Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Embarassing Poo Question

tuxedocat

Recommended Posts

tuxedocat Apprentice
tuxedocat
Posted

Question, is this typical of celiacs?

* diarrhea mostly in the morning

* diarrhea that is mostly gas, some clear liquid, some gelatinous liquid, with little bits of sludgy/fluffy material, but very little actual poo

* hard to hold in, and makes you stay in the house for fear you'll have an accident out in public

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

I don't know about D being mainly in the morning, but the other two are typical celiac symptoms.

little d Enthusiast
little d
Posted
Question, is this typical of celiacs?

* diarrhea mostly in the morning

* diarrhea that is mostly gas, some clear liquid, some gelatinous liquid, with little bits of sludgy/fluffy material, but very little actual poo

* hard to hold in, and makes you stay in the house for fear you'll have an accident out in public

just like with everybody else is different, but usually with me yes this is what I usually went through. Accidents yes had those too, very embarracing. Hard to hold in sometime could not tell if I was just going to pass gas or acctual poo about to rear its ugly head.

donna

mamabear Explorer
mamabear
Posted

One way docs look at the "seriousness" of diarrhea is diarrhea that wakes you up at night. I also relate this to wake up and go.....without any food or coffee,etc.. stimulating the gastrocolic reflex. Your other descriptions are on target.....however this can also be a colitis . Have you been tested yet?

Teacher1958 Apprentice
Teacher1958
Posted

I had many symptoms of gluten intolerance/celiac disease, but the one that really indicated that gluten was the problem was when I started having poos that stuck to the sides of the toilet and wouldn't go down. Floating above them was what looked like an oil slick. In addition, the actual poo smelled like something you'd smell in a campground outhouse/porta-potty. :o The first signs were typical of malabsorption, which indicates that the body is not able to absorb nutrients.

Teacher1958 Apprentice
Teacher1958
Posted

PS- Do not be embarrassed by your poo questions. Most of us have had a variety of strange poo experiences. I forgot to mention that I have also had poo with lettuce floating in it. That was a shocker. Most people are accustomed to corn showing up, but probably not lettuce. :D

melmak5 Contributor
melmak5
Posted

I second the "teach." Think about how much we talk about eating food, poop is normal, everyone does it. (And its a really good indicator for what is going on in your body.)

I just learned that if your poop smells sweet, (mine has been smelling like blueberries, even though I haven't eaten them), its a sign that you might have a bacterial overgrowth in your intestines.

I have also been having your EXACT same symptoms. I have been gluten free for 5 weeks and the past few days I have had bm like you described 4-5x within the first hour or two of waking up.

Good luck! I hope things start to improve.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lizking531 Rookie
Lizking531
Posted
I second the "teach." Think about how much we talk about eating food, poop is normal, everyone does it. (And its a really good indicator for what is going on in your body.)

I just learned that if your poop smells sweet, (mine has been smelling like blueberries, even though I haven't eaten them), its a sign that you might have a bacterial overgrowth in your intestines.

I have also been having your EXACT same symptoms. I have been gluten free for 5 weeks and the past few days I have had bm like you described 4-5x within the first hour or two of waking up.

Good luck! I hope things start to improve.

I had the same symptoms - got all my test done - nothing showed up. Up until then same deal - 1st thing in the morning - fluffy, mucousy, etc.

So I've been gluten free for 2 weeks now. Most of that went away - I had some drinks over the weekend (tanqueray vodka & redbridge beer - not together though) Unleashed fury Sunday. Monday & part of Tuesday - I passed, about several ounces at a time - 100% clear fluid - that stopped, now I have pretty good cramps (I'm a guy, not too keen on cramps) & have been pooping like a rabbit - every hour or more, but its orangish-brown little bits that sink. While my original symptoms backed off - now I've got these

Belinda Meeker Apprentice
Belinda Meeker
Posted

To all sorry for this but ....... :lol::lol::lol::lol::lol:

I HAD TO LAUGH CUZ OF ALL THE JOY WE GET ABOUT TALKING ABOUT OUR POO !

We just had this same conversation at our house just a few nights ago with our second son (whom isn't sure he has celiac disease yet) he was ?ing his dad about wht his poo looked like and said he had been going like a rabbit does for 3 days after eating spagethi all week lol

And hubby does exactly like u do tuxedocat, he has most of his all before noon, he says it hits him at work or on the way and there is no way to hold it back "very explosive"

so u r right ont the money there :)

Far as testings go u have to stay on the "nasty gluten" (hubby chose to do gene testing instead) to get a good celiac reading :(

Good luck

Belinda

melrobsings Contributor
melrobsings
Posted

I have a poo question too!

I'm going like 3-5 times a day, it ranges from D to constipation to somewhat normal. ....is this normal?! I have been eating gluten-free and haven't changed my eating my tummy is never settled, it's ALWAYS moving, it's odd i can feel it moving.

advice?

melrobsings Contributor
melrobsings
Posted

and i forgot to add I'm not talking about a regular little poo i'm talking i'm loosing 1/2 my body weight poos!!!! I'm not a HUGE eater either....

Lizking531 Rookie
Lizking531
Posted
I have a poo question too!

I'm going like 3-5 times a day, it ranges from D to constipation to somewhat normal. ....is this normal?! I have been eating gluten-free and haven't changed my eating my tummy is never settled, it's ALWAYS moving, it's odd i can feel it moving.

advice?

So is mine, but I dont seem to be moving anything - passing clear liquid freaked me out, but now its little pellets - I feel like I could drop half my body weight, it just wont go, though

Do you smoke? or drink any alcohol?

melrobsings Contributor
melrobsings
Posted
So is mine, but I dont seem to be moving anything - passing clear liquid freaked me out, but now its little pellets - I feel like I could drop half my body weight, it just wont go, though

Do you smoke? or drink any alcohol?

i do drink wine and sometimes a cider but not every night, mostly on the weekends. I do RARELY get the alcohol poos. I smoked years ago and quit and found i could breath better! lol

I don't own a home scale, i don't believe in them...as long as my pants fit well i don't care about weight...but i want to buy a home scale to see how much weight i loose before and after....

do you drink or smoke?

darkangel Rookie
darkangel
Posted
I have a poo question too!

I'm going like 3-5 times a day, it ranges from D to constipation to somewhat normal. ....is this normal?! I have been eating gluten-free and haven't changed my eating my tummy is never settled, it's ALWAYS moving, it's odd i can feel it moving.

advice?

Sounds to me like there's something else irritating your digestive system besides gluten. May be time to do some detective work with an elimination diet.

melrobsings Contributor
melrobsings
Posted
Sounds to me like there's something else irritating your digestive system besides gluten. May be time to do some detective work with an elimination diet.

ah I cringe at the thought of that! But that i what I was thinking.... I'm still looking for a new doctor, but i think it is time to eliminate.

darkangel Rookie
darkangel
Posted
ah I cringe at the thought of that! But that i what I was thinking.... I'm still looking for a new doctor, but i think it is time to eliminate.

Yeah, I know... it's not fun. I joke with my husband that if there's anything I enjoy eating and find tasty, it will cause problems for me and have to be eliminated. LOL But yeah... sounds like your body's trying to tell you something's still offending.

Lizking531 Rookie
Lizking531
Posted
i do drink wine and sometimes a cider but not every night, mostly on the weekends. I do RARELY get the alcohol poos. I smoked years ago and quit and found i could breath better! lol

I don't own a home scale, i don't believe in them...as long as my pants fit well i don't care about weight...but i want to buy a home scale to see how much weight i loose before and after....

do you drink or smoke?

I haven't drank, until this weekend, for months - it sucks - I LOVE beer!! I can't drink it though.

I quit smoking & about the time I quit is when all this started. Since then, I ended up smoking again - American Spirit 100% organic lights. If I can refrain from smoking more than 1 or 2 per day - for some reason they help calm my tummy, but I need to quit for good.

melrobsings Contributor
melrobsings
Posted
I haven't drank, until this weekend, for months - it sucks - I LOVE beer!! I can't drink it though.

I quit smoking & about the time I quit is when all this started. Since then, I ended up smoking again - American Spirit 100% organic lights. If I can refrain from smoking more than 1 or 2 per day - for some reason they help calm my tummy, but I need to quit for good.

Maybe it's cause you are deep breathing while smoking? When I started getting REALLY sick and this all happened it was during my divorce. Did you just go through a major life changing stress? I hate beer but my bf has tried the gluten-free beer and he said it wasn't that bad....mind you this is coming from a beer SNOB! But me, I love my Magners Cider, champagne and wine...any color!

LJW Newbie
LJW
Posted
Question, is this typical of celiacs?

* diarrhea mostly in the morning

* diarrhea that is mostly gas, some clear liquid, some gelatinous liquid, with little bits of sludgy/fluffy material, but very little actual poo

* hard to hold in, and makes you stay in the house for fear you'll have an accident out in public

I too have experienced many of these symptoms. I have been gluten free for two years now. It was so bad before I went gluten free that I was having accidents daily with little to know warning. Embarrassing doesn't describe it. My life has changed dramatically. I have a normal BM every day! After 20 years of being sick I cannot describe in words how my life is. Hang in there. It will get better :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    2. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    4. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    5. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748
    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.