Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Is Dizziness A Symptom Of Cc


Guest thatchickali

Recommended Posts

Guest thatchickali

Okay I know for me (panic disorder) dizziness is my first symptom of a panic attack. People have told me it can be a symptom of CC....Is that because of panic when you read you have been contaminated or is it a symptom that the gluten creates in your body?

I hope that was understandable, I know I didn't word it well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



angel42 Enthusiast

I get veeeeeeeeeeeery dizzy with cross contamination in addition to my gastro symptoms. I just chalked it up to the celiac.

Guest thatchickali

I've been pretty dizzy today and i've been blaming it on panic, because I feel like I've had 3 panic attacks today, which is rare for me but I am about to make a big move so i'm sure I'm stressed. Anyway I don't know what I could have eaten last night to contaminate me, but I've just been so dizzy and been going in and out of stomach aching/cramping. Had a little nausea this morning. But then I will feel fine for a while then it comes back.

I'm sure it's not a bug because I have been checking my temp and it hasn't gotten any worse.

I've only been gluten-free for 2 weeks so I don't really know what contamination feels like, esp because I didn't have diarrhea previously, I had constipation and burping.

Guest Doll

I am guessing that it is mainly due to a sudden change in blood pressure (and/or blood sugar in rare cases like mine) due to gluten exposure. For me, my body almost goes into a state of shock. Note that I am scheduled for allergy testing, as I may have a wheat allergy in addition to Celiac. I would think the vast majority of Celiacs do not develop this kind of reaction. But I could be wrong!

Some people also notice a change in heart rate (I do). That may be due to upcoming diarrhea (which causes a change in the ions of the intestines just prior), or a state of "allergic" reaction. If you are dehydrated from vomiting and the big D, this can also cause dizziness.

Lastly, there is likely also some sort of neurological connection here, if not additional reasons as well. But these are all guesses. I don't know if this has been studied or not.

NorthernElf Enthusiast

CC makes me dizzy/light headed and can give me heart palpatations/mixed up heart rate. Sometimes that's my first clue, esp. if it's just cross contamination (low dose of gluten). Before I knew anything about gluten issues, the heart palpatation thing really scared me ! It was like missing a beat here & there and then a couple of quick ones trying to catch up. I used to get tingling in my arms, foot, or my head (and that really freaked me out). Fortunately, the tingling doesn't happen anymore.

The other day I had a couple of toffees from my kids stash from a recent parade. I felt ok, a bit dizzy but didn't think much of it. The next morning I woke up and felt like I had a hangover - groggy, body sore & achy, sinus headache, gut unsettled, ugh. Delayed reaction I guess. I had chalked the evening's dizziness up to tiredness. :rolleyes:

For the most part it's my sinuses that go nuts & alert me to gluten and then the rest of it - nausea and D with more gluten or out and out gluten ingestion.

ravenwoodglass Mentor
Okay I know for me (panic disorder) dizziness is my first symptom of a panic attack. People have told me it can be a symptom of CC....Is that because of panic when you read you have been contaminated or is it a symptom that the gluten creates in your body?

I hope that was understandable, I know I didn't word it well.

You get this because for many of us gluten is a neurotoxin.

tiffjake Enthusiast
I am guessing that it is mainly due to a sudden change in blood pressure (and/or blood sugar in rare cases like mine) due to gluten exposure.

Some people also notice a change in heart rate (I do). That may be due to upcoming diarrhea (which causes a change in the ions of the intestines just prior), or a state of "allergic" reaction. If you are dehydrated from vomiting and the big D, this can also cause dizziness.

Lastly, there is likely also some sort of neurological connection here, if not additional reasons as well. But these are all guesses. I don't know if this has been studied or not.

This is my experience and belief also.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sickchick Community Regular

I exercise every day and when I am done is when I feel the dizziest. But I definitely have that "dizzy" problem. Some days it's worse than others.

shawnatony Newbie
You get this because for many of us gluten is a neurotoxin.

Hello.

DIZZYNESS is what made me go to the dr. It was strange cause you dont hear much about the neuro. effect. Once I started digging, I knew. I found out in June and have 3 accidents since then and within that day the dizzy spells come back and IM VERY TIRED like OUT. all i can do is lay down.

Crazy.

shawnatony Newbie
You get this because for many of us gluten is a neurotoxin.

Hello.

DIZZYNESS is what made me go to the dr. It was strange cause you dont hear much about the neuro. effect. Once I started digging, I knew. I found out in June and have 3 accidents since then and within that day the dizzy spells come back and IM VERY TIRED like OUT. all i can do is lay down.

Crazy.

brendygirl Community Regular

I get VERTIGO and the dr. gives me RX kind of dramamine, but finally a new Dr. said I have fluid in my ears. Now I have an appt. with Ear/Nose/Throat specialist. So much to worry about. Sometimes I can't believe how hard it is to just take care of myself!!

  • 2 weeks later...
Cat5 Newbie

I am freaking out here because I am newly diagnosed with Celiac disease and have read so much on this website today that describes Many and most of the symptom I have been suffereing with for years and chalked it up to just getting old! I am a product of the 60's hippie scene so am probably a lot older than most of you are, but we still suffer the same problems and symptoms which are not age specific.

I've had dizziness for the past 2 years which seems to coincide with what I now know was probably the worsening of my celiac disease.

I never would have thought that now when I get the dizziness that it could be due to Cross Contamination. Cripes, I have a lot to learn with this I can see that right now.

Thanks so much for posting about this.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,545
    • Most Online (within 30 mins)
      7,748

    WAY
    Newest Member
    WAY
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.