Like This Is It


megdog1992ms

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megdog1992ms Newbie

Greetings,

I am a new guy here. It seems that all the symptoms are stacking up to be celiac disease. I was browsing a forum (don't know which one) the topic of MS was noticed. Am I to understand that it may be possible to mis-diagnose celiac disease as MS? I have the brain spots and other symptoms, the definative test is the spinal fluid test for MS, Can celiac disease "throw a false positive" on the oligaclonal banding in the spinal fluid?

Within the last 2 months a nasty bout of roaming joint pain sent me to the doc, not -RA, with a random conversation a friend said look at Ceilac's Looking back, the GI tract symptoms are there and at the time of the joint disaster I was taking a Cake decorating class and was having 2-3 cakes a week. I could not gain a pound if my life depended upon it.

Any feedback?

Respectfully,

Mark


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gfpaperdoll Rookie

You might find this article informative

Open Original Shared Link

And from another board:

"Dr. Fasano lists M.S. as an autoimmune disease affected by gluten/too much zonulin/leaky gut. Here's a good article: Open Original Shared Link "

I have read many articles on MS & celiac diet, I think it is now being looked at by a lot of people with MS. You might also try googling it to find other discussions.

my personal opinion is that MS is nothing more than a form of celiac disease that could benefit from a gluten free diet & I think also the elimination of a few other foods like dairy & legumes...

But then again I believe that the human body is perfect but that we just feed it a combination of the wrong foods which causes disease (unless there is a physical defect in addition to...) If you read some of the books out there like Dangerous Grains, Dr Peter Green's "Celiac Disease, A Hidden epidemic" you will get introduced to the evolution of the human species and the changes they have made in their diet. & see that when wheat was introduced to the diet we also began to die younger & have more disease...

TrillumHunter Enthusiast

You certainly could have celiac not MS. For years I faced an MS diagnosis when it was really celiac. I too, had the brain spots. I'm gluten-free for about three months now and feeling fantastic. I was very happy to have celiac and not MS. If you've been eating gluten you can have a simple blood test to find out.

Best wishes to you!

confusedks Enthusiast

If you want to find out if you have celiac...make SURE you don't take gluten out of your diet!

Kassandra

Belinda Meeker Apprentice
Greetings,

I am a new guy here. It seems that all the symptoms are stacking up to be celiac disease. I was browsing a forum (don't know which one) the topic of MS was noticed. Am I to understand that it may be possible to mis-diagnose celiac disease as MS? I have the brain spots and other symptoms, the definative test is the spinal fluid test for MS, Can celiac disease "throw a false positive" on the oligaclonal banding in the spinal fluid?

Within the last 2 months a nasty bout of roaming joint pain sent me to the doc, not -RA, with a random conversation a friend said look at Ceilac's Looking back, the GI tract symptoms are there and at the time of the joint disaster I was taking a Cake decorating class and was having 2-3 cakes a week. I could not gain a pound if my life depended upon it.

Any feedback?

Respectfully,

Mark

Hey Mark,

Sorry to hear u too maybe have this awful disease, but I'm sure it better then the MS.

My brother-in-law was DXD about 10+ years ago with MS but now his brother (my hubby) is having symptoms of celiac disease (we have a Celiac Spru son age 17) and I too have celiac disease so myabe bro-in-law too?

Not sure but we r going for gene test in September, maybe a suggestion for u too !

U said u ate 2-3 cakes a week? Maybe that was ur problem all along.....son got brain fogs from goodies for years just now found the culprete 15 years later.

Well best of luck to u finding the source and welcome :)

Belinda

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    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
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