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Symptom Check

bloatedntexas

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Janeti Apprentice
Janeti
Posted

I have been gluten free for 5 months, with the occasional, oops I think I was glutened...How long does it take for the muscle and joint pain to go away? Every morning I wake up, I feel like I was run over. Also, how long does it take for your intestines to stop dancing around? I don't know how else to describe it. I guess maybe they are spasming, healing, I'm not sure whats going on. But does anyone know what thats all about? Thanks, Janet

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Betty in Texas Newbie
Betty in Texas
Posted

I have had lots of these you all have talked about one time are another but my most common is

bloating really bad in the top of my stomacha

acid reflux

tightness in the chest

acessive sweating

Betty in Texas Newbie
Betty in Texas
Posted

I have had lot of these symptoms you all have talked about one time are another but my most common are

bloating really big

acid reflux

tightness in the chest

acessive sweating

Betty in Texas Newbie
Betty in Texas
Posted

I am sorry for the double post my comuter was doing something weird

JustMeInMD Rookie
JustMeInMD
Posted

I'm newly gluten-free (well, permanently anyway), but my lifelong symptoms (that went away after I did a gluten-free trial) are:

-Bloating

-Gas (especially at night)

-D and C (mostly in the a.m.)

-Horrible, gnawing hunger pain about 1 hour after eating

-nausea

-vomiting

-headache

-indigestion

-intermittent tingly fingers/toes

-spacey-ness

deesmith Apprentice
deesmith
Posted
thanks angel! I wasn't sure... usually when I eat my stomach will get pretty big. Now I'm a skinny guy (6' and 170 lbs), but how do you tell if it's bloating or just because you ate a lot? I did a google search but it's too hard to even focus right now. If I don't feel rumbling or feel anything there really, can it still be bloating?

edit: Also, are there any Celiacs here that would say there main symptoms are C and brain fog by far?

Bloating- my mom had skinny pants and fat pants, depending on what she had eaten. Also, the best ways I can think of to describe it is a really bad beer gut (that seems to go away) or you look pregnant (you know, if you were a woman). My daughter asked me, before I knew anything about Celiac, why so many people in our family have a gut!

I would definatley say my main symptoms are C and brain fog. But also coupled with fatigue and really bad bone pain. But the C is awful! Sometimes I just want to stop eating all together because it's painful and I think I probably can't fit anymore in. I take Metamusil, but I think I need to increase it, especially when glutened. I can go days and days without going. Those are definately fat pant days!

And the brain fog.... it gets pretty bad. I think I'm a relatively smart person. But the other day I called my son and told him to pick me up after work. He said "Mom, you have your car today"!!!

:o

Luisa2552 Apprentice
Luisa2552
Posted

Here are mine. Not sure if all celiac related 'cause I'm new to this

Bloating

Painful gas

Fecal leaking (gross I know, but I had to mention..)

brain fog

irritability

fatigue

itchy eyes

post nasal drip

I go for my upper gi biopsy on Friday. How long 'till you get results??

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Mickide Apprentice
Mickide
Posted
Here are mine. Not sure if all celiac related 'cause I'm new to this

Bloating

Painful gas

Fecal leaking (gross I know, but I had to mention..)

brain fog

irritability

fatigue

itchy eyes

post nasal drip

I go for my upper gi biopsy on Friday. How long 'till you get results??

My biopsy was Monday and had the results yesterday, although there was no question on Monday after the biopsy. Goodluck with your biopsy!

This is such an interesting Topic. I thought my symptoms were just me and normal for me.

Brain Fog- yup have that, so I guess I am not just an airhead :lol: good to know.

Constipation

Bloatedness

Irritability- DH is glad to know this is a symptom and not my new personality :D

Weightloss- does that count as a symptom?

PeggyV Apprentice
PeggyV
Posted

1. Usually D

2. Next Bloating (looks like I am pregnant)

3. gas

4 c

5 joint pain (usually lower back)

6. sometimes mouth sores

7. sometimes what I think is DH - this usually happens if I accidently injest several times close together - mainly during traveling

8. fatigue

9. brain fog

Rick45 Rookie
Rick45
Posted

Bright Light, Bright Light, Bright light, I didn't know it was from the poision. bad sinus headach, back to bed after a strong pot of coffee, sore bone and joints, Anger and all the rest, sores on my scalp?

7-cody Apprentice
7-cody
Posted
Bloating- my mom had skinny pants and fat pants, depending on what she had eaten. Also, the best ways I can think of to describe it is a really bad beer gut (that seems to go away) or you look pregnant (you know, if you were a woman). My daughter asked me, before I knew anything about Celiac, why so many people in our family have a gut!

I would definatley say my main symptoms are C and brain fog. But also coupled with fatigue and really bad bone pain. But the C is awful! Sometimes I just want to stop eating all together because it's painful and I think I probably can't fit anymore in. I take Metamusil, but I think I need to increase it, especially when glutened. I can go days and days without going. Those are definately fat pant days!

And the brain fog.... it gets pretty bad. I think I'm a relatively smart person. But the other day I called my son and told him to pick me up after work. He said "Mom, you have your car today"!!!

:o

That's nothing! I forget to start up my car. Forget to grab something in the morning multiple days in a row. Often forget what I'm doing. Just pretty much feel like I can't use my brain at all.

Janeti Apprentice
Janeti
Posted

Did anyone get symptoms that came and went, and never happened again?? At one point, I had a burning rash on my face, the Dr was baffled, and also for a couple of days in a row, I had a metallic taste in my mouth, and also, yuk, mouth sores too. Anyone know what that is? :unsure:

tmk Explorer
tmk
Posted

haven't been diagnosed yet (GI appt. next week), but these are my symptoms: chronic diarrhea for the last 18 years, nausea, gurgling stomach, bloating, occassional abdominal pain, urgency, gas, lightheaded & sweaty before BM, anemia, low WBC, chronic fatigue, joint pain, mouth sores, tingling in hands & feet, back pain, night sweats, cramping in legs, body jerks, increased appetite, moody. :blink:

zkat Apprentice
zkat
Posted

I have a pretty set course

1. Extreme fatigue-I just can't stay awake, even with starbucks or red bull

2. Swelling and water retention-about 10 lbs worth

3. Sinus type headache for 3 days

4. Constipation the first day

5. Day 2-5 Horrible toxic gas

6. Diarrhea and loose stools for about a week

7. Brain fog stays pretty constant for at least 3-4 days

8. Terrible cramps after I eat in my upper digestive track for about 2 week

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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