Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question (request) Re Aspergers


Canadian Karen

Recommended Posts

Canadian Karen Community Regular

A poster on the parenting forum I belong to has posted this question:

Hi all!

Just wondering if anyone has some good book titles on aspergers. I was just told about one called the Asperger answer book - by Susan Ashley - i hear some very specifec questions are answered, covering a variety of things. I also heard about a book that has a group of different families with kids(s) on the spectrum telling their stories, and what they do, etc.- it may be called living with autism ? - anyone have any info ?

I know there are several Asperger's experts on here. Could anybody suggest any books?

Thanks!

Hugs

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Karen, ya know Ursa's one of the experts here. I am sure she can be helpful.

Canadian Karen Community Regular

Yeah, she's the main one I was thinking of.....

:D

Ursa Major Collaborator

Okay, fine, here I am! :rolleyes:

Most of the books I have are about/for adults with AS, as I am the one with it, and my kids may have some tendencies, but none of them are even close to actually having AS.

I'll list all of the books I have (except for one, which I decidedly didn't like and don't think is helpful).

Asperger Syndrome and Sensory Issues, Practical Solutions for Making Sense of the World!, by Brenda Smith Myles, Katherine Tascott Cook, Nancy E Miller, Louann Rinner and Lisa A. Robbins. Very good book that helps understand the sensory problems people with AS experience.

Children, Youth and Adults with Asperger Syndrome, Integrating Multiple Perspectives. Edited by Kevin P. Stoddart (who wrote one section as well as editing, and is the one who diagnosed me). It has about 25 different contributors, and therefore approaches AS from different perspectives.

The Genesis of Artistic Creativity, Asperger's Syndrome and the Arts, by Michael Fitzgerald. Showing that people with AS are some of the most creative people on this planet when it comes to writing, inventing, painting, music etc., and giving evidence that would 'diagnose' many great people today. This book shows the strengths of Aspies, rather than always harping about their 'deficiencies' (I call it 'being different' myself, too bad that many people don't like people that don't fit their mold, and they think they need to fix them).

Born on the Wrong Planet, by Erika Hammerschmidt. Autobiography of a young woman with AS and TS (Tourette Syndrome), telling about her problems and triumphs. Excellent read and eye opening.

Pretending to be Normal, Living with Asperger's Syndrome, by Liane Holliday Willey. Interesting read, even though she isn't really autistic enough to be considering herself an Aspie, as far as I am concerned.

Congratulations! It's Asperger Syndrome, by Jen Birch. I read that and cried, as so many of her awful experiences happened to me too, because of being so naive and not recognizing danger to myself (strangely, I can spot danger for my kids, but I am oblivious to situations that put myself in danger, I simply don't recognize them). This is another autobiography, and definitely worth reading. A real eye opener as well. Open Original Shared Link

Solutions for Adults with Asperger Syndrome, Maximizing the Benefits, Minimizing the Drawbacks, to Achieve Success, by Juanita P. Lovett, PH.D. Very helpful and insightful! And not boring at all.

The Other Half of Asperger Syndrome, A guide to living in an intimate relationship with a partner who has Asperger Syndrome, by Maxine Aston. Invaluable for the open-minded spouse/partner of somebody with AS (too bad my husband is not open minded, and therefore this wasn't helpful to him). An excellent book.

Aspergers in Love, Couple Relationships and Family Affairs, by Maxine Aston. Keeps going where the previous book leaves off, invaluable for couples who have one or both partners with AS.

Asperger Syndrome and Long-Term Relationships, by Ashley Stanford. Amazing book, well worth reading.

In addition, go to Tony Attwood's website for a ton of invaluable information. He is one of the leading experts on AS in the world (he is in Australia). Open Original Shared Link

Also, check out the website of the other leading specialist (this one is in England) Open Original Shared Link

There, that ought to keep you guys busy for a while!

Canadian Karen Community Regular

Thanks Ursa! Your reply was extremely helpful and she was quite thankful!

Hugs

Karen

ravenwoodglass Mentor
Okay, fine, here I am! :rolleyes:

Most of the books I have are about/for adults with AS, as I am the one with it, and my kids may have some tendencies, but none of them are even close to actually having AS.

I'll list all of the books I have (except for one, which I decidedly didn't like and don't think is helpful).

Asperger Syndrome and Sensory Issues, Practical Solutions for Making Sense of the World!, by Brenda Smith Myles, Katherine Tascott Cook, Nancy E Miller, Louann Rinner and Lisa A. Robbins. Very good book that helps understand the sensory problems people with AS experience.

Children, Youth and Adults with Asperger Syndrome, Integrating Multiple Perspectives. Edited by Kevin P. Stoddart (who wrote one section as well as editing, and is the one who diagnosed me). It has about 25 different contributors, and therefore approaches AS from different perspectives.

The Genesis of Artistic Creativity, Asperger's Syndrome and the Arts, by Michael Fitzgerald. Showing that people with AS are some of the most creative people on this planet when it comes to writing, inventing, painting, music etc., and giving evidence that would 'diagnose' many great people today. This book shows the strengths of Aspies, rather than always harping about their 'deficiencies' (I call it 'being different' myself, too bad that many people don't like people that don't fit their mold, and they think they need to fix them).

Born on the Wrong Planet, by Erika Hammerschmidt. Autobiography of a young woman with AS and TS (Tourette Syndrome), telling about her problems and triumphs. Excellent read and eye opening.

Pretending to be Normal, Living with Asperger's Syndrome, by Liane Holliday Willey. Interesting read, even though she isn't really autistic enough to be considering herself an Aspie, as far as I am concerned.

Congratulations! It's Asperger Syndrome, by Jen Birch. I read that and cried, as so many of her awful experiences happened to me too, because of being so naive and not recognizing danger to myself (strangely, I can spot danger for my kids, but I am oblivious to situations that put myself in danger, I simply don't recognize them). This is another autobiography, and definitely worth reading. A real eye opener as well. Open Original Shared Link

Solutions for Adults with Asperger Syndrome, Maximizing the Benefits, Minimizing the Drawbacks, to Achieve Success, by Juanita P. Lovett, PH.D. Very helpful and insightful! And not boring at all.

The Other Half of Asperger Syndrome, A guide to living in an intimate relationship with a partner who has Asperger Syndrome, by Maxine Aston. Invaluable for the open-minded spouse/partner of somebody with AS (too bad my husband is not open minded, and therefore this wasn't helpful to him). An excellent book.

Aspergers in Love, Couple Relationships and Family Affairs, by Maxine Aston. Keeps going where the previous book leaves off, invaluable for couples who have one or both partners with AS.

Asperger Syndrome and Long-Term Relationships, by Ashley Stanford. Amazing book, well worth reading.

In addition, go to Tony Attwood's website for a ton of invaluable information. He is one of the leading experts on AS in the world (he is in Australia). Open Original Shared Link

Also, check out the website of the other leading specialist (this one is in England) Open Original Shared Link

There, that ought to keep you guys busy for a while!

Thanks so much for posting these. I will be picking up the at least a couple of these for myself and my DS. The one on Aspergers and the Arts will be quite valuable for us. My DS is very gifted but he still struggles a great deal. The diet helps an unbelievable amount but as you know it is not a 'cure'. Although some things can be a real struggle, especially in the social world, it does (at least in my family) seem to go with creative abilities that are not something we would want to go away. It would be great if somehow my DS and I could be more comfortable and feel less alone.

  • 3 months later...
stan Newbie

Hi,

I have read the Aspergers answer book and found it very helpful, it covers many practical day to day issues with simple easy to follow ideas and solutions for each. It is written so that it can be used as a reference. I have found myself referring to it for all kinds of situations.

Bon chance

Stan

A poster on the parenting forum I belong to has posted this question:

Hi all!

Just wondering if anyone has some good book titles on aspergers. I was just told about one called the Asperger answer book - by Susan Ashley - i hear some very specifec questions are answered, covering a variety of things. I also heard about a book that has a group of different families with kids(s) on the spectrum telling their stories, and what they do, etc.- it may be called living with autism ? - anyone have any info ?

I know there are several Asperger's experts on here. Could anybody suggest any books?

Thanks!

Hugs

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.