Low Pos. Igg Test For Gluten And Symptoms Of Celiac

[Guest keegans_mommy]

I am waiting for the Celiac's panel testing to come back but I am driving myself nuts trying to figure out what my issues are and what causes them. I KNOW that Gluten causes panic attacks,insomnia, depression, lethargy and heart palpitations. I also sometimes get severe stomach pain and every now and then I get HORRIBLE intestinal pain that lasts for hours and feels almost like unmedicated labor pains. I am sore for days afterwards with loose stools.

So I mostly stay away from gluten but I still eat it a bit here and there. The symptom that most likely will happen is insomnia, panic attacks and heart palpitations. I get the intestinal attacks and stomach attacks every now and then and they are not consistant to when I eat glutenous foods.

So, months ago I had an IgG test done with a low pos. for gluten along with pos. for other foods. I eliminated all foods with a pos of any number. I then, through trial and error, found that when I eat gluten, I get these unpleasant side effects. The worst being the severe intestinal pain that last hour upon hour with no let up on the pain. So is this one of the factors that the GI doc will be looking at? I didn't think about this last week at his office.

I also wanted to add that I had testing done for something totally different and my calcium, magnesium, phosporus and B12 (cobalt) are all very low.

[Guest keegans_mommy]

Can't anybody help me? No advice or words of wisdom?

[gfpaperdoll]

well, I think that if you know you get all those dangerous symptoms from eating wheat (gluten) & then continue to eat wheat that there is not much that I can say to help.

you could get negative testing for the next 30 years, if you live that long. So what do you want to believe? What your body tells you or what some lab puts on a piece of paper? & BTW if you are gluten lite the tests are in all probability going to be negative. AND, did you get the actual lab results to see for yourself which tests were run & what the results were? Did you read the post on here where they found out that their was an error on their negative lab report & it was not really negative? & that they are going to have to call people that they have already notified that they were really not negative but positive because there was a mistake on the forms????

A lot of people have the "White Coat" disease. Which is that you cannot make a decision regarding your health unless it is suggested, diagnosed, and prescribed by a doctor in a white coat.

I do not know how old you are, but a while back there was a huge recall of hormone medication that women were on for menopause. Doctors prescribed that stuff like it was peppermint candy. I never took them & the fact is that most doctors wives never took them either. At least all the ones that I knew that were attending all the pharmacetical meetings to promote the drugs, that I was also attending, trying to decide if I was going to take them. The point being that most doctor's wives research their own stuff & make their own decisions.

So I think the question to ask yourself, is do you enjoy not feeling well, do you like going to all these doctors? What would you do if you were healthy?

[Guest keegans_mommy]

I don't know if I should simply assume I am Celiac but I do know that gluten isn't my friend.

You said if I was "Gluten lite" the test would probably be neg. That isn't good for me and I refuse to go on it again for the next 6 months. I would love to have the diagnosis (if I am indeed pos.) since I can deduct this special food on my taxes each year instead of just "saying I can't eat regular food", KWIM? I don't care for the label otherwise, although it's nice to know.

Now, I am still wondering about the pain and when others eat gluten do they get the severe pain every time or can it happen only sometimes like mine does. This may seperate me from the real celiac's

[dadoffiveboys]

I don't know if I should simply assume I am Celiac but I do know that gluten isn't my friend.

You said if I was "Gluten lite" the test would probably be neg. That isn't good for me and I refuse to go on it again for the next 6 months. I would love to have the diagnosis (if I am indeed pos.) since I can deduct this special food on my taxes each year instead of just "saying I can't eat regular food", KWIM? I don't care for the label otherwise, although it's nice to know.

Now, I am still wondering about the pain and when others eat gluten do they get the severe pain every time or can it happen only sometimes like mine does. This may seperate me from the real celiac's

All you need is a doctor to support the diagnosis. You said you had some sorta positive on a blood test? I have a great doctor and she put a possible celiac diagnosis on me because just ONE of my blood tests was equivocal. Come to find out I am extremely sensitive to it but don't show up on the 'tests' because I do NOT REACT in my intestinal tract! (Yeah.. I get it in my KIDNEY...?? ) Well seeing my Father start to have Kidney failure.. and now it's reversing since I convinced him to go gluten-free.. and all my tests.. and my kids were NEGATIVE. All my kids off asthma and reflux medicine too. I also now get pain like you described from alot of lactose .. I question the no intestinal effect too btw.. and my allergy medicine seems more effective.... so I think my blunting of the villi (cause I'm still young) wasn't too bad yet (YET being the key).

For the food, if you can get the doctor to declare an allergy.. my doctor would do it with the gluten-free diet since it is a MEDICAL way to diagnose a food allergy to a protein (since the blood tests are proven inconclusive) then you can write off the money. For me it doesn't do any good because the write-off would have to exceed my AGI by 3% (which can be ALOT of money and I don't plan to spend that much on food!)

Change recipes and you CAN find mainstream food cheap - think fruits/vegetables and meat. It is hard to make ALL FOOD yourself but much better for your health!

[Guest keegans_mommy]

Change recipes and you CAN find mainstream food cheap - think fruits/vegetables and meat. It is hard to make ALL FOOD yourself but much better for your health!

I am doing good on that end as I have other food allergies and intolerances. My 5 year old son has food allergies too so I think we are covered there. I'm finding leaving the house difficult with food all around that isn't within the gluten free diet. I am very weak but it's getting a bit easier. I still feel miserable when I can't eat it but it's more miserable TO eat it.