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Severity Of Glutenings


GFhopeful

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GFhopeful Rookie

Around a month and a half into gluten-free diet and experienced some glutenings in the early weeks. Just wondering, in others experiences, do the glutenings lighten up over time, remain the same, or get worse? I am hesitant to eat out as it is terrible how sick I get and it lasts for 4-5 days. Hoping once some healing occurs, that maybe the accidental glutening is less ridiculous - what have you found?


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Guest j_mommy

I am going on 2.5 months gluten-free and I would say the CC reaction is about the same as before going gluten-free.

GeoffCJ Enthusiast

I'm at about 6-7 months, and my reactions have gotten much more immediate and severe. Even a tiny amount kind of knocks me on my ass.

Geoff

sparkles Contributor

It is hard to say. Pre-diagnosis, I was sick ALL the time. Post-diagnosis, I feel great except when I accidentally am glutened. My body feels sicker, I think, because now I am feeling so good that those times when I am glutened, it just hits me harder. Before I had 3 ways to feel.... sick, sicker, and sickest! Now when I am glutened, I just go to sickest!

GFhopeful Rookie

interesting way to put it - it is a matter of perspective. but does it last as long for you with similar symptoms as before would you say? i just can't bear the thought of a week down and out again.

mftnchn Explorer

I can't tell yet, I am too unstable yet. On this forum I have seen repeatedly people who say that over time they have been more and more sensitive. I saw one person say that eventually they became less sensitive again.

Gonbad Newbie

I was not very symptomatic before I was diagnosed. I have been gluten-free since 02/2007 and have noticed that now if I consume something unknowingly containing Gluten my reaction are more severe compared to my condition before going gluten-free. It is simply that my body became somewhat tollerant of the constant gluten in my diet. Now that its gone is reacts more to its occassional presence. Even then it is relative as my symptoms from a gluten ingestion are minor compared to others here on this forum.


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      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
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    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
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