Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free For A Month And A Half, Casein Free For 2 Weeks...

Panopticism

Recommended Posts

Panopticism Rookie
Panopticism
Posted

Is it normal to still have the same bloating and cramping on a daily basis even after eliminating both gluten and casein? My diet consists of fruits, vegetables, chicken, occasionally turkey and fish and plenty of corn. Sometimes I eat nuts and seeds. How much of this is normal? My diarrhea went away almost immediately after eliminating gluten, but bloating and gas still. What's the deal here?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


stargazer Rookie
stargazer
Posted

Maybe you are having a reaction to corn. I also have a problem with dairy and when I accidentally eat some, I get really bloated and have lots of gas that lasts for probably a week and a half to two weeks sometimes. The bloating and gas then goes away. Maybe the casein hasn't completely cleared out yet.

mommyagain Explorer
mommyagain
Posted

What form is your "plenty of corn" in? Some people have problems digesting whole corn kernals, but no problems with corn that's been mashed up. For instance, I can eat corn chips and corn tortillas til they come out my ears... but if I'm eating corn on the cob, I need to limit myself to 1 ear or I have problems. I think that it may have to do with how damaged our intestines are due to the gluten. Anything that is "difficult" to break down causes problems.

I realize that you're probably trying to use corn as your carbs, but you may want to eliminate the corn for a few days, try substituting rice or potatoes.

Panopticism Rookie
Panopticism
Posted
  • Author

I eat a lot of Gluten Free tortilla chips, under the brand name "Go-Mex." I also eat pop corn, popped without oil and not buttered. I bread chicken and tilapia/haddock/halibut with corn flour once or twice a week. I do not eat a lot of corn on the cob or canned corn, because it tends to not feel so good.

I do eat a fair bit of rice and potatoes, too. I guess I forgot about them. Rice seems to be one of the few things I can eat any time without having some section of my digestive tract pissed off at me.

nora-n Rookie
nora-n
Posted

I have read a lot of postings about people having problems with fruit, the fruit sugar.

You might want to look it up on the internet. Bloating is one of the symptoms.

Also, many celiacs have problems with fiber (roughage) in the beginning of a gluten-free diet.

This is because the villi are damaged.

mftnchn Explorer
mftnchn
Posted

It is possible that it is just taking awhile to fully resolve. Remember it takes adults 1-2 years to heal after going gluten-free.

It is also possible that you have other food intolerances which is common for celiacs. For some these seem to eventually resolve. For others, they don't. It is very individual.

Your confusion is normal, we all have to feel our way along. Lots of people can relate.

confusedks Enthusiast
confusedks
Posted

I think you need to give casein free more time. Also, are you sure your gluten-free? New toaster, new pots and pans, dedicated toaster? If you do, ignore the suggestions, but just a thought.

Kassandra

Also, soy may be a problem.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Panopticism Rookie
Panopticism
Posted
  • Author

I could do with a new set of pots and pans and I don't use the toaster at all. Thanks for the tip.

mftnchn Explorer
mftnchn
Posted

The issue with pots and pans is what kind do you have? It they have porous or scratched surfaces that gluten could stick to, you might be having a problem.

Also what about your personal care products?

Are others in your house eating gluten, if so what precautions are you taking?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748
    dcarter1682
    Newest Member
    dcarter1682
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.