Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergies And Reactions, Help!


NaomiL

Recommended Posts

NaomiL Newbie

My 3 yr old is like Jekyl and Hyde. If i feed her something she can't handle she pees in her pants and is mean to her younger sister and irritable and sad and cries about nothing or if you do something small it will set her off screaming and it's just so terrible.

So after over a year of being gluten free and finding out what else is bothering her I finally feel like we might have no more problems. But I'm tired of plain food and wish I could just eat and feed my whole family whatever without thinking about it. Plus all my adult friends think I'm crazy and it's just that she is 3, no one seems to want to believe that food can affect behavior.

So she is not eating

gluten

peanuts

dairy

egg

soy

corn

orange or any citrus

no meat

sugar, cane juice (seems to be related to corn somehow)

and buckwheat

Has anyone done this for a long time and found these other allergies not gluten go away as the gut heals.

She eats rice cakes, beans, and more rice

quinoa with sundried tomatoes

hemp seeds

really likes the hemp milk

maple syrup

vegetable soup

rice pasta

fruit

fruit smoothies with nuts

these crackers we make out of flax seeds, sunflower seeds, onion, and salt dehydrated.

I try to sneak in B12 while she is napping cause mine was low.

Anyone have any other idea of what else I could feed her or kind words instead of your crazy?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

YOUR NOT CRAZY!!!!!!!!!!! :D

It is possible that food does that to her!!!! I used to get grumy and over-emotional when I ate Gluten(ofcourse didn't correlate it then and it happens when I get CC'd)

I can't help in the food dept but I do think that food causes those kinds of reactions!!!!

Darn210 Enthusiast

My friend's son was alergic to wheat, dairy, egg, peanut, and something else - might have been soy. They did extensive testing when he was three (originally thought he had Celiac). He's now 7 and the only alergy left is peanut.

She gave me a cookbook when my daughter was diagnosed called The Food Allergy News Cookbook (from the Food Allergy Network) that has a lot of recipes that would get you most of the way there - then you may be able to make some minor substitutions for sugar and such . .. I checked their website, they've got a much newer book than the one she gave me.

Open Original Shared Link

It might be worth looking around the website to get a little insight.

Also, people have written about sunflower seed butter as a substitute for peanut butter - I haven't seen it but I've never looked for it either so I don't know how hard it is to find.

Stargirl* Newbie

You are most definately NOT CRAZY! :P

My 11yo daughter reacts to less food than yours but has definate reactions which I am just now getting a grip on. She has been gluten-free for nearly a year and now after eliminating gluten I can finally see what it is she is also having trouble with.

We have just been to a cafe that serves wonderful gluten-free food and she had a chocolate almond torte for dessert. She is well and truly reacting by pitching fits, telling me and her sister she hates us and generally being very emotional. I am now 100% certain she reacts to chocolate and by tomorrow she more than likely will have brain fog, be very lethargic and also have really bad acne. She also reacts this way to sugar and beef and rich tomato sauces. :wacko:

For what it's worth, I think it sounds like your daughter has a tremendous diet and it is great you can sneak in the B12.

gfpaperdoll Rookie

That list is not too bad & yes she will probably be able to eat some of those foods later on.

when I was eating gluten and 24 years old, I had some allergy tests run on myself & my infant very ill son.

Here is what I was allergic to: (I have double DQ1 genes)

all citrus, tomatoes, peaches, potatoes, green peas, split peas, pork, beef, mushrooms, corn, cod fish, oats, barley, tea, coffee, sodas, black pepper, peanuts, dairy, soy, and a few other things that I cannot remember. Talk about reading labels!!!

I never ate oats or barley after that & was wheat free mostly, for 10 years & then I went gluten free 3 years ago. I am 60 now !!!

Now I can eat peanut butter but not canned peanuts (I know this is weird), I also can now eat oranges, lemons & pineapple, lots of tomatoes, pork & corn plus I do not have any new food allergies well except that I cannot eat any of the "replacement" gluten-free grains. I am very happy to be eating these things & really have no problem with my gluten-free/DF diet. Sometimes I will have a potato but mostly I am happy with sweet potatoes.

I lived on almond butter for awhile. I used to get mine at whole foods.

For rice I used to brown an onion and some garlic in olive oil, add some chopped celery & saute & then pour in the cooked rice, add any chopped meat or a can of tuna, I would eat this with a green vegetable, & a baked sweet potato. I always ate this whenever I got sick (before I knew about gluten or wheat in soy sauce!)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748

    Jeanette K.
    Newest Member
    Jeanette K.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.