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Ode To Clueless Doctors


Mtndog

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Mtndog Collaborator

This was originally written by judy Williams about Lyme, but I think it applies to celiac too!!!!!!!!!!!!!!!!!!!!!!!!!

"You can't have celiac disease

because I say it's so.

The insurance companies make me say it

'cause it doesn't make them lots of dough.

"The Hippocratic oath-I've

forgotten what that means.

You've probably got depression

and that runs within your genes.

There's a pharmacopeia of meds

Which one is your desire?

Wellbutrin, Zoloft, Nardil?

You'll take one or raise my ire.

"Sure you tell me that your body

feels like you have died,

but you still cannot convince

me you'll feel better off wheat and rye.

"Just decide you're going to

feel better; go home and meditate.

Tony Robbins has some tapes to watch,

they'll make you feel just great.

"Although you tell me different,

you're sick just in your head.

Don't you see you can't convince me

that it's something else instead.

"I've heard enough; you bore me

And I've other patients here to see.

Their ailments much more simple;

like a badly-twisted knee."

The learned doctor finally says,

"Please, will you go away

There's nothing science can do for

you; just go to church and pray."


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Ursa Major Collaborator

Well written! I could somehow make that apply to my doctor and Addison's disease as well. In fact, I had to self-diagnose everything I've got, as she is incapable of looking past lab numbers. I had to go all the way to Germany to find a decent doctor who knows what he is doing. Without him I am not sure if I would have lived past Christmas, and now I am on the mend.

miles2go Contributor
Well written! I could somehow make that apply to my doctor and Addison's disease as well. In fact, I had to self-diagnose everything I've got, as she is incapable of looking past lab numbers. I had to go all the way to Germany to find a decent doctor who knows what he is doing. Without him I am not sure if I would have lived past Christmas, and now I am on the mend.

My mom told it to me best. YOU are your primary health-care provider. Everyone else is secondary.

Glad you got to Germany for treatment, Ursa.

Mtndog Collaborator
My mom told it to me best. YOU are your primary health-care provider. Everyone else is secondary.

Glad you got to Germany for treatment, Ursa.

This is SO true!!!!!!!!!!!!!!!!!!!!!!!!!!! I thought it was bad that i had to travel to NYC for treatment, but Ursula, you've got me beat!

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    1. - trents replied to barb simkin's topic in Related Issues & Disorders
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      celiac, chocolate and alcohol

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      celiac, chocolate and alcohol

    3. - trents replied to barb simkin's topic in Related Issues & Disorders
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    • trents
      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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