Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cross Contamination


frec

Recommended Posts

frec Contributor

I was diagnosed five years ago, but I only discovered this forum recently. I am delighted, because I've accumulated a lot of questions that doctors sure couldn't answer. A lot of you write about cross contamination. How careful do I have to be? I am single, so there is no problem at home. What about eating at a friend's house? They cook for me on dishes that often contain wheat, but isn't washing enough to keep me safe? What about eating fried eggs or potatoes at a restaurant that could be making pancakes on the same grill? I don't seem to react to either of these situations but maybe I'm damaging myself and don't know it? I don't want to get paranoid.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Frec--Do you react when glutened? If you are the type who doesn't know when they have been glutened, then yes, you may be getting cross contaminated and not knowing it, but, if you do react when glutened and you are not reacting, then you must have friends who are watching out for you and a safe restuarant to eat at--good for you!

If you are a non-reactive celiac, then you may need to rethink things.

frec Contributor

I definitely react, but (judging by what I've read on the forum) not as violently as many celiacs. I guess my question is, do other celiacs know they react to those situations? I have so many other food intolerances (IgG mediated) with delayed reactions that I am usually not sure what caused me to get sick.

jewi0008 Contributor
I definitely react, but (judging by what I've read on the forum) not as violently as many celiacs. I guess my question is, do other celiacs know they react to those situations? I have so many other food intolerances (IgG mediated) with delayed reactions that I am usually not sure what caused me to get sick.

This is my same EXACT problem, frec! I have so many other food intolerances as well and they are typically delayed, so I can never know if it's CC or just another food intolerance! uggghhh...so frustrating!

kenlove Rising Star

It's been almost 2 years since I was diagnosed celiac ater 6 months of misery and 3 hospital stays. Celiac is not that common in Hawaii or Japan where I spend a lot of time. I do find cross contamination a big problem here and have to be extremely paranoid. When I'm not I break out with DH within 30 minutes or so. Makes it a pain to eat out even at my friends places since I hate to ask them to have to do something special although some do. My own pan or they have top clean a section of grill.

Having been trained as a chef and active witth the chefs group in Kona, I can fnd some good places if we dont cook at home.

I also have to be careful when in kitchens, I teach a class at the culiinary school on tropical fruit but will no longer go into the kitchen there if its the same day as the bread class. Just too much flour in the air and I can feel it within an hour.

Last week at the farm bureau annual dinner I could eat, not becasue they didnt have some gluten-free foods but becasue I watched people using the same tongs from soy sauce laden fish with lettuce or steaks and roasted veggies. Just a few drops of wheat soy sauce sets off a reaction. So, cross contamination is a real issue for me.

Ken

I was diagnosed five years ago, but I only discovered this forum recently. I am delighted, because I've accumulated a lot of questions that doctors sure couldn't answer. A lot of you write about cross contamination. How careful do I have to be? I am single, so there is no problem at home. What about eating at a friend's house? They cook for me on dishes that often contain wheat, but isn't washing enough to keep me safe? What about eating fried eggs or potatoes at a restaurant that could be making pancakes on the same grill? I don't seem to react to either of these situations but maybe I'm damaging myself and don't know it? I don't want to get paranoid.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,140
    • Most Online (within 30 mins)
      7,748

    KP009
    Newest Member
    KP009
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.