Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloated Stomach...still?


Bellasmama

Recommended Posts

Bellasmama Apprentice

Isabella's main symptoms in the beginning were the extremely bloated stomach, constipation and weight loss. Everything has been great since being diagnosed and on a gluten-free diet. However recently Isabella's stomach is getting back to like it was in the beginning. Hard, extended, really noticable. Its been 6 months and this is coming back again. Everything else looks to be fine and still getting better and better except her stomach. I feel horrible. It sucks when she's a tiny lil thing only weighs about 21lbs and should be in size 18month clothing and she is in 2t tops because of her stomach.

What should I do? This is the only thing that is coming back of her symtoms. We have been very careful with what she eats. Her next GI appointment isnt until October.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bellasmama Apprentice

:(

anyone?

happygirl Collaborator

Hi BellasMom,

Your post wasn't originally pinned (its been busy on the board lately, so it probably got overlooked), so thats probably why you didn't get any responses. Hopefully someone will chime in.

Is she eating restaurant food at all? Have you checked her medications for gluten? Is she eating at daycare/school/friend's houses that aren't safe?

Best of luck and I hope you find some answers.

Bellasmama Apprentice

The only thing from FF that she's had were the package apples from McD's. And that's not very often. She stays at my gma's house while I work and I buy all her food for her and so I dont think its happening there. They know very well what she can and cannot have and to be careful. My gma calls me a million times a day asking me if she can have other things even though she already knows the answers. Any other time she goes some where I'm with her. She doesnt take any meds so it cant be that.

Could this be something other than Celiac? Or maybe she's being glutened and I dont even know it....she's not showing any other symtoms though....Why does this have to be so difficult?!?! UGH!

Lisa Mentor

I remember that it was about a year or so when I started having a problem with dairy. Perhaps she is developing a secondary intolerance at this point.

You can try to hold off dairy for a week or so and then reintroduce it and see what happens.

Just a thought :(

taweavmo3 Enthusiast

Ditto about dairy.........that would be my guess too. I have found that with myself, and my kids....we really didn't start making great strides until all casein was removed. Feeling and looking bloated is one of my main symptoms of a dairy infraction.

Hope that helps! If you are already dairy free, I would go over everything she's been eating. Also go over all shampoos, lotions, etc. I'm gluten free as well, but for some reason had never thought to check my bath and body works lotion. It had oats in it, and so did my Cover Girl powder. I finally switched to Bare Minerals, and double checked all my lipsticks. My daughter loves to get into my lip glosses and makeup, plus all the times I give her kisses......it would be easy for her to get glutened. Hope that helps some! The first year can be a little rocky....she is still healing, and she may not be able to tolerate the same foods as she did before. Go to a really bland, easily digested diet (you could also try enzymes, my kids love these) and see if that helps as well. Good luck!

gfpaperdoll Rookie

ditto re dairy, she should be dairy free. Is grandma cooking with wheat flour??? the stuff is awful & poofs up in the air & gets on everything & the child can breathe it in & get very sick. Hard to keep little kids in a house that is not gluten-free. Do you have a local ROCK group or support group???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    2. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    3. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,901
    • Most Online (within 30 mins)
      7,748

    kharvey
    Newest Member
    kharvey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.