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Celiac?


XxKittykat

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XxKittykat Rookie

I posted this in another section of the boards, but figured I should have put it here first...?

Hi, my name is Kat. I'm 16 1/2 years old and I believe I am celiac. I suffer from severe lactose intolerence, I have fibromyalgia, acid reflux, insomnia, and subluxation. Over the past 2-3 years I have been having strange, unexplainable symptoms. One of the biggest includes bouts of loud, powerful burping, uncontrollable vommiting (large amounts at a time), and horrible bloating with stomach pains. I have felt stomach cramps, stabbing sensations, stomach aches, a feeling in the stomach that I need to burp (this causes me to be unable to sleep lying down at night), and loud stomach sloshing...also, I have felt slight twitches in my stomach (this I believe is caused by food digesting). In addition, I have had headaches, sore throat, itching, an odd rash on my abdomin, hair loss, back/knee/wrist pain, insomnia, poor appitite, buring stomach sensations, weakness, tiredness, intestial pain, unable to urinate dispite drinking loads for water, dizziness, sores in the mouth, hands and feet keep falling asleep, brittle nails, anemia, gas, constipation, muscle cramps, unexplained loss of tooth enamal, and weight loss. I am 5'4" and currently 77 pounds (since begining a gluten-free diet I have gained 4 pounds in 4 days). Last week I removed gluten from my diet and saw an improvment - I had more energy, I have been more upbeat, less bloating, less burping, less vommitting, and sleeping more often. I had been feeling great until yesterday when I had eaten out at the local Bill Millar's - veggie soup, french fries, and a side of beans. Instantly I felt horrible and I've been vommitting and bupring all over again since I woke up this morning and I can't bring my horribly painful bloating down. Sounds like celiac to me! What do you all think? I'm new on here and I have no one else to turn to. Every doctor I've seen wants to shove meds down my throat, send me to an eating disorder counselor, tell me it's "all in my head", or pass me along to another doctor who does the same thing. I've already been tested for lupus, chrone's, and something else that I can't seem to remember. All tests came out negative. It is not candida either, I've been tested and went though that diet for some time (w/o removing the wheat though). Thanks for your time and I appolozige for this post being so long (this was the short version by the way!).

- ~*~Kat~*~ "Lost and doesn't know where to turn"


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mommida Enthusiast

You have numerous symptoms of celiac disease.

The bad news, if you want to get medical testing - you need to keep eating gluten for any tests to be accurate. (Even if the Dr. says the tests are so sensitive, blah, blah, blah)

  • 2 weeks later...
deba Newbie

I posted this in another section of the boards, but figured I should have put it here first...?

Hi, my name is Kat. I'm 16 1/2 years old and I believe I am celiac. I suffer from severe lactose intolerence, I have fibromyalgia, acid reflux, insomnia, and subluxation. Over the past 2-3 years I have been having strange, unexplainable symptoms. One of the biggest includes bouts of loud, powerful burping, uncontrollable vommiting (large amounts at a time), and horrible bloating with stomach pains. I have felt stomach cramps, stabbing sensations, stomach aches, a feeling in the stomach that I need to burp (this causes me to be unable to sleep lying down at night), and loud stomach sloshing...also, I have felt slight twitches in my stomach (this I believe is caused by food digesting). In addition, I have had headaches, sore throat, itching, an odd rash on my abdomin, hair loss, back/knee/wrist pain, insomnia, poor appitite, buring stomach sensations, weakness, tiredness, intestial pain, unable to urinate dispite drinking loads for water, dizziness, sores in the mouth, hands and feet keep falling asleep, brittle nails, anemia, gas, constipation, muscle cramps, unexplained loss of tooth enamal, and weight loss. I am 5'4" and currently 77 pounds (since begining a gluten-free diet I have gained 4 pounds in 4 days). Last week I removed gluten from my diet and saw an improvment - I had more energy, I have been more upbeat, less bloating, less burping, less vommitting, and sleeping more often. I had been feeling great until yesterday when I had eaten out at the local Bill Millar's - veggie soup, french fries, and a side of beans. Instantly I felt horrible and I've been vommitting and bupring all over again since I woke up this morning and I can't bring my horribly painful bloating down. Sounds like celiac to me! What do you all think? I'm new on here and I have no one else to turn to. Every doctor I've seen wants to shove meds down my throat, send me to an eating disorder counselor, tell me it's "all in my head", or pass me along to another doctor who does the same thing. I've already been tested for lupus, chrone's, and something else that I can't seem to remember. All tests came out negative. It is not candida either, I've been tested and went though that diet for some time (w/o removing the wheat though). Thanks for your time and I appolozige for this post being so long (this was the short version by the way!).

- ~*~Kat~*~ "Lost and doesn't know where to turn"

deba Newbie
Hi Kate, You sound ill. You do not have to keep eating gluten to get tested, the doctors may not be helpful to you. Please go to enterolab.com and read the stuff. It is full of information. deba

I posted this in another section of the boards, but figured I should have put it here first...?

Hi, my name is Kat. I'm 16 1/2 years old and I believe I am celiac. I suffer from severe lactose intolerence, I have fibromyalgia, acid reflux, insomnia, and subluxation. Over the past 2-3 years I have been having strange, unexplainable symptoms. One of the biggest includes bouts of loud, powerful burping, uncontrollable vommiting (large amounts at a time), and horrible bloating with stomach pains. I have felt stomach cramps, stabbing sensations, stomach aches, a feeling in the stomach that I need to burp (this causes me to be unable to sleep lying down at night), and loud stomach sloshing...also, I have felt slight twitches in my stomach (this I believe is caused by food digesting). In addition, I have had headaches, sore throat, itching, an odd rash on my abdomin, hair loss, back/knee/wrist pain, insomnia, poor appitite, buring stomach sensations, weakness, tiredness, intestial pain, unable to urinate dispite drinking loads for water, dizziness, sores in the mouth, hands and feet keep falling asleep, brittle nails, anemia, gas, constipation, muscle cramps, unexplained loss of tooth enamal, and weight loss. I am 5'4" and currently 77 pounds (since begining a gluten-free diet I have gained 4 pounds in 4 days). Last week I removed gluten from my diet and saw an improvment - I had more energy, I have been more upbeat, less bloating, less burping, less vommitting, and sleeping more often. I had been feeling great until yesterday when I had eaten out at the local Bill Millar's - veggie soup, french fries, and a side of beans. Instantly I felt horrible and I've been vommitting and bupring all over again since I woke up this morning and I can't bring my horribly painful bloating down. Sounds like celiac to me! What do you all think? I'm new on here and I have no one else to turn to. Every doctor I've seen wants to shove meds down my throat, send me to an eating disorder counselor, tell me it's "all in my head", or pass me along to another doctor who does the same thing. I've already been tested for lupus, chrone's, and something else that I can't seem to remember. All tests came out negative. It is not candida either, I've been tested and went though that diet for some time (w/o removing the wheat though). Thanks for your time and I appolozige for this post being so long (this was the short version by the way!).

- ~*~Kat~*~ "Lost and doesn't know where to turn"

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