Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Canker Sore Treatments


grey

Recommended Posts

grey Explorer

Hi all,

Hoping someone might have some suggestions about coping with canker sores? I've gotten them my whole life, either with no cause or in response to mouth trauma (biting the inside of my lip, by accident, I'll usually get a canker sore on that site). Since going gluten-free, I've had more sores, and I now have a real doozy of a set on the upper left.

I'm also curious if anyone's been dx'd w/ aphthous stomatitis. I've read a little bit, but it's unclear to me whether all of these mouth ulcer are AS or only some, and how you tell.

So, if someone has an over- the-counter gluten-free remedy, or a way to get rid/less of them, or just has experience with them, I'd love to hear about it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CDFAMILY Rookie

Hi Grey,

I had a major problem with biting myself and developing painful ulcers that would actually eat away and become worse before getting better. They would last 2-4 weeks and usually I bit myself again during healing. As soon as I bit myself I would get so depressed because I knew how painful the next few weeks would be and nothing seemed to help.

It took 2 years of gluten free diet and lots of B12 and vitamin D3 and finally if I do bite myself, (which is rare these days) amazingly it heals within a couple of days...it is like a miracle....and to think I have been complaining to doctors and dentists for 20 years about this problem!!!

I did find I CAN NOT eat any food processed in a gluten environment so if you have been gluten free for awhile and are still having problems try eliminating processed foods and eat totally natural....your body will thank you for this and so will your mouth!

Ozz

  • 2 weeks later...
Moustique77 Newbie

My wife has celiac disease and pernicious anemia, so she has to get the B12 injections. She says that helped a lot with the problem. She believe hers had something to do with yeast overgrowth (also had some female troubles too that went away with the B12 shots).

I also get them, but I think mine come from stomach acid overproduction. I try to change my diet to help. I also got myself a product called Ora5. It helps get rid of them pretty fast.

grey Explorer

What is ora5? Is it a topical thing? I'd like to have some on hand. It took the last batch a really long time to heal and they were excruciating. Is it over the counter?

Yeast overgrowth is interesting and I need to look in to that. I'm already on B12 injections and a low-acid diet - which improves other things, but not this, sadly.

thanks

My wife has celiac disease and pernicious anemia, so she has to get the B12 injections. She says that helped a lot with the problem. She believe hers had something to do with yeast overgrowth (also had some female troubles too that went away with the B12 shots).

I also get them, but I think mine come from stomach acid overproduction. I try to change my diet to help. I also got myself a product called Ora5. It helps get rid of them pretty fast.

Moustique77 Newbie
What is ora5? Is it a topical thing? I'd like to have some on hand. It took the last batch a really long time to heal and they were excruciating. Is it over the counter?

Yeast overgrowth is interesting and I need to look in to that. I'm already on B12 injections and a low-acid diet - which improves other things, but not this, sadly.

thanks

Yes, Ora5 is a a topical solution and they have a website at www.ora5.com Really helped me a lot. I also remembered that I switched to a natural toothpaste that doesnt contain sodium lauryl sulfate as I have read that it can influence mouth sores. Between those two things I noticed a dramatic improvement.

If you go to dentist.net they have a section for canker sores and also a selection of sls free toothpaste. Dr. Katz also sells oral products that dont contain sls or other irritating ingredients and topical treatments. He's got a site at www.drkatz.com. Hope this helps!!!

cyberprof Enthusiast

Hi Grey,

I, too, had canker sores for years. Mine were also in response to biting my mouth or sometimes with no known cause. Thought it was normal, or at least a normal response to stress. 1-2 per month. I've only had one since I went gluten free and it was right after being accidentally glutened. Funny that you have more.

However, before diagnosis, my baby brother (an MD and MPH) said to eat garlic, preferably raw. So every time I get a sore, I make home-made hummus or Greek salad or ceasar salad. Cooked garlic is less potent but helps too. It clears them up within a day and seems to help with the pain right away. Anyway, it can't hurt, unless you're allergic to garlic.

I'm also very careful with toothpaste and haven't changed mine in 10 years. Whenever I try a new one, I get mouth sores. So, you could try a new one.

And I'd try the B-12 too. I just started taking the sub-lingual version.

~Laura

Hi all,

Hoping someone might have some suggestions about coping with canker sores? I've gotten them my whole life, either with no cause or in response to mouth trauma (biting the inside of my lip, by accident, I'll usually get a canker sore on that site). Since going gluten-free, I've had more sores, and I now have a real doozy of a set on the upper left.

I'm also curious if anyone's been dx'd w/ aphthous stomatitis. I've read a little bit, but it's unclear to me whether all of these mouth ulcer are AS or only some, and how you tell.

So, if someone has an over- the-counter gluten-free remedy, or a way to get rid/less of them, or just has experience with them, I'd love to hear about it.

mandasmom Rookie
Hi Grey,

I, too, had canker sores for years. Mine were also in response to biting my mouth or sometimes with no known cause. Thought it was normal, or at least a normal response to stress. 1-2 per month. I've only had one since I went gluten free and it was right after being accidentally glutened. Funny that you have more.

However, before diagnosis, my baby brother (an MD and MPH) said to eat garlic, preferably raw. So every time I get a sore, I make home-made hummus or Greek salad or ceasar salad. Cooked garlic is less potent but helps too. It clears them up within a day and seems to help with the pain right away. Anyway, it can't hurt, unless you're allergic to garlic.

I'm also very careful with toothpaste and haven't changed mine in 10 years. Whenever I try a new one, I get mouth sores. So, you could try a new one.

And I'd try the B-12 too. I just started taking the sub-lingual version.

~Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mandasmom Rookie

Chronic canker sores was what lead to my diagnosis---Ive neve had a GI problem. I have tried nearly every remedy under the sun and have found tht over the counter pain releivers such as advil are the best choice untill the sores run their course. Seems to take 5-7 days no matter what you do!!!!

grey Explorer

Thanks for the comments! I too always thought they were normal -but I'm learning a lot of quirky things I thought were normal were celiac disease.

I ran out of my old toothpaste (Crest) not long after being dx'd, and used a some small travel ones, then switched again to a full-size Crest (which I thought gave me a rxn), and then to Tom's of Maine. Maybe that's why I had more after dx - all the changing.

I know all of these have sodium laurel sulfate - I might try switching to one without.

I'm fascinated by the garlic; I haven't eaten much since dx, but maybe I'll try it with the next outbreak!

thanks

Darn210 Enthusiast

I mentioned to my daughter's dentist that she was diagnosed with Celiac and asked about the ramifications of it dental-wise. I was expecting a conversation about enamel defects, but she said she is most likely to suffer from canker sores (at least more than the average Joe). She recommended just coating them as needed with a little milk of magnesia (sp?). We haven't had to try it so I don't know if it works, but it would be easy to try since we have it in the house.

In hind sight, the amazing thing is that she new what Celiac was and didn't bat an eye.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.