Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Get The Night Sweats?


Janeti

Recommended Posts

Janeti Apprentice

The more I find out about Celiacs, the more scared I get. The past couple of days, I haven't been feeling well. Every once in a while I wake up sweating. Does this happen to anyone? And also can this be from a fungal overgrowth? Janet


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nmw Newbie

Night sweats are common in those w/ gluten issues. Mine lessened considerably since going gluten-free. They can also be hormone-related.

mtraezme Newbie

I used to get them all the time, but now that I've cut out the gluten, I haven't had any.

VioletBlue Contributor

I only get them now if I've been accidentally glutened. And oddly enough, since someone mentioned hormones, all the other signs of menopause have lessened significantly since going gluten free.

Janeti Apprentice

I ate those darned mini reeses peanut butter cups that oddly enough have gluten in it. I have been sick for 3 days. I can't believe what 2 little mouthfuls have done to me. The nightsweats also happened the first night that I was glutened with the candy, and a little bit the next night too. Now I have muscle pain. It seems that everytime I accidently get glutened, the reactions get worse and worse. Is it the same with anyone? Janet

~alex~ Explorer

Low blood sugar can cause night sweats. If you're sick with vomiting and/or diarrhea from a glutening or not eating much because you don't feel well, that could lower your blood sugar and cause the night sweats.

Vykt0r Rookie

....

I hate night sweats....

Yes, I get them every time I consume something with gluten. Wow, I didn't know other people got that too...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Joni63 Collaborator

I got them frequently before being diagnosed, but none since going gluten free. My Dr. and I both thought it was perimenopause, but it was definately from gluten.

JNBunnie1 Community Regular
I ate those darned mini reeses peanut butter cups that oddly enough have gluten in it. I have been sick for 3 days. I can't believe what 2 little mouthfuls have done to me. The nightsweats also happened the first night that I was glutened with the candy, and a little bit the next night too. Now I have muscle pain. It seems that everytime I accidently get glutened, the reactions get worse and worse. Is it the same with anyone? Janet

I used to get night sweats too. Also, even just a year ago I would get glutened and it would only last a few days, maybe a headache and some D. Now, it lasts a whole month! And I get symptoms I never had when I was sick, like I become lactose intolerant for a little while when I've been glutened, and that never happened before, usually dairy is soothing to me. So yeah, it definitely gets worse the longer you go.

wowzer Community Regular

I got the night sweats before going gluten free. They were one of the symptoms that went away when I went gluten free. I've been having them for the last 3 or 4 weeks. I'm not sure if it could be menopause now. I quit taking estradiol last March when they couldn't guarantee the generic form was gluten free. I didn't have any symptoms when I went off of them. I'm half wondering if I was even absorbing the pills. I did go to the doctor on Saturday and have a sinus and upper respitory infection. So it could be that too I suppose.

Centa Newbie

My problems with wheat and milk showed up during the time in which I was perimenopausal, so it has been impossible to know which was setting off night sweats.

I had a very definite correlation between night sweats and being fatigued, however. That could trace back either to celiac or to menopause issues, or to both at the same time.

When I got rest I wouldn't have sweats, when I was fatigued (I have a job that keeps me near that) I would tend to have them.

One thing that definitely helped me get deeper sleep, and so reduce the sweating was getting exercise, especially in the morning. There were some news articles about the correlation between better sleep and exercise in the first half of the day, I tried it, and it did have an effect for me.

But the sweats could have been due to menopausal issues, not the celiac. I've been as strictly off wheat as I can be and am a year and a half into menopause, and don't have sweats....occasionally a "warmth surge" at night, where I have to kick all the covers off, and know that I'm hot, when I'm overtired, but that's it.

I had the same correlation between fatigue and hot flashes as well, during the time I was going through the change. I especially "flashed" and had night sweats when I was coming down with something, like a cold or the flu.

hathor Contributor

I've gone through menopause (had the 1 year anniversary of my last period in September). I'm still getting bad night sweats and some hot flashes during the day. I was hopeful it was a function of inflammatory responses to food intolerances. I'd read that estrogen acts as an antiinflammatory; once it goes away, the body relies on a difference chemical which isn't as strong and whose levels are at their lowest in the middle of the night.

So, I wonder if I'm still reacting to assorted glutenings I've had since going gluten-free at the beginning of the year. Or if I'm intolerant to something else that is still in my diet. (Yes, I've tried a food diary. Doesn't seem to make any difference what I eat. I get the night sweats all the time now).

Can gluten mess up your hormones for a long period?

I had hoped going off the soy would help, and at first it seemed to. But now I'm back where I was.

Any ideas as to the most logical thing to take out of my diet now to see if that does it?

UR Groovy Explorer

Hmmmm...

I started waking up in the early morning (like 4am) totally sweating maybe a month ago. How weird. I'm only 40. I wonder if I'm perimenopausal - my cycle has been really off lately.

I'll be watching this thread - night sweats are totally new for me.

I've been gluten-free for 10 months, so it can't be gluten.

Sorry to be "all about me" on this post. It's just very strange.

sickchick Community Regular

yes...

nmw Newbie
I'm only 40. I wonder if I'm perimenopausal - my cycle has been really off lately.

I'll be watching this thread - night sweats are totally new for me.

I've been gluten-free for 10 months, so it can't be gluten.

40 can be a very normal time to start menopause. Menopause can take up to 10 years to fully manifest, and periods stop. You are considered post-menopausal when your periods have completely ceased for one year.

All of my gluten issues and menopausal symptoms hit hard right when I turned 40. Because it all started at once, my doctor and I assumed it was all menopause-related. Over a year later I identified that gluten was a major problem, got rid of it, and my meno symptoms calmed down significantly.

If you haven't seen your gyno lately, now would be a good time to go. Weird periods and night sweats are worth mentioning.

Renee864 Newbie

Yes!

Since I've been gluten free when I accidently eat something with gluten in it my reactions are pretty severe. I know it's frustrating sometimes. You have to be so careful and sometimes its so hard! I mostly buy products that say "gluten free"

I ate those darned mini reeses peanut butter cups that oddly enough have gluten in it. I have been sick for 3 days. I can't believe what 2 little mouthfuls have done to me. The nightsweats also happened the first night that I was glutened with the candy, and a little bit the next night too. Now I have muscle pain. It seems that everytime I accidently get glutened, the reactions get worse and worse. Is it the same with anyone? Janet
tmk Explorer
I ate those darned mini reeses peanut butter cups that oddly enough have gluten in it.

sorry to be off subject here -- these have gluten in it? i thought reeses pb cups were gluten-free? so the ones in moose track ice cream have gluten in too??!

to be more on subject -- i get night sweats ALL the time -- not sure what that's about.

Anyways -- thanks for the info on the reeses!! :)

Calle Rookie
Hmmmm...

I started waking up in the early morning (like 4am) totally sweating maybe a month ago. How weird. I'm only 40. I wonder if I'm perimenopausal - my cycle has been really off lately.

I'll be watching this thread - night sweats are totally new for me.

I've been gluten-free for 10 months, so it can't be gluten.

Sorry to be "all about me" on this post. It's just very strange.

I'm 45 and I'm in perimenopause. My cycle is all over the place too. I know this is getting into a whole other topic, but for the past 1 1/2 years I have been using bioidentical hormones (natural) to help with menopause. When your in menopause most of the symptoms you get are because of progesterone deficencies. It's all about balancing the hormones and it can be tricky. I'm constantly tweaking the creams I use. I too get warm at night and have to throw the covers off. I used to get night sweats years ago, but I don't any longer.

Janeti Apprentice

Hello TMK,

I called Hersheys, and they said that the normal sized ones are gluten free, but not the minis. That afternoon when I ate only 2, a couple of hours later I had the nausea, that night I woke up sweating, and the next day in the bathroom with the big D....hardly worth it over a little bite of chocolate. That was last Wednesday, just last night I started to feel a little better. Crazy, right? :o

tmk Explorer
I called Hersheys, and they said that the normal sized ones are gluten free, but not the minis.

wow -- thanks for that info -- i would've just assumed b/c the large ones were gluten-free, so were the small ones -- that's so weird that one would have it and not the other! hope you're feeling better soon!

thanks again! :)

UR Groovy Explorer
40 can be a very normal time to start menopause.

...

If you haven't seen your gyno lately, now would be a good time to go. Weird periods and night sweats are worth mentioning.

I'm 45 and I'm in perimenopause.

...

Thanks.

I'm thinking now that this is probable. I'll check it out with my doc, but I've also decided to make an appointment with a holistic practitioner in the next couple months about other stuff too. We'll see what they come up with.

Thanks again.

grommet Newbie

I too had terrible night sweats and itching. Used to make myself bleed sometimes in the night with scratching my legs in my sleep.

I too thought it was perimenopause along with other things that were happening. All gone now I'm gluten-free.

(undiagnosed)

A tiny tiny bit of cross contamination means its like taking a tranquiliser at night but any more than that and the sweats return. Twitchy legs at bed time first (used to think it was caffeine) then the night sweats. Not too bad sometimes but a nightmare when you've put the fake tan on!

mftnchn Explorer

I'm intrigued that night sweats can be celiac related. I get them too, but not too often now. I thought it was/is hormone related. I am starting the menopause track, am now irregular.

Just another possibility: lyme disease. Night sweats are very much a part of the symptom spectrum, especially with babesia. Check out the lyme disease thread which has a good symptom list, as you might want to eliminate this possibility. I had a period of time early on during lyme treatment where I had a lot of night sweats.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,856
    • Most Online (within 30 mins)
      7,748

    Sonya Haskin
    Newest Member
    Sonya Haskin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.