Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results


kellygirl28

Recommended Posts

kellygirl28 Newbie

After repeatedly being led to this forum while trying to do online research about why I have felt so crappy for so long, I told my doctor (actually, she is a P.A.) that I wanted to have "the complete celiac panel" done. That was on Wednesday. When I called her office on Friday, they still, "didn't have the results." CAN ANYONE TELL ME HOW LONG IT SHOULD TAKE TO PROCESS THESE TESTS?

I'm worried that my doctor has them, but doesn't know how to interpret them...she didn't know the first thing about this condition, and even less about how to test for it. Can't I just have someone who knows what they should be looking for interpret them? I FEEL LIKE I'M GETTING SICKER BY THE SECOND!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

If they have to send them out which they mostly have to it takes about 7-14 days. Did she say if she has to send them out or not.

paula

kellygirl28 Newbie

She did senud them out, but to a lab in the area. Normally, when they send my bloodwork there, I have the results the next day.

confused Community Regular

the celiac panel does take longer then most blood work. So try not to worry to much. I know much easier said then done, I will give her to at least this coming friday. or call her on monday and ask how long til the results will be in.

paula

kellygirl28 Newbie

Not worrying...that's a toughie! Any suggestions on that?

Thanks,

Kelly

confused Community Regular

Eat as much gluten as you can handle lol. You can read as much on here as you can handle, so you are not overwhelmed when the test come in. And remember just in case your test comes back negative, dont take that as true, ask for an endoscope to be safe.

paula

ptkds Community Regular

It took 2 wks for mine to come in. Then they only got part of them in and told me it was all normal. So I thought I was safe, until they called a few days later and said the rest of the results were in, and I had Celiac. I was in shock.

Give it about 1-2 wks and then start bugging them. You also have a right to get a copy of them, then you can put the posts on here and someone can interpret them for you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ginsou Explorer

My blood tests for h.pylori and celiac took about 2 weeks. I had blood drawn at a lab, and the technician said 3 tests would be done there, and two tests would be sent out. I received a letter from the doctor's office saying all tests were negative....but the acutal test result figures were not included in the letter. The negative results shocked me....I've been lactose intolerant for 30 years, and out of the blue became very,very ill this spring.....bloating,gas,nausea,diarrhea,constipation,gut rumbling,abdominal pain/soreness 24/7. I also started to have stinging pains that lasted about 1 second in my abdomen and arms and legs. That progressed to tingling sensation in my arms,back and legs. I was scheduled for a colonoscopy but cancelled because I had no insurance. The fact that I had 3 pain free days in a row led me to believe it was a food problem. I stopped drinking lactaid milk,stopped eating lactose free ice cream, and got slightly better,but was still sick. I purchased several cans of Ensure, and after drinking lactose free Ensure got sicker.That tipped me off.

Did you know that several name brand lactase pills have wheat in them?

I learned of EnteroLab from this website, and since Celiac is an intestinal problem,the logical place to test would be a stool test. I had the tests done, and 3 weeks later my suspicions were confirmed......Celiac,gluten,and casein(cows milk) tests were positive.

Be sure to get the figures from your test and post them here. Now I'm wondering if my blood tests were mis-read. It will cost me $28 for my medical records, so for now I will skip asking for the results.

I'm now gluten,lactose and dairy free. It's tough, but there are many people who have more food problems than me, so I feel fortunate. The diet is very expensive, and I'm fortunate to be able to afford the ingredients and have the time to cook....I'm retired. My mom is 94 and is in assisted living....the residents there with special food needs are ignored and are being served the same food as everyone else. Several residents have been hospitalized because they have been served food they are allergic to.There should be a law against this. I wonder how my special food needs are going to be met when I am older. I just had to turn down a 15 day Hawaiian cruise because my food needs cannot be met. I told my husband we need to win the lottery so we can purchase our own ship......and everyone on this forum will be invited to join us :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.