Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Live In Oregon


Nathan's mom

Recommended Posts

Nathan's mom Apprentice

Hi,

Just wondering if anyone lives near me with young kids that just happen to eat things made with xanthum gum and lots of egg whites? :lol:

I live about 30 minutes north of Eugene and 90 minutes south of Portland. Anyone feel the need from time to time to introduce or set up playdates with other celiac kids? I want my son to learn to live in the real world, but that also includes letting him meet other celiacs like him!

Has anyone ever organized such playdates? What do you do, take an ad out in the newspaper to find out whose out there?

Debbie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adelle Enthusiast

I like in Salem! I don't have any kids, but I know there is a Salem ROCK (Raising Our Celiac Kids) group.

Also, have you been to "living Earth bakery" in corvallis? It's a completely gluten-free bakery, they make the BST gluten-free bread!!

Anyway, Email me if I can help!!

Nathan's mom Apprentice

Thanks Adelle. I found the ROCK coordinator listed for Salem and emailed her. It's a bit of a drive for me, but it would be worth it. I thought I would see what it is like and perhaps try to form a chapter closer to me. I KNOW there has to be other Celiac kids nearby.

Yes, we went to the Living Earth Bakery in Corvallis. It was SO FUN to take my son in there and let him pick out whatever he wanted.

Debbie

Adelle Enthusiast

I LOVE that bakery!! We eat bread from there nearly every day. The whole grain is my favorite. I have had DREAMS about those cinnamon rolls!! Oh man!! You can also do special orders which (if it's a drive for you) I reccomend because they sell out FAST sometimes. I ordered bread, ladyfingers, cupcakes, brownies, and pizzacrusts for my birthday, I almost went into a carb coma.... *drools*

Is your kiddo dairy free too?? I know they do some dairy free as well (the sandwich bread is for sure). And Nechama (pronounced neehama like rhyming with mama) made "chocolate" cupcakes once that were dairy free. SO good (and I am not a chocolate person).

Anyway, hope you find some sillyak kids near you!

  • 1 year later...
sandejosgirl Newbie
Hi,

Just wondering if anyone lives near me with young kids that just happen to eat things made with xanthum gum and lots of egg whites? :lol:

I live about 30 minutes north of Eugene and 90 minutes south of Portland. Anyone feel the need from time to time to introduce or set up playdates with other celiac kids? I want my son to learn to live in the real world, but that also includes letting him meet other celiacs like him!

Has anyone ever organized such playdates? What do you do, take an ad out in the newspaper to find out whose out there?

Debbie

Debbie, Are you still on this site? My family just moved back to OR from AK, to Brownsville, and just diagnosed by daughter (almost 5) and husband with celiacs. We are still trying to decide what to do about testing the rest of the family. My mom was recently diagnosed with colon cancer at 53, which is some of why we moved back, and I am unsure if I am going to go through the whole testing thing before going gluten-free. My daughter (youngest of our three, turning one soon) patch tested for gluten intolerance at one month old.

Anyway, I'm looking for support groups for kids and moms!

Thanx.

Stephanie

celiac-mommy Collaborator
Debbie, Are you still on this site? My family just moved back to OR from AK, to Brownsville, and just diagnosed by daughter (almost 5) and husband with celiacs. We are still trying to decide what to do about testing the rest of the family. My mom was recently diagnosed with colon cancer at 53, which is some of why we moved back, and I am unsure if I am going to go through the whole testing thing before going gluten-free. My daughter (youngest of our three, turning one soon) patch tested for gluten intolerance at one month old.

Anyway, I'm looking for support groups for kids and moms!

Thanx.

Stephanie

Our SW Washington/Portland ROCK chapter is having its 2009 kickoff party on the 24th. The location hasn't been posted yet, but here is the contact info/website. We are always excited to have new people join our group!

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.