Local Lab Results

[truthsearcher]

Hi Everyone.

I am pursuing a Lyme connection to my ills, but in the meantime should I also pursue gluten allergy?

My tests last year this time were as follows

Gliadin Antibody IGG 1.8 (ref range 0.0-29.9)

Gliadin Antibody IGA 1.5 (ref range 0.0-29.9)

Endomysial AB IGA Scrn 0.4

They did not run a Endomysial AB titer because the last result was negative.

Because of these results I haven't avoided wheat/gluten this past year, but have cut about 90% out because frankly I feel better not eating gluten. I ate sprouted wheat bread, spelt, and things that don't usually have alot gluten but were not labeled gluten free.

My symptoms when I eat wheat are itchiness usually in the perineum, ears and scalp. I sometimes get a bloated tummy but not always. Sometimes I get an itchy throat, burning eyes, irritability and depression but this could be from carbs as I have also been diagnosed with candida and have been actively treating that for well over a year with good results.

Also in the mix I have been diagnosed with heavy metal toxcity, with a urine challenge test showing high lead, aluminum, and a borderline high arsenic, cadmium.

So I'm stumped should I get further testing?

Thank You so much.

TS

[truthsearcher]

I have something to add...

I have very long transit time and terribly constipated.

This morning I had two pieces of Montana Mills whole wheat french toast with agave syrup. Immediatly I felt itchy, my insides felt like they were shaking and a little later had severe weakness. I got a foggy brain and inability to cope with any stress. All I feel like doing is lying down and doing nothing. My face also feels a little hot like I have a slight sunburn.

Does this ring a bell with anyone?

Thanks,

TS

[ravenwoodglass]

Sometimes the best way to tell if you have a problem with gluten is to remove it totally from your diet for at least a couple of months and then do a challenge- add it back in and see if you react. The blood tests are not foolproof and going by just a negative blood test can seriously delay your diagnosis. It delayed mine by many very painful and disabling years.

[aikiducky]

To be honest though it sounds more like a wheat allergy to me. The itchiness and the quickness of the reaction sound like allergy symptoms to me.

Pauliina

[truthsearcher]

Thank You for your responses RWG and Pauliina.

I really think I have gone gluten free over the past 2 years for 3 months or more and added it back with the same results as what I experienced today and sometimes don't get much of a reaction at all, sooooo confused.

I also had a Metametrix IgG Food Antibodies test done around the same time last year and wheat was negative.

The only food allergies that showed up were chocolate mild, Milk moderate and casein moderate.

I do not eat any dairy or chocolate.

[aikiducky]

Have you had an IgE allergy test? The "classical" allergies are IgE types. That might explain why you didn't get a positive for wheat on a IgG test.

Pauliina

[Idiote Savante Goddess]

I have a wheat allergy (am awaiting lab results re celiac and/or gluten intolerance). If I eat wheat, my lips and chin swell or feel numb and the next day I feel listless and tired and/or hungover, have sinus issues and earache. If I haven't eaten any wheat in quite a while, I react more as tho' I've rolled in a patch of ragweed: instant mucus production, husky voice, sneezing, sometimes diarrhea, abdominal cramping.

If I drink wheat (beer, whiskey), my face turns bright red and burns like a sunburn.

Needless to say, I don't intentionally eat or drink wheat any more. And I carry Benadryl at all times.

[truthsearcher]

Pauliina,

I'm not sure if I've had a IgE test. I've had the skin prick test and nothing showed up.

ISG,

My sinuses get bad too when I eat wheat, but they also do this with sugar or dairy as well, so I think it's a fungal thing going on in the sinuses. My ears also "pop" and ache when I eat wheat, but never had the numb chin or lips. Itchy throat and roof of mouth is what I get too sometimes but not always.

And I NEVER get the D. Always the big C.

It's still so confusing to me.

Right now my body is calming down from the Montana Mill french toast but I'm still foggy, anxious but not as bad. And my ears are hot and scalp itchy, and it's been over 6 hours since eating the wheat.

[truthsearcher]

So....

Should I ask for the complete panel at Entero Labs or should I just assume I have a wheat allergy?

Also... If I have just a wheat allergy what foods could I eat that a person with celiac could not? Or to put it another way.... How is a celiac persons diet different from a person with wheat allergy?

Sorry still so confused.

Thanks

TS

[AndreaB]

Hi Truthsearcher!

I would highly recommend going gluten and dairy free for now. I do know that some doctors prefer that while you're dealing with metals and possible lyme. You're body has a lot going on and those food tend to aggravate. Rachel--24 has talked to someone with a great deal of knowledge and experience with metal toxicity. That was this person's recommendation.

Gluten does sound problematic for you. If you want to do enterolab I'd just do the gene test. If you don't have the celiac gene you might be able to go back to gluten once you take care of the metals and possible lyme.

I sincerely believe that metals triggered our gluten response but we also have the celiac gene and will not ever be going back to gluten.

That is a personal choice, although I still believe that most people should extremely limit it's consumption if they eat it at all.

[truthsearcher]

Thanks so much Andrea.

I'm still pretty sick, and itchy from this mornings french toast.

I'll tell my Holistic Dr. to order the gene test for me from Enterolabs. This sounds like a good place to start.

TS

[Rachel--24]

I have very long transit time and terribly constipated.

This morning I had two pieces of Montana Mills whole wheat french toast with agave syrup. Immediatly I felt itchy, my insides felt like they were shaking and a little later had severe weakness. I got a foggy brain and inability to cope with any stress. All I feel like doing is lying down and doing nothing. My face also feels a little hot like I have a slight sunburn.

Does this ring a bell with anyone?

Hey TS.

Those symptoms are pretty similar to what I get...also the burning eyes, popping ears, bloating, etc.

I definately cant cope with stress so I try to keep things positive in my life.

The itchiness I get is sort of like a "prickly" type feeling all over...I think its mainly related to fungal issues (in my case anyways).

I have the same issues as you with the metals and candida/molds. Lyme is definately in the mix for me but my symptoms are mainly caused by the metals/fungi.

I dont eat any processed foods because of the reactions you describe. I could not tolerate agave syrup....sugars and carbs by themselves cause my body to go haywire. I go WAY up and then come crashing down....major brainfog and other symptoms as well. One of my Dr.'s said it was because of everything going on...too much adrenal stress and an inability to handle the sugars.

If I eat any carbs or sugars I make sure to have it with protein as recommended by my Dr.'s and I've had less problems that way.

All of my Dr.'s have told me to stay off of gluten, dairy and sugars while dealing with these issues. Also, as Andrea stated a very knowledgeable friend (who's completely healed now) told me the same.

With your symptoms and the heavy metals, candida, possible Lyme...I would be completely shocked if you didnt come back positive with Enterolab.

If it were me....knowing what I know now....I wouldnt have spent the $$ on Enterolab testing. I'd just avoid these foods as its a given that they are problematic for you with these conditions.

I dont know of anyone with heavy metals, candida, etc...who can eat these foods without symptoms.

I also try to stick to organic foods. The foods I have to avoid is pretty extensive...way beyond gluten, dairy and sugar...but those are the main ones my Dr.'s are concerned with while I'm going through treatment.

PS

The gene test is a good idea.

[truthsearcher]

Hi again.

I just got my gene tests results.

HLA-DQB1 Molecular analysis allele 1 0302

HLA-DQB1 Molecular analysis allele 2 0502

Serologic eequivalent HLA-DQ 3,1 Subtype 8,5

From what the report states I carry one gene for celiac and one for gluten intolerance, is this correct?

As stated in the beginning of my post I test negative on all the blood tests.

I never have D always constipated.

I have now been gluten free for 4 weeks and notice that I'm not so edgy, otherwise symptoms are still the same. I am also totally dairy free for at least a year now.

I am noticing the sugar affects me pretty much the same way wheat does, including fruit.And I had small amounts of sugar over Thanksgiving, so it's hard to tell. I now have to be diligent not to have any sugar or fruit and see if the symptoms go away.

Any feedback on the gene test would be most appreciated!

[kmrinmd]

I have a wheat allergy (am awaiting lab results re celiac and/or gluten intolerance). If I eat wheat, my lips and chin swell or feel numb and the next day I feel listless and tired and/or hungover, have sinus issues and earache. If I haven't eaten any wheat in quite a while, I react more as tho' I've rolled in a patch of ragweed: instant mucus production, husky voice, sneezing, sometimes diarrhea, abdominal cramping.

If I drink wheat (beer, whiskey), my face turns bright red and burns like a sunburn.

Needless to say, I don't intentionally eat or drink wheat any more. And I carry Benadryl at all times.

That so funny you mention your drinking reaction. I am very new to the wheat/gluten intolerance. I am not dx'd by an MD but am trying the gluten free/dairy free on my own (Day 3). Your comments bring to mind the fact that all my friends have always called me "splotchy" when we are out drinking beer because that is how I get. My chest and face get red and, well, splotchy. I also wondered, and often joked (that's coming back to bite me), that I was allergic to alcohol. Sometimes however it doesn't happen, which must be the nights when I'm drinking a "safe" form of alcohol.

[sneezydiva]

To be honest though it sounds more like a wheat allergy to me. The itchiness and the quickness of the reaction sound like allergy symptoms to me.

Pauliina

I agree. Those are classic allergy symptoms. Though I have a diagnosed wheat allergy, and didn't have those classic symptoms. It can all be pretty confusing.