Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reading Results

melmak5

Recommended Posts

melmak5 Contributor
melmak5
Posted

I was diagnosed in June with celiac, and finally convinced a family member to get tested.

He has diabetes.

His results were

tTG/IgA - 26 (abnormally high)

IgG - 2 (normal)

AGG - 5 (normal)

His pcp said 'I don't know how to read these." His kidney doctor said "you don't have any digestive symptoms, its negative"

My question is...

Should I really hound him to get an endoscopy or can elevated tTG just be from his diabetes?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


NY547 Newbie
NY547
Posted

In my oppinion, he is positive for celiac. Celiac can affect/attack more than just the GI tract. Just ask the people with DH! He has antibodies to Tissure transglutaminase which is a VERY SPECIFIC marker for villous atrophy caused by gluten ingestion.

He may want to have the test repeated just to be sure there was no lab error since the other 2 tests were normal, but I know that many doctors will ONLY run the TTg IgA when screening for celiac anyway, as it is the most specific.

There are also latent or silent cases of celiac where people experience no GI systems, however the damage is still being done and can affect other systems and organs, especially the liver and kidneys.

I would definately have your family member look into the possibility of celiac further to avoid future complications.

melmak5 Contributor
melmak5
Posted
  • Author

Thank you.

Pretty much what you said to me, I said to him. But I began to doubt my convictions.

He does not have the GI symptoms, but he has a zillion other problems that sound like celiac to me.

He is severly anemic (the doctors have him on procrit)

He is physically exhausted, all the time.

He is depressed and it is near impossible to communicate with him.

He gets tingly limbs.

He has had gout (not sure about this one)

He breaks out in rashes that come and go.

All his doctors have attributed his conditions to his diabetes, but to me, it sounds like there is something else going on.

I will keep pushing!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AnnaNZ
      - AnnaNZ replied to The Logician's topic in Related Issues & Disorders
      10

      Gluten Sensitivity

      Hello. Do you mind saying what symptoms led the doctors to test for bacteria in your blood?
    2. trents
      - trents replied to The Logician's topic in Related Issues & Disorders
      10

      Gluten Sensitivity

      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
    3. The Logician
      - The Logician replied to The Logician's topic in Related Issues & Disorders
      10

      Gluten Sensitivity

      I spent my first 50 years eating wheat products every single day with no ill affects. Being a 6’2” Italian you can imagine what my diet was like and believe me I had an appetite that wouldn’t quit. In the 90’s once I discovered the wheat was my problem I avoided it and no longer had IBS. I seriously doubt I have celiac but I appreciate your input a...
    4. trents
      - trents replied to The Logician's topic in Related Issues & Disorders
      10

      Gluten Sensitivity

      I would say two things and then I'm done. Many celiacs have been misdiagnosed for years with IBS. Testing for celiac disease requires regular and significant consumption of gluten for weeks/months in order to be valid.
    5. RMJ
      - RMJ replied to Alibu's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Latent celiac, need to go gluten free, advice on kitchen "reset?"

      Can the rest of your household eat the food with gluten instead of getting rid of it? Can you create one shelf, or partial shelf, for your new food in the pantry, in the fridge and in the cabinets as a start? My husband is not gluten free so we each have a cabinet, and separate shelves in the fridge. If we have to share space the gluten free foods...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,992
    • Most Online (within 30 mins)
      7,748
    Jubaroo
    Newest Member
    Jubaroo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AnnaNZ
      Gluten Sensitivity

      By AnnaNZ · Posted

      Hello. Do you mind saying what symptoms led the doctors to test for bacteria in your blood?
    • trents
      Gluten Sensitivity

      By trents · Posted

      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I spent my first 50 years eating wheat products every single day with no ill affects. Being a 6’2” Italian you can imagine what my diet was like and believe me I had an appetite that wouldn’t quit. In the 90’s once I discovered the wheat was my problem I avoided it and no longer had IBS.  I seriously doubt I have celiac but I appreciate your input and will let you know if I have a problem with wheat again. I’ve been eating things I’ve longed for for decades and have never felt better.
    • trents
      Gluten Sensitivity

      By trents · Posted

      I would say two things and then I'm done. Many celiacs have been misdiagnosed for years with IBS. Testing for celiac disease requires regular and significant consumption of gluten for weeks/months in order to be valid.
    • RMJ
      Latent celiac, need to go gluten free, advice on kitchen "reset?"

      By RMJ · Posted

      Can the rest of your household eat the food with gluten instead of getting rid of it? Can you create one shelf, or partial shelf, for your new food in the pantry, in the fridge and in the cabinets as a start? My husband is not gluten free so we each have a cabinet, and separate shelves in the fridge. If we have to share space the gluten free foods go on the upper shelves so crumbs with gluten can’t fall onto them. Good luck!
×
×
  • Create New...