Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated With My 9 Month Old Daughters Test Results


Krystens mummy

Recommended Posts

Krystens mummy Enthusiast

I hope someone out there can give me more of an understanding about the relevence of celiac blood test results. My nine month old daughter has had atopic eczema since we introduced wheat and gluten. she also flared up when we gave her food with thickeners in it. She has had some weight loss that the doctors are not too concerned about but also used to poo six times a day and they were a bit on the mushy side. She was always an irritable child and also had a type of itchy eczema that came up on her tummy that looked like chickenpox. We pulled all of the gluten out of her diet and the results are remarkable. She poos only once or twice a day now, they are a lot more solid she is happier within herself and the eczema is gone. We took her to a paediatrician who took some blood and the tests came back negative I am so frustrated I just want to know whats going on. We also tried her on wheat free rye bread and there was still a reaction so it's definately not just a wheat allergy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

Test results can be unreliable in babies and young children, simply because of their immature immune system. You have a positive response to removing gluten from the diet. At this age - that's good enough for now. So many choices - sweet potatoe, potatoe, rice, carrots, chicken blended in the blender. I never fed my kids dairy or wheat until they were older....so I have no experience with babies reacting to food. They got sick as older children.

You dont need permission or a test result to go gluten free.

Give your baby what makes her have normal poops ;)

Sandy

Nancym Enthusiast

They're unreliable in adults too.

Ursa Major Collaborator

As previously mentioned, those blood tests are extremely unreliable in children under six, and especially in babies. The best test is the diet response. You know that gluten is making her sick, so just don't give it to her, and you'll have a happy, healthy baby!

I also wouldn't give her any dairy for a long time yet, and the same goes for soy.

Eczema is ALWAYS caused by food intolerances. If it cleared up on a gluten-free diet, and her poops went to normal, you definitely have your answer. You don't need a doctor's permission to change your own child's diet, especially because the gluten-free diet is a perfectly safe, healthy diet.

vanillazeis Rookie

agreed with everyone, celiac testing is extremely unreliable. I also dont feed my babies any of the top allergens (wheat,dairy, soy, eggs, fish, shellfish, peanuts or treenuts) before one. The last 4 i listed my kiddos allergist recommends waiting until 3. You might consider allergy testing, i've seen many kiddos that are allergic to wheat, rye and barley, but not oats. Do you or your husband have celiac? I was just wondering what makes you suspect celiac in a 9 month old. When my almost 3 year old developed symptoms i thought it was a peanut allergy, because she always got sick after i fed her peanut butter sandwiches. Turned out to be celiac. On my 9 month old my 3 year olds gi dr told me to introduce gluten at 12 months, we will blood test him at 18 months, and if it comes back negative we will retest anytime i feel like he has symptoms. my dr told me that with out a doubt my 9 month olds test would come back negative if we did it right now. you need atleast 6 months of eating gluten in such a little one. Hope that helps, good luck, dont be frustrated, your the mom and like everyone says, you can make her gluten free if you want!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,912
    • Most Online (within 30 mins)
      7,748

    westman3d
    Newest Member
    westman3d
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.