Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Think I'm Getting Glutened


confusedks

Recommended Posts

Mom23boys Contributor

My family was the same way when I went milk free. I would even buy my milk free foods and they would eat them all up then complain about how nasty they were. I'd complain then they would tell me how selfish I was. :( Even though I'm old enough to be your parents, I completely understand!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGluGirl Contributor

Dear Kassandra,

I am with you, here! My parents are the same way. They get crumbs all over the place! Then, they treat you like you are a lunatic! If they were the ones becoming so ill from it, they would not take that attitude!

Dear Mom23boys,

That is exactly how it is! People will complain and say you are selfish, when they are the ones who are! That is so aggravating! Even worse, we are the ones who suffer for it. I want to be well and able to move out on my own so I do not have to worry about gluten getting in my things anymore.

Sincerely,

NoGluGirl

Ridgewalker Contributor

I have heard many stories about people getting glutened because of gluten/gluten-free shared kitchens, but this really is awful. I am truly shocked at what you two are having to put up with in your own homes, with your own family members!

The thing is... it isn't THAT hard to minimize the cc risks, as long as everyone in the house is careful and puts in a tiny amount of effort. My son has not shown any symptoms of being glutened by cc in the house since the first few weeks! All it takes is a couple separate utensils/appliances, and good cleaning practices, which become habit very quickly... I'm kind of appalled that your families refuse to put forth that small effort.

I am so sorry you're having to deal with this crap-- I wish there was something I could do!!!

-Sarah

NoGluGirl Contributor

Dear Sarah,

Thank you for your kind thoughts. :) Sometimes, that is better than anything else you could do. The frustration is difficult to deal with. I wish I could be well enough to work and move out on my own. Then I would not have to worry about it. Where I live, you could have all of your limbs missing, and they would find a reason not to give you disability.

It just amazes you how inconsiderate other people are, and then have the nerve to call you self-centered. They refer to you as obsessed. People do not understand that Celiac truly dictates most aspects if not all things in your life. I get violently ill from a microscopic crumb. I really do not feel I am overdoing it. No one would want to become that ill if it is preventable.

Sincerely,

NoGluGirl

confusedks Enthusiast

Sarah,

Thank you! It is really hard because I am really worried about a smooth school year and on top of it, I have to make sure everything I eat is gluten-free and not cc'd. Tonight I went to cut apples and realized there was bagel crumbs everywhere!!! :angry: It's kinda the last thing I need to be worrying about, but my mom won't go completely gluten free in the house! Ugh, well the good news is when I have kids (a LONG ways away from now) I will have a gluten-free house and if they want non gluten-free food, they can eat it out...friends houses, etc. So my mom has shown me what I don't want! Lol

Thanks again,

Kassandra

PatBrown Newbie

If you dont get your own fridge put your stuff in a drawer (veggie or meat). Sometimes they(men and boys) are relly to lazy to search and just grab whats in clear view.

NoGluGirl Contributor

Dear Pat,

You are right about that! My dad does that stuff! He will be like "Where is it?" I told him "Move the jelly." "Oh, there it is!" :rolleyes: That is so annoying! What is it with people being so lazy?

Sincerely,

NoGluGirl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748

    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.