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Don't Believe It

Carolina Girl

By Carolina Girl
in Coping with Celiac Disease

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Carolina Girl Newbie
Carolina Girl
Posted

I was told on Monday of this week that I have a classic case of Celiac Spure but I find it hard to believe. I had diaherria for five months but when my regular physician changed my blood pressure meds the diaherria stopped. Gastro doctor did colonscopy and endoscopy and said that the picutres show classic Celiac Sprue. I have NO symptons - none. He wants me to go on a gluten free diet and have my adult children tested for Celia. No one else in my family has ever have Celiac or had any symptons of Celiac. The doctor told me that I could get a second opinion but that he would guarantee that the second opinion would also be Celiac. Am I just being stubborn or what?

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Jestgar Rising Star
Jestgar
Posted

If you want to be sure, then get the second opinion. It won't hurt, and maybe it will hep convince you one way or the other.

lmvrbaby Newbie
lmvrbaby
Posted

I too had absolutely no symptoms, not even the D. I ended up with gall bladder problems and through all of that testing I was told I had it from the biopsy that was done. Later I had the blood work done to confirm what the biopsy had shown. Some people have no symptoms until something else happens. I guess it depends on the person. Also no one else in my family has nor heard of Celiac until I was diagnosed. Now 3 of my 4 boys have been tested and only the oldest who is also diabetic has it. So good luck and get the second opinion. Not all doctors are right at first chance.

happygirl Collaborator
happygirl
Posted

You don't need symptoms to have Celiac. Symptoms aren't what Celiac is. Celiac is defined by the damage to the villi by the presence of gluten.

Open Original Shared Link is a good site with many resources. It is one of the best Celiac practices in the country.

"Characteristics of celiac disease

It is unclear whether celiac disease is an autoimmune disease or an inflammatory condition with autoimmune aspects. The clinical classification of celiac disease is based on the presence of gastrointestinal symptoms. Symptomatic, active or classical celiac disease refers to presentations with diarrhea, with or without malabsorption, whereas in asymptomatic or silent celiac disease gastrointestinal symptoms are lacking or not prominent even though extra-intestinal symptoms may be present. The majority of individuals with celiac disease are considered to have the silent form."

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    • DebD5
      Curious if I should quit my job

      By DebD5 · Posted

      I 100% believe if you were sticking gluten items, especially flour, and breathed it in you could be glutened. I’m a celiac for almost 30 years. For the first ten years as a celiac I’d help my polish family make pierogis at Christmas time. I would only cook them at the stove and I didn’t touch anything with my hands using spoons. But the flour is in the air. And I’d get violently ill for 1-2 weeks after the last few years I did it. Wearing a back is a great suggestion and washing your clothes and showering when you get home. Good luck. And I’m so sorry your parents are emotionally supporting you. 
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    • Scott Adams
      Curious if I should quit my job

      By Scott Adams · Posted

      Wishing you lots of luck--let us know how it turns out!
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