Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Almost Made Me Cry!


mama2two

Recommended Posts

mama2two Enthusiast

my daughter takes dancing and her instructor usually gives them a treat after dancing, usually a sucker, sticker, tatoo, etc. well last week she gave them sugar cookies and the first thing my daughter asked was if she could eat it, and I had to tell her no, also my 2yr old would want it, I knew, so i suggested she give it to her friend, and she did, but she really wanted to eat it, and when she got in the car she was licking the bowl that it was in, I guess there were crumbs, and I know she got a little gluten from doing that, but I did not say anything about it. Then she asked if she could keep the bowl, I said yes. I told her i was sorry that she couldn't eat the cookie, I said, I know it's not fair, but sometimes life is not fair, she was so grown up about it. She said it's OK mom, it's not your fault. I was so sad, I could have easily cried. her pedi's are speculating that she has celiac dx, even though her panel was just probable. we are waiting enterolab results and I do believe that she needs to be on the gluten-free diet, but I hate to deprive her if there is a chance she doesn't have to be. I guess we will see. I just thought I would share my story, I know others have had bad experiences too. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest andie

Hi

It's the look of hopeful expectation before you say No that gets me! I hear you!

We have to keep telling ourselves that this will be better for them long term. A cookie is not worth 3 days of pain and feeling unwell. Licking the bowl though........ that's brutal!! But kids forget quickly and what I would have done was go home a cook a whole bunch of gluten free!

Talk to the instructor as well. Keep a sucker in your purse. I know my kids would have a sucker over a cookie any day!

Things will get better. Don't concentrate too much on what they can't have, but how much healthier they are now.

Andie ;)

Darn210 Enthusiast

You don't realize how many "treats" cross your kids' path until you have to inspect every one! My daughter has really done well with the adjustment. Most things, she already knows or at least suspects that she can't have. She does always tell/remind me when she has had to turn something down because she knows that I will respond with the "We'll get you a treat when we get home." She's got an excellent memory once we get home, too, and usually has a request for a specific item! :lol:

dandelionmom Enthusiast

Poor baby. :(

Those situations just kill me. I've started keeping a FULL SIZED bag of M&Ms in my purse at all times to hand her when we have to turn down a treat. People who know me are shocked that I do that because pre-diagnosis I would NEVER let my girls eat that much candy. But I want her to have something way better than whatever we have to turn down.

taweavmo3 Enthusiast

I promise, it gets better over time. Those situations are tough, but after a while the kids really get used to it. My little boy's soccer team always gives out cookies or some sort of gluten filled treat, at the end of each game. Jack doesn't even think twice about it now, he just grabs the drink and goes on his way like it's no big deal, LOL.

I also carry a bag of treats in my bag at all times for moments like that....if a surprise treat situation comes up, they know I have something safe they can have. They honestly don't even get upset about it now though. So, I hope that makes you feel a little bit better!

Carter's mom Newbie

My son at 3 years of age knows that he can only eat certain things. When people give him food items he is sure to ask "is it gluten free?" or "does it have gluten?". It's actually great to see that he knows or understands that he can not eat certain foods containing gluten or they will make him sick. He has been asking these sort of questions since he was almost 3.

I can only recall one time where my son got upset over the fact that he couldn't have something that he wanted to eat. There was a piece of candy and he couldn't have it so he said "but I want it, I don't care if it has gluten" we told him that it would make his belly hurt and make him sick and he said "I want to eat gluten". Finally in the end he knew he couldn't have it. It breaks your heart but I know if I did let him have it, he'd be suffering in the end.

mama2two Enthusiast
Poor baby. :(

Those situations just kill me. I've started keeping a FULL SIZED bag of M&Ms in my purse at all times to hand her when we have to turn down a treat. People who know me are shocked that I do that because pre-diagnosis I would NEVER let my girls eat that much candy. But I want her to have something way better than whatever we have to turn down.

I usually don't want my kids to have too much candy either, but lately I do keep snack size hershey bars and peanut butter cups in the house because I don't want her to be deprived. we also have M&M's sometimes but I have been not real happy with those type snacks because of all the artificial colors and flavors and other undesirable ingredients in those. I try to buy all natural snacks and things free of artificial additives, but I don't know if I should just disregard what I have read about these ingredients, and let them have the junk, just not too often. All this worry about diet and skin care products is overwhelming me at times. I have eczema so I scrutinize every label on everything making sure it doesn't have gluten in food items and doesn't have anything that will upset my eczema etc.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cheri A Contributor

((hugs)) BTDT. You didn't say how old your daughter was. I just sent my dd off to a Halloween party with a friend. She had to bring a package of store-bought cookies to the party. I bought Oreos for her to contribute. I sent her K-Too cookies and pretzels to eat for herself. Most of the time, she is okay with always being different. However, there are times that the tears flow and then we just cry and agree that it's not fair. Life isn't fair sometimes. But look at all the good things she CAN eat, and that I make for her. Its usually a short lived pity party.

shan Contributor

my daughter, not yet 3, is sooo good about not accepting, and if the substitute teacher gives her something, she'll say "but it has gluten in it, miss!"

BUT we just tole her that her 1 year old brother might be able to eat gluten and that made her almost cry :( Then i felt bad for her!! Poor thing thought that all kids can't eat gluten and now her little brother can hopefully :) but i know she won't try gluten - the pain is too much for her!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SusanJ replied to Jillian83's topic in Coping with Celiac Disease
      5

      Celiac and dermatitis herpetiformis has taken Me from Me

    2. - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

    4. - RMJ replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

    5. - knitty kitty replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,980
    • Most Online (within 30 mins)
      7,748

    Cathal Brugha
    Newest Member
    Cathal Brugha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.