Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying To Diagnose...

AJR

Recommended Posts

AJR Newbie
AJR
Posted

Hi,

I am trying to figure out if my symptoms are indeed Celiac related. I am currently waiting on test results, but have one odd symptom I have not been able to correlate...

3 years ago I started breaking out in hives when exercising (heavily) and gradually got worse. As it got worse I was able to correlate certain foods and other things that were triggers (tomato, cats)... Other things bother me as well and I thought I was becoming allergic to everything, however prick tests were always negative. About 1-1/2 ago, I started having stomach problems (C, D, gas and abdominan pain, palpitations) and had a couple bouts of tachy. Doctors were able to diagnose me with nothing. I have had MRI, ultrasounds, stress testing, echocardio. I went to my gastro and he said I was stressed and I should meditate...

More recently, the allergies have subsided a bit, but I am having bad fatigue. As someone else said sometimes feels like concrete is running through my veins. It started with some slight fatigure in my legs and has now progressed to a more overall body fatigue (not sleepy tired though). I have had so much blood work done and nothing ever shows up. After going back to my allergist I mentioned some of my other symptoms to him and he suggested that I may have celiac. Not sure why my gastro did not mention this, but anyway I am currently being tested and finding a new gastro.

To get to my point though, I become very tired (to the point when it is hard to function) on hot and humid days. On days when it is raining or cool, I feel much better. This is even though I live in an air conditioned house, car and work. It is not that I am outside on these days. This is the part I cannot explain. Anyone have any similar experiences with or without celiac?

Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bakinghomesteader Contributor
bakinghomesteader
Posted

Unfortunately, this sounds like what I have. Myasthenia Gravis. With Myasthenia Gravis you can't tolerate the heat well. It makes you weaker. Hot showers and hot tubs are a no no. It can cause respiratory distress. Cold showers are fine. :P Also, you fatigue more as the days wears on. You can have ocular MG or general MG. I have general. My breathing, swallowing, legs, arms, back, neck, are affected. It is no fun, none at all. I had a thymectory 2 yrs ago and thought that may have done the trick. Sad to say, I was good for 6 mos and now my health is declining again. There is not much they can do for it. They give immunosuppressives, steroids, and Mestinon. That's pretty much it. If that doesn't work, well, it's not too great. I am down to well, not much is working. I am having difficulty sitting up in the evenings, being short of breath, etc. I am to the point where I am going to have to have plasmapheresis treatments regularly now. I was just having them during a crisis. :(

Sorry, didn't mean to make that a rant about me. <_< They can do an EMG and some ANA test and also a Tensilon test to diagnose. I pray this is not it.

Bakinghomesteader

Hi,

I am trying to figure out if my symptoms are indeed Celiac related. I am currently waiting on test results, but have one odd symptom I have not been able to correlate...

3 years ago I started breaking out in hives when exercising (heavily) and gradually got worse. As it got worse I was able to correlate certain foods and other things that were triggers (tomato, cats)... Other things bother me as well and I thought I was becoming allergic to everything, however prick tests were always negative. About 1-1/2 ago, I started having stomach problems (C, D, gas and abdominan pain, palpitations) and had a couple bouts of tachy. Doctors were able to diagnose me with nothing. I have had MRI, ultrasounds, stress testing, echocardio. I went to my gastro and he said I was stressed and I should meditate...

More recently, the allergies have subsided a bit, but I am having bad fatigue. As someone else said sometimes feels like concrete is running through my veins. It started with some slight fatigure in my legs and has now progressed to a more overall body fatigue (not sleepy tired though). I have had so much blood work done and nothing ever shows up. After going back to my allergist I mentioned some of my other symptoms to him and he suggested that I may have celiac. Not sure why my gastro did not mention this, but anyway I am currently being tested and finding a new gastro.

To get to my point though, I become very tired (to the point when it is hard to function) on hot and humid days. On days when it is raining or cool, I feel much better. This is even though I live in an air conditioned house, car and work. It is not that I am outside on these days. This is the part I cannot explain. Anyone have any similar experiences with or without celiac?

Thanks.

GFhopeful Rookie
GFhopeful
Posted

i am a new celiac and have a hard time with the heat too. i figure it is part of recovery for me. i also have bouts of tachycardia but again, calling it part of recovery. and these things are getting less severe for me now that i'm gluten-free. i didn't know how much gluten was doing to my system until things started getting better. i hope you get some answers - my bloodwork for celiac was negative but the biopsy showed damage. that happens too. good luck.

AJR Newbie
AJR
Posted
  • Author
Unfortunately, this sounds like what I have. Myasthenia Gravis. With Myasthenia Gravis you can't tolerate the heat well. It makes you weaker. Hot showers and hot tubs are a no no. It can cause respiratory distress. Cold showers are fine. :P Also, you fatigue more as the days wears on. You can have ocular MG or general MG. I have general. My breathing, swallowing, legs, arms, back, neck, are affected. It is no fun, none at all. I had a thymectory 2 yrs ago and thought that may have done the trick. Sad to say, I was good for 6 mos and now my health is declining again. There is not much they can do for it. They give immunosuppressives, steroids, and Mestinon. That's pretty much it. If that doesn't work, well, it's not too great. I am down to well, not much is working. I am having difficulty sitting up in the evenings, being short of breath, etc. I am to the point where I am going to have to have plasmapheresis treatments regularly now. I was just having them during a crisis. :(

Sorry, didn't mean to make that a rant about me. <_< They can do an EMG and some ANA test and also a Tensilon test to diagnose. I pray this is not it.

Bakinghomesteader

Thanks for the reply. Did you or are you having any of the other symptoms as well (tachycardia, allergies, stomach illness (gas, bloating, C, D)?

Andrew

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,371
    • Most Online (within 30 mins)
      7,748
    Carrie114
    Newest Member
    Carrie114
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Zuma888
      Gluten challenge and Hashimoto's Thyroiditis

      By Zuma888 · Posted

      I didn't ask a doctor about this actually. I did ask several doctors a long time ago and they told me gluten has nothing to do with hashimoto's. One of them told me to do a gluten challenge to test for celiac, but at the time I was in graduate school so couldn't afford to be even more ill than I was. If you have the symptoms, I really don't advise you to do a gluten challenge. It messed me up mentally and physically for months. At the same time, I benefitted from doing the challenge in the sense that it convinced me that all my symptoms were truly from gluten - even stuff like insomnia! So now I am terrified to eat gluten, whereas before I would have a little once in a while and not notice anything dramatic. 
    • Winnie-Ther-Pooh
      Gluten challenge and Hashimoto's Thyroiditis

      By Winnie-Ther-Pooh · Posted

      I am in a similar situation where I can't feasibly do a gluten challenge but have all the symptoms and I have 2 celiac genes. I'm curious if your doctor advised you to eat as if you had a diagnosis or if they were more dismissive about it. 
    • Zuma888
      Gluten challenge and Hashimoto's Thyroiditis

      By Zuma888 · Posted

      Negative, although I had most of the symptoms of celiac disease. I now eat as if I had a diagnosis.
    • Winnie-Ther-Pooh
      Gluten challenge and Hashimoto's Thyroiditis

      By Winnie-Ther-Pooh · Posted

      What were the results of the test?
    • Scott Adams
      Natural remedies

      By Scott Adams · Posted

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
×
×
  • Create New...