Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Requip?


tallfran

Recommended Posts

tallfran Apprentice

My docter started me on Requip for restless leg syndrome, which she is inclined to think is causing my exhaustion. I just had my labs for Celiac drawn on Friday, and will have an appointment with the GI doc for endoscopy/colonoscopy. I have only taken 3 days of the Requip, and am on the starter pack that starts at low dose and then advances.

I have had terrible bloating, tummy pains, nausea, and heartburn since starting the med, and wonder if anyone else has had a reaction like this. :(

Thanks.

Fran


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest thatchickali

I haven't had a reaction like that, but I would first call the manufacturer and ask if it contains gluten. It is more common in medicines than you would think. If it is gluten free, I seem to recall hearing those could be side effects of the meds. I would talk to your doctor about it. I have restless leg syndrome....it isn't often enough to see a doctor about it but my doctor had already written me a phenergan prescription so when my legs are going crazy and I can't get to sleep, that and a leg rub usually help me. You might be more serious though...

Fiddle-Faddle Community Regular

I would bet that gluten intolerance/celiac disease is causing your restless legs syndrome.

Has your bloodwork come back yet? If it is positive, an endoscopy might be unnecessary, as positive bloodwork is enough for a diagnosis. For that matter, so is dietary rsponse! If you want an endoscopy, though, you need to stay on gluten until that is done (and I wouldn't skip the colonoscopy if you are over 50).

I would not start any meds for restless legs syndrome until you try a gluten-free diet.

#1) A gluten-free diet is FREE

#2 There are no side effects to a gluten-free diet

#3) A gluten-free diet doesn't react with any other meds you might be taking

#4) A gluten-free diet will most likely eliminate the cause of your RLS.

Requip does not eliminate the cause of RLS--it masks symptoms.

At any rate, welcome aboard! There are a ton of people here who are more knowledgeable than most doctors about gluten and the many, many problems it can cause (including RLS). However, I think it's great that your doctor is actually testing you for celiac--maybe you have one of the (few) good ones! :)

ravenwoodglass Mentor
I would bet that gluten intolerance/celiac disease is causing your restless legs syndrome.

Has your bloodwork come back yet? If it is positive, an endoscopy might be unnecessary, as positive bloodwork is enough for a diagnosis. For that matter, so is dietary rsponse! If you want an endoscopy, though, you need to stay on gluten until that is done (and I wouldn't skip the colonoscopy if you are over 50).

I would not start any meds for restless legs syndrome until you try a gluten-free diet.

#1) A gluten-free diet is FREE

#2 There are no side effects to a gluten-free diet

#3) A gluten-free diet doesn't react with any other meds you might be taking

#4) A gluten-free diet will most likely eliminate the cause of your RLS.

Requip does not eliminate the cause of RLS--it masks symptoms.

At any rate, welcome aboard! There are a ton of people here who are more knowledgeable than most doctors about gluten and the many, many problems it can cause (including RLS). However, I think it's great that your doctor is actually testing you for celiac--maybe you have one of the (few) good ones! :)

This poster took the words right out of my mouth so to speak. Celiac can cause a surprising number of neuro issues, restless legs being one of them. Instead of the meds right now perhaps you could get some sublingual B12 (gluten free of course), that may help much more than the drugs and won't cause any side effects. Then when you are done with all the testing you CHOOSE to do get yourself on the diet and I think you may find more relief than any pill could ever give. RLS is a 'new' diagnosis that IMHO is driven by the finding of a new drug that the pharmacompanies want to push, it is another symptom reliever to keep them getting money and does nothing to get to the root of the cause of the problem. It is much better to get rid of the cause if possible rather than just medicate the symptoms until further nerve damage is done and you lose reflexes and control over other bodily functions. There are some of us here that have had our nerve issues medicated for years just to watch our bodies nervous system continue to shut down leaving us with difficulty with walking or bowel and bladder control. Once you get to that point it is very hard to get back.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,192
    • Most Online (within 30 mins)
      7,748

    DenisC
    Newest Member
    DenisC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.