Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Member


Darleen

Recommended Posts

Darleen Newbie

Hello. I am a new member.My 26 year old son was just diagnosed with celiac disease.

I am trying to find a uncomplicated good book for him to read to tell him all he needs to know about it.He is following a gluten free diet.But he seems to think that is all he has to do. I have been researching and I know that is not the case. Every day I see new things he is not suppose to eat or use.I am so worried about him.

Since he is 26, he tells me he is not a baby etc etc. But I think he needs to take it more seriously. So I figured if I can find a book that is straight to the point of what to do and not to do, maybe he will read it.

Thank you for any suggestions.

Darleen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cookie22 Newbie
Hello. I am a new member.My 26 year old son was just diagnosed with celiac disease.

I am trying to find a uncomplicated good book for him to read to tell him all he needs to know about it.He is following a gluten free diet.But he seems to think that is all he has to do. I have been researching and I know that is not the case. Every day I see new things he is not suppose to eat or use.I am so worried about him.

Since he is 26, he tells me he is not a baby etc etc. But I think he needs to take it more seriously. So I figured if I can find a book that is straight to the point of what to do and not to do, maybe he will read it.

Thank you for any suggestions.

Darleen

no, really, he has the big thing down. the ONLY treament for celiac is a gluten free diet. i reccomend Dr peter green's hidden epedemic book. it has a blue and green and white cover, it's really the best.

Guest j_mommy

Dr. Greens book is really good but it has alot of technical info.

I read Living Gluten Free for Dummie by Dana Korn first and then read Dr. Green's book. The for dummies book has great info and not so overwhelming to read. I got basic info from that and then got more in depth from Dr. greens. You can buy both together on Amazon for around 30 fo rthe pair!

Karen B. Explorer

I found The Gluten Free Bible by Jax Peters Lowell very informative. However, it's full of product lists that are out of date. Any gluten-free product list will be out of date the day after it's produced. It's the nature of the beast. But the book was good about covering ALL aspects of a gluten-free life (like dating) and it's conversational tone was very entertaining.

Darleen Newbie

Thank you all so much. I am going to go to the bookstore tonight and check them out. I will pick some out and mail them to him.I really appreciate your help.

Darleen

happygirl Collaborator

Darleen,

Just wanted to welcome you to the board. You are a good mom for being involved!

I agree-Dr. Green's book is a wonderful resource. It covers everything!

Encourage him to come on here and read. Let us know if there is anything we can do to help.

Best of luck to you and your son!

(By the way, I am 26, and having a supportive mom who cooks/bakes wonderful gluten free meals for me when I'm at home is the best thing in the world!)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.