Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergies And Reactions, Help!


NaomiL

Recommended Posts

NaomiL Newbie

My 3 yr old is like Jekyl and Hyde. If i feed her something she can't handle she pees in her pants and is mean to her younger sister and irritable and sad and cries about nothing or if you do something small it will set her off screaming and it's just so terrible.

So after over a year of being gluten free and finding out what else is bothering her I finally feel like we might have no more problems. But I'm tired of plain food and wish I could just eat and feed my whole family whatever without thinking about it. Plus all my adult friends think I'm crazy and it's just that she is 3, no one seems to want to believe that food can affect behavior.

So she is not eating

gluten

peanuts

dairy

egg

soy

corn

orange or any citrus

no meat

sugar, cane juice (seems to be related to corn somehow)

and buckwheat

Has anyone done this for a long time and found these other allergies not gluten go away as the gut heals.

She eats rice cakes, beans, and more rice

quinoa with sundried tomatoes

hemp seeds

really likes the hemp milk

maple syrup

vegetable soup

rice pasta

fruit

fruit smoothies with nuts

these crackers we make out of flax seeds, sunflower seeds, onion, and salt dehydrated.

I try to sneak in B12 while she is napping cause mine was low.

Anyone have any other idea of what else I could feed her or kind words instead of your crazy?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

YOUR NOT CRAZY!!!!!!!!!!! :D

It is possible that food does that to her!!!! I used to get grumy and over-emotional when I ate Gluten(ofcourse didn't correlate it then and it happens when I get CC'd)

I can't help in the food dept but I do think that food causes those kinds of reactions!!!!

Darn210 Enthusiast

My friend's son was alergic to wheat, dairy, egg, peanut, and something else - might have been soy. They did extensive testing when he was three (originally thought he had Celiac). He's now 7 and the only alergy left is peanut.

She gave me a cookbook when my daughter was diagnosed called The Food Allergy News Cookbook (from the Food Allergy Network) that has a lot of recipes that would get you most of the way there - then you may be able to make some minor substitutions for sugar and such . .. I checked their website, they've got a much newer book than the one she gave me.

Open Original Shared Link

It might be worth looking around the website to get a little insight.

Also, people have written about sunflower seed butter as a substitute for peanut butter - I haven't seen it but I've never looked for it either so I don't know how hard it is to find.

Stargirl* Newbie

You are most definately NOT CRAZY! :P

My 11yo daughter reacts to less food than yours but has definate reactions which I am just now getting a grip on. She has been gluten-free for nearly a year and now after eliminating gluten I can finally see what it is she is also having trouble with.

We have just been to a cafe that serves wonderful gluten-free food and she had a chocolate almond torte for dessert. She is well and truly reacting by pitching fits, telling me and her sister she hates us and generally being very emotional. I am now 100% certain she reacts to chocolate and by tomorrow she more than likely will have brain fog, be very lethargic and also have really bad acne. She also reacts this way to sugar and beef and rich tomato sauces. :wacko:

For what it's worth, I think it sounds like your daughter has a tremendous diet and it is great you can sneak in the B12.

gfpaperdoll Rookie

That list is not too bad & yes she will probably be able to eat some of those foods later on.

when I was eating gluten and 24 years old, I had some allergy tests run on myself & my infant very ill son.

Here is what I was allergic to: (I have double DQ1 genes)

all citrus, tomatoes, peaches, potatoes, green peas, split peas, pork, beef, mushrooms, corn, cod fish, oats, barley, tea, coffee, sodas, black pepper, peanuts, dairy, soy, and a few other things that I cannot remember. Talk about reading labels!!!

I never ate oats or barley after that & was wheat free mostly, for 10 years & then I went gluten free 3 years ago. I am 60 now !!!

Now I can eat peanut butter but not canned peanuts (I know this is weird), I also can now eat oranges, lemons & pineapple, lots of tomatoes, pork & corn plus I do not have any new food allergies well except that I cannot eat any of the "replacement" gluten-free grains. I am very happy to be eating these things & really have no problem with my gluten-free/DF diet. Sometimes I will have a potato but mostly I am happy with sweet potatoes.

I lived on almond butter for awhile. I used to get mine at whole foods.

For rice I used to brown an onion and some garlic in olive oil, add some chopped celery & saute & then pour in the cooked rice, add any chopped meat or a can of tuna, I would eat this with a green vegetable, & a baked sweet potato. I always ate this whenever I got sick (before I knew about gluten or wheat in soy sauce!)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,957
    • Most Online (within 30 mins)
      7,748

    konny heigle
    Newest Member
    konny heigle
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.