Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Requip?


tallfran

Recommended Posts

tallfran Apprentice

My docter started me on Requip for restless leg syndrome, which she is inclined to think is causing my exhaustion. I just had my labs for Celiac drawn on Friday, and will have an appointment with the GI doc for endoscopy/colonoscopy. I have only taken 3 days of the Requip, and am on the starter pack that starts at low dose and then advances.

I have had terrible bloating, tummy pains, nausea, and heartburn since starting the med, and wonder if anyone else has had a reaction like this. :(

Thanks.

Fran


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest thatchickali

I haven't had a reaction like that, but I would first call the manufacturer and ask if it contains gluten. It is more common in medicines than you would think. If it is gluten free, I seem to recall hearing those could be side effects of the meds. I would talk to your doctor about it. I have restless leg syndrome....it isn't often enough to see a doctor about it but my doctor had already written me a phenergan prescription so when my legs are going crazy and I can't get to sleep, that and a leg rub usually help me. You might be more serious though...

Fiddle-Faddle Community Regular

I would bet that gluten intolerance/celiac disease is causing your restless legs syndrome.

Has your bloodwork come back yet? If it is positive, an endoscopy might be unnecessary, as positive bloodwork is enough for a diagnosis. For that matter, so is dietary rsponse! If you want an endoscopy, though, you need to stay on gluten until that is done (and I wouldn't skip the colonoscopy if you are over 50).

I would not start any meds for restless legs syndrome until you try a gluten-free diet.

#1) A gluten-free diet is FREE

#2 There are no side effects to a gluten-free diet

#3) A gluten-free diet doesn't react with any other meds you might be taking

#4) A gluten-free diet will most likely eliminate the cause of your RLS.

Requip does not eliminate the cause of RLS--it masks symptoms.

At any rate, welcome aboard! There are a ton of people here who are more knowledgeable than most doctors about gluten and the many, many problems it can cause (including RLS). However, I think it's great that your doctor is actually testing you for celiac--maybe you have one of the (few) good ones! :)

ravenwoodglass Mentor
I would bet that gluten intolerance/celiac disease is causing your restless legs syndrome.

Has your bloodwork come back yet? If it is positive, an endoscopy might be unnecessary, as positive bloodwork is enough for a diagnosis. For that matter, so is dietary rsponse! If you want an endoscopy, though, you need to stay on gluten until that is done (and I wouldn't skip the colonoscopy if you are over 50).

I would not start any meds for restless legs syndrome until you try a gluten-free diet.

#1) A gluten-free diet is FREE

#2 There are no side effects to a gluten-free diet

#3) A gluten-free diet doesn't react with any other meds you might be taking

#4) A gluten-free diet will most likely eliminate the cause of your RLS.

Requip does not eliminate the cause of RLS--it masks symptoms.

At any rate, welcome aboard! There are a ton of people here who are more knowledgeable than most doctors about gluten and the many, many problems it can cause (including RLS). However, I think it's great that your doctor is actually testing you for celiac--maybe you have one of the (few) good ones! :)

This poster took the words right out of my mouth so to speak. Celiac can cause a surprising number of neuro issues, restless legs being one of them. Instead of the meds right now perhaps you could get some sublingual B12 (gluten free of course), that may help much more than the drugs and won't cause any side effects. Then when you are done with all the testing you CHOOSE to do get yourself on the diet and I think you may find more relief than any pill could ever give. RLS is a 'new' diagnosis that IMHO is driven by the finding of a new drug that the pharmacompanies want to push, it is another symptom reliever to keep them getting money and does nothing to get to the root of the cause of the problem. It is much better to get rid of the cause if possible rather than just medicate the symptoms until further nerve damage is done and you lose reflexes and control over other bodily functions. There are some of us here that have had our nerve issues medicated for years just to watch our bodies nervous system continue to shut down leaving us with difficulty with walking or bowel and bladder control. Once you get to that point it is very hard to get back.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,904
    • Most Online (within 30 mins)
      7,748

    AnneSN
    Newest Member
    AnneSN
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.