Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Too Brain Fogged To Figure It Out!

brendygirl

Recommended Posts

brendygirl Community Regular
brendygirl
Posted

Yesterday I got glutened badly. After I'd already been suffering from ear pain (fluid in ears) and extreme fatigue and joint pain all weekend from eating something bad Friday. I made myself eat even though I had no appetite and felt nausea.

Yesterday I ate: TraderJoe gluten-free pancakes and jam that I've been eating every day since I bought them. I ate a PayDay candybar and some plums for lunch. I worked hard cooking Hillshire Farms kielbasa with potatoes, red peppers, carrots, and onion and water. It was delicious. I also had some milk with Hershey's Syrup in it. The Hershey's and Hillshire kielbasa are items I don't eat usually. I had LOOKED up the Hillshire farms and specifically bought that one because I had read it was gluten-free.

I am feeling like the biggest idiot on the face of the earth. I keep getting sick. It's exhausting. I'm getting scared to eat again. I have no appetite.

I looked on the Hershey's website. I'd say it could be milk, but the gluten symptoms are there.

Somebody give me a clue, please.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mango04 Enthusiast
Mango04
Posted

I wonder if it's the soy flour in the Trader Joe's pancakes. It seems as though soy flour gives people "glutening" type symptoms. This appears to be a problem regardless of whether or not the person is intolerant to soy. Soy tends to accumulate, so even if the product didn't bother you the first time, it can eventually.

Granted, this is all just based on my own observations, not any sort of sound scientific theory. :)

Hope you feel better soon.

brendygirl Community Regular
brendygirl
Posted
  • Author

Thanks, Mango. I just blogged and feel much better already. Although I ate the last of the pancakes this morning...we'll see.

I know this sounds crazy, but I really feel weird about the thought of having to throw out my veggie/kielbasa, since I worked hard on it and it's the only thing that appeals to me besides chocolate shakes, popsicles, mangos, almonds, and Cheetos.

jmd3 Contributor
jmd3
Posted

Just wondering if there was MSG in the Hillshire Farms kielbasa? That effects me as though I ate gluten.

I know Cheetos has it in also.

I hope you feel better soon.

georgie Enthusiast
georgie
Posted

I feel badly Glutened and have no idea what it can be. Only thing I have been having more so recently is soy milk... I make a hot choc soy milk each night ....At first it was great ...now I am wondering ....

ravenwoodglass Mentor
ravenwoodglass
Posted
Thanks, Mango. I just blogged and feel much better already. Although I ate the last of the pancakes this morning...we'll see.

I know this sounds crazy, but I really feel weird about the thought of having to throw out my veggie/kielbasa, since I worked hard on it and it's the only thing that appeals to me besides chocolate shakes, popsicles, mangos, almonds, and Cheetos.

My bet would actually be the Cheetos. Did you eat them within 3 days of this episode? Gluten can be a delayed reaction, for me it is a 3 day lag for tummy troubles. Cheetos have gotten me more than once, not everytime but often enough for me not to eat them again. CC issues are high with some companies and in my personal experience Frito Lay products are too risky to chance anymore. I have been got just too many times.

kbtoyssni Contributor
kbtoyssni
Posted
My bet would actually be the Cheetos. Did you eat them within 3 days of this episode? Gluten can be a delayed reaction, for me it is a 3 day lag for tummy troubles. Cheetos have gotten me more than once, not everytime but often enough for me not to eat them again. CC issues are high with some companies and in my personal experience Frito Lay products are too risky to chance anymore. I have been got just too many times.

Do they make Cheetos on a shared line or just in the same facility as wheat products? I've never had problems with any Frito-Lay product and I do like the occasional Cheeto so I'm just trying to weigh my risks here.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Do they make Cheetos on a shared line or just in the same facility as wheat products? I've never had problems with any Frito-Lay product and I do like the occasional Cheeto so I'm just trying to weigh my risks here.

I don't know and they don't get us everytime but for me it has happened too often. I don"t have any problems with their Stacks and usually their plain potato chips are fine but things like Doritios and Cheetos for me are much more risky. Out of the family we have two that are supersensitive and two that tolerate much more CC. My DS and I are the ones who are most sensitive. What I do when I have any doubts about something is challenge with it when I know for sure that I eating low or no risk stuff otherwise.

kbtoyssni Contributor
kbtoyssni
Posted

I think Stax are made on a dedicated line so those shouldn't have any contamination issues. The other products I know don't have their own line, but I can't remember if it's a shared line or just a line in close proximity.

Teacher1958 Apprentice
Teacher1958
Posted

I'm fairly new at this, too, and have been glutened twice since April. One thing you have to be really careful of is items that say 'gluten free' or 'no gluten products added.' Even with these two things written on the packaging, somewhere else on the packaging it can sometimes say, 'processed in a facility with wheat, rye, oats, or whatever.' There are so many landmines with this diet. Don't beat yourself up. I ate Thai food today and almost asked them to add tofu. Then I remembered to ask if it was just plain tofu or pressed or baked tofu. The first of these is fine. The last two have malt in them, and malt is from barley. I also had to ask about the soy sauce, because soy sauce has vinegar, which has malt in it. I've been used to reading labels since I've been a vegetarian for thirty years and have had to look out for meat byproducts, but this diet is very, very tricky. I hope you figure out what it was that glutened you. Let us know if you do.

Ken70 Apprentice
Ken70
Posted

Soy lechtin is an emulsifier added to chocolate among other things. I can't eat it. It was definitely in the Pay Day you ate.

Celiaction Rookie
Celiaction
Posted

Brendy,

Just saw you got poisoned. My condolences. I kinda go into shock when that happens. I too struggle mightily to stay clean, but the options are few foodwise.

Sometimes the onset of symptoms for me is 24 hours or sometimes 48. You might go further back mealwise, because by my guess you did fine in your menu selections.

Just a few days ago I thot I'd done myself in, but some smoked oysters triggered a cleansing response (mega D and blood) then it was gone and I am unbloated and feeling pretty good.

David

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. dixonpete
      0

      Hookworm load planner

    2. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    5. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,089
    • Most Online (within 30 mins)
      7,748
    Clare Durham
    Newest Member
    Clare Durham
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.