Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Closed Throat/ Lump In Throat Feeling

Jill1028

By Jill1028
in Related Issues & Disorders

Recommended Posts

Jill1028 Newbie
Jill1028
Posted

Hi, recently diagnosed with wheat, oat, barley, eggs, soy allergies. Allergist didnt mention celiac term to me at all.

I have cut out all of the aforementioned products and the vicious rash and diarrhea went away.

Acupuncture really helped with rash.

Now I am dealing with this annoying and constant lump in my throat feeling. No reflux, heartburn, etc issues.

This feeling will not disappear! So annoying- not sleeping, constantly swallowing, ick!!!

Not sure what my next step should be.

Going to a new GP/ gastro guy next week- terrified of drs btw...

Any suggestions for blood tests, etc would be greatly, greatly appreciated.

thanks,

Jill

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Jill,

Make sure you get checked for things like infected tonsels, swollen glands and epiglottis infection, even tumors (heaven forbid). Don't assume it is allergy/celiac related. An ENT (ear, nose and throat) doc might also be a good avenue to explore if your other docs don't come up with good ideas.

Steve

Jill1028 Newbie
Jill1028
Posted
  • Author

Hey Steve, thanks for the advice. I am not feeling at all sick in any way but I won't discount your suggestions. Since I am more aware of how I am feeling these days, I do notice that this closed up feeling has occurred in the past and I am trying to pinpoint as to when it might be happening and if it is related to an allergy/food reaction-issue.

thanks again,

Jill

georgie Enthusiast
georgie
Posted

Thyroid....

Make sure you get a full Thyroid Test done. That includes Free T4, Free T3 and Thyroid Antibodies. Go to www.stopthethyroidmadness.com I had that lump as you describe. Dr did all the cancer checks and had no reasons for it. She kept telling me my Thyroid was 'normal'. I eventually got copies of my tests , and found she had been testing ONLY ...TSH.... So make sure you get all the tests done, and get your paperwork and make sure that your results are completely normal and don't just take a Drs opinion of it. Drs can be wrong .... And most Drs don't understand Thyroid. I have had 3 Endos and 10 Drs over a 30 years time span that did not understand my autoimmune Thyroid - so be aware.... My current Dr is great - she has Hashimotos Thyroid herself, and had to train herself off the Internet and with expensive Conferences AFTER she was a dr. The Endos also gave her the run around when she was trying to get diagnosed..

blueeyedmanda Community Regular
blueeyedmanda
Posted

GERD also causes that feeling as well. I would get it checked it out though.

georgie Enthusiast
georgie
Posted

I forgot to say that my throat is fine now. Eventually I had the full thyroid blood tests and an ultrasound that showed an enlarged multinodular thyroid ( goitre). It took about 8 weeks of changing Drs and getting appts etc - to reach this stage. All that time I could barely swallow and my voice was husky. I could only eat rice... After going onto Armour Thyroid - the Goitre eventually went away and a ultrasound done a couple of months ago showed that the swelling had gone and that all the nodules had disappeared. Luckily I started Armour before the nodules grew large. :)

PattiD2 Rookie
PattiD2
Posted

My DD has been diagnosed with eosinophilic esophagitis which is inflammation in her throat, probably caused by an allergic reaction. Diagnosis involves multiple biopsies taken in different areas of the esophagus to rule out GERD and to count the number of eosinophils in each area. This is a relatively rare disease but is being diagnosed more each year. Not all GI doctors know about this disease and it can be tricky to do the biopsies the correct way. Most often, they put you on reflux medicine prior to checking for EE to see if that may be causing the problem.

www.apfed.org has information on eosinophilic esophagitis.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kevieb Newbie
kevieb
Posted

reflux can cause that sensation in your throat----even if you don't get heartburn. i deal with this on a regular basis.

wowzer Community Regular
wowzer
Posted

I used to get that feeling too. I had a goiter and was put on synthroid. My thyroid was like 3 times the normal size. It is much better now.

BettyL. Rookie
BettyL.
Posted
Hi, recently diagnosed with wheat, oat, barley, eggs, soy allergies. Allergist didnt mention celiac term to me at all.

I have cut out all of the aforementioned products and the vicious rash and diarrhea went away.

Acupuncture really helped with rash.

Now I am dealing with this annoying and constant lump in my throat feeling. No reflux, heartburn, etc issues.

This feeling will not disappear! So annoying- not sleeping, constantly swallowing, ick!!!

Not sure what my next step should be.

Going to a new GP/ gastro guy next week- terrified of drs btw...

Any suggestions for blood tests, etc would be greatly, greatly appreciated.

thanks,

Jill

My haital hernia is giving me a sore throat , strachty feeling, lost of voice, pressure on my left breast. I didn't realize how swollen my throat was until I change my blood pressure medicine. At that point my throat swelling changed. For awhile it was thought it was the cause of my problem. Alas, it turned out to be my hernia is back. The endoscope did not show the hernia; but a barium swallow did.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,671
    • Most Online (within 30 mins)
      7,748
    Paul1567
    Newest Member
    Paul1567
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.