Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Medical Help


melmak5

Recommended Posts

NoGluGirl Contributor

Dear tarnalberry,

The class of drugs you are talking about is likely SSRIs, or Selective Serotonin Re-uptake Inhibitors. The trouble with these drugs is, they are very addictive. I wish I had never gotten on one. You cannot stop them suddenly, or you risk flipping out and committing suicide. The withdrawal is something I have been through as well, and is unbearable. They really should have rehab for these terrible pills! :(

My doctor may or may not like it, but as you do, I research things. It is a good thing, or my gallbladder would have exploded inside of me. I also would have been a full-blown drug addict by now with all of the pills my last doctor pushed on me. Thank goodness I began seeing my current doctor, who is a holistic physician. I have not left her office with pills once! :)

I think we discussed the hypoglycemia before. It must have been you who said a 50-25-25 ratio of macronutrients served you best. I have not tried that one. Maybe I should. My blood sugar was still a little low when doing The Zone before.

Whether or not the Celiac played a role in that I do not know. I am like you, I say do what works!

Fish oil is very good for a lot of things. My mother cannot tolerate it. She gets D. I have a sensitive system, so it may not help my stomach any. I eat fish, though. Also, Pilates helped with the Fibromyalgia before.

Sincerely,

Jin


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 58
  • Created
  • Last Reply
melmak5 Contributor

Thanks to you both.

SSRIs and any medication is a personal choice. For me, I have a family member who reacts VERY severely to them, and it is just not a risk I am willing to take right now.

I am willing to do anything else, just not that family of drugs.

I just had some sharp chest pains 45 minutes after eating dinner. So I think I am going to go back to my not eating plan. Its not a long term solution, but every time I eat I am in some form of pain. Maybe all liquids is the way to go for a bit.

NoGluGirl Contributor

Dear Kristina,

Trust me, you made the right choice with not going on any SSRIs. They are a prescription for poison in my opinion. I never would have taken them had my parents not urged me to. Let's just say I learned listening to them about my body never turns out in my best interest. :rolleyes: I am not surprised you had a relative that had a severe reaction to them. I am like you, my system is so frail, it is best to err on the side of caution.

Here is something else you may not have heard about the SSRIs. You remember Columbine and the other school shootings I am sure. Well, guess what those teenagers had just begun taking only two weeks prior to the shootings? You got it! The SSRI drugs! :blink: I am not surprised, because the research I have done on them has yielded frightening results.

I understand not wanting to eat. :( The chest pain could be from your gallbladder. I used to feel like I was having a heart attack, and belching is the only thing that helped relieve the misery. Many people with bad gallbladders think they are having heart attacks when they go into the ER. Please do not stop eating altogether! I know how hard it is. HUGS!

Sincerely,

Jin

ENF Enthusiast

I take 5-HTP and L-Theanine Suntheanine, manufactured by NOW FOODS. They are gluten-free. L-Theanine is made from decaffeinated green tea, and is very relaxing. 5-HTP, which increases serotonin levels, is made from the bean of an African plant.

melmak5 Contributor

Wouldn't it make more sense to test for my current serotonin levels to see if they are off BEFORE going on any medication/supplement?

I also firmly believe the only reason I am unhappy is because I am in pain and unable to do anything I used to be able to do, not even read. (which makes it really hard to finish grad school)

I broke down and cried and this is the third doctor who five seconds after seeing me cry suggested antidepressants. They don't seem to understand that each one of them has said "I don't think you have celiac disease" and then after they reread my file at my urging, they say "oh yeah, you do."

Its the false hope that I could eat bread and beer again and then the huge crashing defeat that I will never be able to do many of the things I wanted to that equal tears. That and feeling like an alien is trying to make its way through my rib cage.

I really see no benefit form eating solid foods right now.

They cause me abdominal pain and/or bloating to the point it hurts to it or I cannot keep my pants on. I cannot deal with that in my work environment.

And I cannot take muscle relaxants all day because they make me so loopy I cannot function, I actually begin to drool.

gabby Enthusiast

My heart goes out to you, and I do hope you get relief soon.

I wanted to offer you my recipe for a hearty soup that is really gentle on the digestive system, is very nutritious, and is also gluten free, dairy free, sugar free, but tasty. I use this soup when something has glutened me, and I need to give my body a rest so it can recover. I highly recommend making a very large pot of this soup. Cool it down, then put into single-serving sizes of new ziploc bags and freeze. NOTE: you need a soup whizzer or blender for this recipe. Make sure the whizzer or blender are absolutely clean and free of anything that could possible contain gluten.

6 chicken legs with thighs attached

half a head of fresh celery (get one with lots of leaves if possible)

1 fresh really big soft tomato (or 2 medium)

one fresh big onion (any kind: white, red, yellow, etc)

2 tablespoons salt

2 tablespoons olive oil (optional)

5 medium potatoes

Method:

Wash the celery, and chop into big rough pieces.

Wash the tomato and cut into halves

Wash the onion, peel and chop into halves

Get out a large pot that has a lid.

-put in the chopped celery, the tomato, onion

-add the chicken pieces (cut them up if they don't fit into the pot)

-add enough cold water to cover everything in the pot

-add the salt, and the olive oil

Put on med/high heat until it boils. Put on the lid, stir everything up, and then turn the heat down so that the liquid is just simmering in the pot. You don't want it boiling over or anything. Stir the soup about once an hour. Let the soup cook until the chicken falls off the bone (probably 2 hours).

When the soup is done, remove from heat.

-Take out the chicken and place on a plate to cool.

-while chicken is cooling, return the soup to the stove and put on high heat.

-Taste the soup. Add more salt if you like. If the soup is very strong, you can add another 1.5 cups of water

-wash and peel the potatoes, and then chop into big chunks.

-add potatoes to the soup and let boil until the potatoes are very soft (about 15 minutes.)

-when potatoes are done, take the soup off the heat.

When chicken pieces have cooled enough to handle, remove the skin, and all the bones and gristle. Take the remaining chicken and add back to your soup.

-If using a hand-held whizzer, just take the whizzer to the pot and whiz up everything until you get a really creamy consistency. It should almost look like porridge.

-if you are using a blender, then blend small batches of the soup to the consistency of porridge.

In the end you'll have a creamy, hearty and delicious soup that is very easy to heat up, very easy to digest, and simple to freeze and take with you for work, etc. I know it will sound crazy, but I highly recommend eating a bowl of this for every single meal for a couple of days to give your digestive system a rest. It is great for breakfast. You can heat it up in a big coffee mug if you like. And you can have a serving every 2-3 hours if you feel hungry. I like to drizzle a little bit of olive oil on the soup just before I eat it. You may also add more salt if you like. Just don't add any other spices or seasonings.

That's it. If you don't like potatoes or can't digest them, then you can leave out the potatoes. In a separate pot, make about 4 cups of gluten-free rice (not instant). When done, just add it to the soup and blend as per the instructions above.

I hope this helps.

melmak5 Contributor

gabby - thanks for the recipe

I FINALLY was able to schedule a food allergy test. Not that I want to eliminate another food from my diet, but I did realize I have been eating more nuts than usual. Maybe thats it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
gabby - thanks for the recipe

I FINALLY was able to schedule a food allergy test. Not that I want to eliminate another food from my diet, but I did realize I have been eating more nuts than usual. Maybe thats it.

So glad to hear you were at last able to get an appointment. It is quite a process but for me it was a lifesaver. I hope it helps you as much as it did me. It was the way I was finally diagnosed so I am a firm believer in the elimination process. Please hang in there and I hope you are getting some relief soon.

NoGluGirl Contributor

Dear ENF,

Thank you for the information. :) I have done a lot of research on serotonin. Neurotransmitters are often overlooked.

In all truth, just about everyone in this country probably has a shortage, due to the high amount of transfats and sugar in the diet. The SSRIs are not a good thing to take. Side-effects are bad, and they are highly addictive and dangerous. I am glad you posted about the 5-HTP and L-Theanine.

Dear gabby,

I am so glad you put this recipe up! This will be good on the days I have a rough time. My system is quite frail from yeast, and I could also have Lyme. Glutenings require Promethazine, due to a violent reaction. I have to keep it on hand, just in case.

Dear Kristina,

I know exactly how you feel. Doctors are so stupid! HUGS! I still am dealing with that off and on with physicians. I told them "No more pills!" :angry: I cannot blame you for not wanting to take muscle relaxers. I actually deal with pain better than being drugged. I did not even take any pills after my gallbladder surgery. The gas was actually the worst of it for a few days afterward.

There are neurotransmitter tests you can have done. Donna on the OMG Thread is getting hers done. It can disturb sleep and all kinds of things. You might want to go back on there to ask her about it. Or, PM dlp252. I am sure she would be glad to help.

The allergy testing is a good idea. Maybe some answers will finally be revealed! I actually feel a rotation diet is a smart thing to try. Since you are already keeping a food journal, that will be pretty easy. I do believe you could have a yeast problem as well as a gallbladder issue. You mentioned eating more nuts than usual. They are high in fat, and may irritate the gallbladder. If you ate peanuts, since they are legumes, that may be the trouble.

Sincerely,

Jin

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.