Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Side Effects From Going Gf?


OhNoes

Recommended Posts

OhNoes Rookie

I've been gluten-free (aside from two accidents, er.. "learning experiences") for 12 days now and am wondering if the stuff I've been experiencing is fairly typical.

Aside from GI symptoms lessening (YAY!) and my skin looking a little better, some things about going gluten-free have not been pleasant. SHEESH! For all the hard work of starting a gluten-free diet, I guess I was expecting rainbows to appear and birds to sing every morning, for crying out loud!

Today I had no appetite at all (I'm 27 and that's the 4th time in my life to have ever lost my appetite) and even less energy. I was in bed most of the day. Also, I used to be able to go to the gym for a couple of hours at a time, but since going gluten-free it's like my body's attention is somewhere else and I'm not able to work out but 30-45 min before I'm ready to pass out and/or throw up. My menstrual cycle's going crazy too (more than usual).

Sorry if any of that's TMI, but I'm feeling not a little lost in this new world and was hoping some of you could clear up some of this confusion I'm feeling. What did you experience after going gluten-free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nadtorious Rookie

The first couple of weeks were great-minus the whole "oh my gosh, I have a disease" aspect. Then I started having accidents a lot. It was really frustrating the first 6 months to year. I was anemic, so I would get tired all the time-any strenuous activity for more than 15 minutes and I'd need a snack (and then another 15 minutes later). I didn't get my period for almost 4 years, and it started within a week of going gluten free. My lymph nodes stopped being swollen all the time. I became lactose intolerant. I got really depressed, then better.

Looking back, the first year of diagnosis really sucked, but I guess we all go through it. Stick in there---After a while your body will heal and being gluten free won't be the big deal it used to be.....

Take care-

Nadia ;)

pixiegirl Enthusiast

For my first week of gluten-free (i've only been gluten-free for 4 weeks now) I was exhausted but I wasn't eating any carbs then either.... now I've added back rice and potatoes and such and that seems to have upped my energy level some.

I think you have to remind yourself that this is a process, most of us ate gluten for years when we shouldn't have so I feel it will take a while for me to feel totally wonderful again. However for me, the intestional symptoms were so bad that just that alone being better is enough for me. For the past 8 years I swear I've spent half my life in the bathroom. I'm done with that now!!

Susan

FreyaUSA Contributor

When first going gluten-free, many people tend to just cut out all the gluten containing foods, not necessarily replacing them with anything. What you're describing, the energy loss, tiredness, etc., is very common for people who cut carbs from their diets. You're not giving your body the easy energy it's used to! Adding to that, with celiac disease, you probably aren't digesting foods very well in first place. You need to give yourself something to replace the breads and such that you are used to feeding your body (especially when exercising) to keep your energy levels up. If you're not interested in simply replacing gluten filled foods with non-gluten replacements (expensive, btw, and not always satisfying) try changing your diet somewhat. Eat more beans of all kinds (beans seem to fill the same nitch that grains do in filling and providing energy.) If you're not interested in low carbing it :P, you will need to find something your body can use to replace the carbs you are no longer eating.

Maybe there is a forum for people who exercise a great deal that also follow a gluten-free diet that may have menu suggestions or pre, during and post exercise food ideas?

Good luck!

Nadtorious Rookie

I exercise quite a bit-started right around the time I was diagnosed-and the best thing I've found is white rice and a little olive oil an hour or two before activity, plus some kind of fruit or juice before and/or during. Just being diagnosed, you're probably still very anemic-have you gotten blood tests done at all? Anemia will sap your energy pretty quick. Rice might bug your tummy a bit in the beginning-that's why I always ate it with a little oil. Being freshly diagnosed, you also might not be able to digest fats and complex carbohydrates well either, or tolerate lots of high fiber foods. I know a lot of people who have had success with digestive enzymes (they help your body break down a lot of nutrients and will help with bloating). Hope this helps! Staying active will help you tons with your recovery!

Nadia B)

OhNoes Rookie

I'm pretty sure I'm not digesting fats well (or much of anything else for that matter). The anemia thing might be something to look into as I've always tended toward that. Lately it seems a lot of things bother my stomach so I either drink water, eat rice or bland veggies.

I ate a metric ton of carbs before (almost always complex tho), so maybe what I'm feeling is, like you said Freya, coming down off of that.

I started taking raw sauerkraut to help put good bacteria back into the system. We'll see what happens...

Thanks!

kvogt Rookie

Be careful about adding a lot of exotic foods to your diet. They can cause you discomfort and you could perhaps have food reactions to them, too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



saraxi1 Newbie

The most noticeable side effect I experienced was my sugar cravings going through the roof! I have a sweet tooth to begin with. When I cut out all the gluten products (i.e. carbs, bread) my body started to crave sugar like I never have before!

It is most definitely a process. You body has to balance itself out and you have to balance out your diet. It took me almost 6 months before I started to really eat a balanced diet again. I had to force myself to find alternative foods and new favorites. I have to remember to eat a balanced diet.

The other thing that I have found to be the best help is exercise!! Working out helps to flush the system and regulate things. I feel SO differently when I am working out regularly versus when I am not.

I have been gluten-free for a little over a year and I am still learning what works for me. It seems that it is different for each individual. I reccommend cutting out as much as you can and working to re-introduce things one at a time. It's not fun to guess, but after a while you will balance out and be eating and feeling better.

judy05 Apprentice

Hi,

It took me 9 months to actually start feeling better.

Because I was diagnosed in my early 60's, I had been

sick for a long time. Also I stubbornly refused to stop

dairy, I kept trying soy, rice, goat's milk. When I

finally gave up dairy I started to really feel better,

no more joint pain, sinus headaches, foggy head feeling.

Keep at it, there is a light at the end of the tunnel, not

exactly a rainbow but a light. You do feel worse instead

of better in the beginning.

OhNoes Rookie

REALLY good to hear. Thank you!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.