Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking Like This Is It


megdog1992ms

Recommended Posts

megdog1992ms Newbie

Greetings,

I am a new guy here. It seems that all the symptoms are stacking up to be celiac disease. I was browsing a forum (don't know which one) the topic of MS was noticed. Am I to understand that it may be possible to mis-diagnose celiac disease as MS? I have the brain spots and other symptoms, the definative test is the spinal fluid test for MS, Can celiac disease "throw a false positive" on the oligaclonal banding in the spinal fluid?

Within the last 2 months a nasty bout of roaming joint pain sent me to the doc, not -RA, with a random conversation a friend said look at Ceilac's Looking back, the GI tract symptoms are there and at the time of the joint disaster I was taking a Cake decorating class and was having 2-3 cakes a week. I could not gain a pound if my life depended upon it.

Any feedback?

Respectfully,

Mark


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfpaperdoll Rookie

You might find this article informative

Open Original Shared Link

And from another board:

"Dr. Fasano lists M.S. as an autoimmune disease affected by gluten/too much zonulin/leaky gut. Here's a good article: Open Original Shared Link "

I have read many articles on MS & celiac diet, I think it is now being looked at by a lot of people with MS. You might also try googling it to find other discussions.

my personal opinion is that MS is nothing more than a form of celiac disease that could benefit from a gluten free diet & I think also the elimination of a few other foods like dairy & legumes...

But then again I believe that the human body is perfect but that we just feed it a combination of the wrong foods which causes disease (unless there is a physical defect in addition to...) If you read some of the books out there like Dangerous Grains, Dr Peter Green's "Celiac Disease, A Hidden epidemic" you will get introduced to the evolution of the human species and the changes they have made in their diet. & see that when wheat was introduced to the diet we also began to die younger & have more disease...

TrillumHunter Enthusiast

You certainly could have celiac not MS. For years I faced an MS diagnosis when it was really celiac. I too, had the brain spots. I'm gluten-free for about three months now and feeling fantastic. I was very happy to have celiac and not MS. If you've been eating gluten you can have a simple blood test to find out.

Best wishes to you!

confusedks Enthusiast

If you want to find out if you have celiac...make SURE you don't take gluten out of your diet!

Kassandra

Belinda Meeker Apprentice
Greetings,

I am a new guy here. It seems that all the symptoms are stacking up to be celiac disease. I was browsing a forum (don't know which one) the topic of MS was noticed. Am I to understand that it may be possible to mis-diagnose celiac disease as MS? I have the brain spots and other symptoms, the definative test is the spinal fluid test for MS, Can celiac disease "throw a false positive" on the oligaclonal banding in the spinal fluid?

Within the last 2 months a nasty bout of roaming joint pain sent me to the doc, not -RA, with a random conversation a friend said look at Ceilac's Looking back, the GI tract symptoms are there and at the time of the joint disaster I was taking a Cake decorating class and was having 2-3 cakes a week. I could not gain a pound if my life depended upon it.

Any feedback?

Respectfully,

Mark

Hey Mark,

Sorry to hear u too maybe have this awful disease, but I'm sure it better then the MS.

My brother-in-law was DXD about 10+ years ago with MS but now his brother (my hubby) is having symptoms of celiac disease (we have a Celiac Spru son age 17) and I too have celiac disease so myabe bro-in-law too?

Not sure but we r going for gene test in September, maybe a suggestion for u too !

U said u ate 2-3 cakes a week? Maybe that was ur problem all along.....son got brain fogs from goodies for years just now found the culprete 15 years later.

Well best of luck to u finding the source and welcome :)

Belinda

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    2. - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    4. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,344
    • Most Online (within 30 mins)
      7,748

    GFBB95
    Newest Member
    GFBB95
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
    • Wheatwacked
      My TMJ ended when I lost a middle lower molar.  I had an amalgam filling from youth (1960s) that failed and the tooth broke.  I had what was left pulled and did not bother to replace it.  My bite shifted and the TMJ went away.  I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.