Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Introduction And Some Questions


tallfran

Recommended Posts

tallfran Apprentice

Hi Everyone,

I'm a 61 year old female who is almost positive that I have Celiac Disease. I've been blaming my gastic problems on other things for a long time -- mainly on Lactose and Fat. I don't have D per se, as in multiple times per day, but after nearly any meal, I have to get to the bathroom within 20 minutes or so for an exlosive, watery stool.

I saw the doctor a couple of months ago for extreme fatigue and weight loss. She did a CBC, blood sugar, and thyroid panel. All were pretty much normal.

I'm just under 6 feet in height and my current weight is 145, which is a little low. I did a long distance hike in 2006 and my weight at that time dropped from 158 to 141, so I have regained a little of the weight I lost hiking, but not as much as I would like. I got up to about 150, and then started losing again.

My parents are both deceased now, but I suspect they both had celiac as well. Dad was Type 1 diabetic, Mom had lots of gastric complaints, and both were quite thin. I have one sister, who has had a thyroidectomy, not certain of the reason.

My medical history includes severe headaches, GERD, peripheral neuropathy, ADD, removal of gall bladder, multiple canker sores, polymyalgia rheumatica, poor balance, extremely poor night vision, optic migraine, arthritis, and (surprise, surprise) depression.

I just got back from Walmart where I grocery shopped, looking for gluten-free items. I did find gluten-free pastas and soy sauce. They even had the gluten-free beer! I'm not much of a beer drinker, but I did buy a six-pack and it tastes like any other beer to me. I was told they had gluten-free bread, but they were out of it. I don't plan on going gluten-free until after my tests, but thought I'd start getting ready because even if the tests are negative, I want to try the gluten free diet to see if it helps.

Any responses or suggestions highly welcome!

Fran


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfpaperdoll Rookie

welcome Fran!!! I think all your symptoms point to a gluten problem. I think you are very smart to go gluten free. What type of tests are you going to get?

I am 60 & have never felt younger or healthier !!!!

tallfran Apprentice

Thanks for your reply!

She doesn't know why I made the appointment yet; I just spoke with the receptionist. I plan to take my copy of Peter Green's book, just in case she knows nothing about celiac, and I'll request the full celiac panel. I also hope she'll refer me to a GI doc so that if the blood comes back positive, I won't lose too much time before the biopsy. I don't know if my insurance will pay for the biopsy if the blood tests come back negative...

I do need to load up on gluten. I've never been much of a bread eater, except specialty breads like San Francisco sourdough, or the Italian bread at Carrabba's that you dip in the Olive Oil. I do love pasta though, and biscuits and gravy. :(

Fran

buffettbride Enthusiast

Fran,

I hope you finally find out what has been ailing you. Perhaps you could get your PCP to refer you straight to a GI for the blood and endoscopy tests? Might have a better chance of running them concurrently. With my daughter, they drew blood and did the endoscopy on the same day. We got the results on the same day, and were complimentary in terms of diagnosing her as Celiac.

Either way, after the tests, you can try gluten-free to see if it makes you feel better! You will find a wealth of information here--this site is really the best resource I've found.

Take care!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,895
    • Most Online (within 30 mins)
      7,748

    MLB1970
    Newest Member
    MLB1970
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.