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I Dont Understand

Shotzy1313

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Shotzy1313 Apprentice
Shotzy1313
Posted

I just came back with a positive blood work and now i am going for my biopsy at the end of the month. Anyway, I have been doing a lot of reading on these forums and educating myself about this disease because most likely I have it with all my symptoms and blood test.

My question I don

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buffettbride Enthusiast
buffettbride
Posted

Celiacs by nature are very food-sensitive. Because the gluten has unthoughtfully chopped the tips of your villi from your small intestine, it is very hard for your body to absorb nutrients, especially in hard to digest foods such as dairy (remember, cow's milk is supposed to be for baby cows!) and soy.

Some Celiacs have no problems with dairy or soy, but some do--especially when sticking to a faithful gluten free diet, but still not feeling their best, many find removing dairy and soy to be helpful to feel "normal" again.

Sure, it makes it a pain to eat, but it just depends on how you want to balance that with quality of life.

jerseyangel Proficient
jerseyangel
Posted

Dairy is a common problem for newly diagnosed Celiacs especially, because the tip of the villi that secrete lactase are damaged. This makes for a lactose intolerant situation--most times, it's temporary and after the villi have healed the person can resume dairy. My suggestion would be to forgo dairy for 3 months and then, if you want, try some and see how you do with it.

Celiacs can also be intolerant to the protein in dairy (casein) and the protein in soy. These are most likely caused by a leaky gut--and may be permanent, as the body reacts to the protein every time.

This is highly individual, though--I was intolerant to corn and after not consuming it for over a year, I can now tolerate it. I've not been as lucky with some of my other sensitivites.

Good luck with your biopsy :)

mtraezme Newbie
mtraezme
Posted

I've eliminated soy because it makes my gut feel almost like I've eaten gluten. If it makes me feel bad, I cut it out of my diet. ;) Everyone is different, you may not have problems with soy or dairy, but a lot of celiacs do.

Shotzy1313 Apprentice
Shotzy1313
Posted
  • Author

Thanks, I guess I am just worried when trying to go from glutened to gluten free because I don

ladybugs Newbie
ladybugs
Posted

:) Hi Kristin..

I am fairly new to this...I haven't officially been diagnosed yet...still waiting on enterolabs..but I am also almost 100 % positive I have at least gluten-intolerance. I looked on the Nutric Lab web page as I was very interested in the supplements you were referring too. However....I found that wheatgrass is one of the ingredients in the one that has 55 fruits and veggies. Isn't this something people with gluten sensitivity or celiacs should stay away from?

jmd3 Contributor
jmd3
Posted
:) Hi Kristin..

I am fairly new to this...I haven't officially been diagnosed yet...still waiting on enterolabs..but I am also almost 100 % positive I have at least gluten-intolerance. I looked on the Nutric Lab web page as I was very interested in the supplements you were referring too. However....I found that wheatgrass is one of the ingredients in the one that has 55 fruits and veggies. Isn't this something people with gluten sensitivity or celiacs should stay away from?

Wheat grass is something that I can not have with my celiac disease.... it is gluten to me

I had to eliminate dairy because my guts were still churning and it hurt so bad. If I am off for a while perhaps I can retry at a later date. I could hardly eat corn for a while....but now I can so far.

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    • AlwaysLearning
      Gluten related ??

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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