Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Almost Made Me Cry!


mama2two

Recommended Posts

mama2two Enthusiast

my daughter takes dancing and her instructor usually gives them a treat after dancing, usually a sucker, sticker, tatoo, etc. well last week she gave them sugar cookies and the first thing my daughter asked was if she could eat it, and I had to tell her no, also my 2yr old would want it, I knew, so i suggested she give it to her friend, and she did, but she really wanted to eat it, and when she got in the car she was licking the bowl that it was in, I guess there were crumbs, and I know she got a little gluten from doing that, but I did not say anything about it. Then she asked if she could keep the bowl, I said yes. I told her i was sorry that she couldn't eat the cookie, I said, I know it's not fair, but sometimes life is not fair, she was so grown up about it. She said it's OK mom, it's not your fault. I was so sad, I could have easily cried. her pedi's are speculating that she has celiac dx, even though her panel was just probable. we are waiting enterolab results and I do believe that she needs to be on the gluten-free diet, but I hate to deprive her if there is a chance she doesn't have to be. I guess we will see. I just thought I would share my story, I know others have had bad experiences too. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest andie

Hi

It's the look of hopeful expectation before you say No that gets me! I hear you!

We have to keep telling ourselves that this will be better for them long term. A cookie is not worth 3 days of pain and feeling unwell. Licking the bowl though........ that's brutal!! But kids forget quickly and what I would have done was go home a cook a whole bunch of gluten free!

Talk to the instructor as well. Keep a sucker in your purse. I know my kids would have a sucker over a cookie any day!

Things will get better. Don't concentrate too much on what they can't have, but how much healthier they are now.

Andie ;)

Darn210 Enthusiast

You don't realize how many "treats" cross your kids' path until you have to inspect every one! My daughter has really done well with the adjustment. Most things, she already knows or at least suspects that she can't have. She does always tell/remind me when she has had to turn something down because she knows that I will respond with the "We'll get you a treat when we get home." She's got an excellent memory once we get home, too, and usually has a request for a specific item! :lol:

dandelionmom Enthusiast

Poor baby. :(

Those situations just kill me. I've started keeping a FULL SIZED bag of M&Ms in my purse at all times to hand her when we have to turn down a treat. People who know me are shocked that I do that because pre-diagnosis I would NEVER let my girls eat that much candy. But I want her to have something way better than whatever we have to turn down.

taweavmo3 Enthusiast

I promise, it gets better over time. Those situations are tough, but after a while the kids really get used to it. My little boy's soccer team always gives out cookies or some sort of gluten filled treat, at the end of each game. Jack doesn't even think twice about it now, he just grabs the drink and goes on his way like it's no big deal, LOL.

I also carry a bag of treats in my bag at all times for moments like that....if a surprise treat situation comes up, they know I have something safe they can have. They honestly don't even get upset about it now though. So, I hope that makes you feel a little bit better!

Carter's mom Newbie

My son at 3 years of age knows that he can only eat certain things. When people give him food items he is sure to ask "is it gluten free?" or "does it have gluten?". It's actually great to see that he knows or understands that he can not eat certain foods containing gluten or they will make him sick. He has been asking these sort of questions since he was almost 3.

I can only recall one time where my son got upset over the fact that he couldn't have something that he wanted to eat. There was a piece of candy and he couldn't have it so he said "but I want it, I don't care if it has gluten" we told him that it would make his belly hurt and make him sick and he said "I want to eat gluten". Finally in the end he knew he couldn't have it. It breaks your heart but I know if I did let him have it, he'd be suffering in the end.

mama2two Enthusiast
Poor baby. :(

Those situations just kill me. I've started keeping a FULL SIZED bag of M&Ms in my purse at all times to hand her when we have to turn down a treat. People who know me are shocked that I do that because pre-diagnosis I would NEVER let my girls eat that much candy. But I want her to have something way better than whatever we have to turn down.

I usually don't want my kids to have too much candy either, but lately I do keep snack size hershey bars and peanut butter cups in the house because I don't want her to be deprived. we also have M&M's sometimes but I have been not real happy with those type snacks because of all the artificial colors and flavors and other undesirable ingredients in those. I try to buy all natural snacks and things free of artificial additives, but I don't know if I should just disregard what I have read about these ingredients, and let them have the junk, just not too often. All this worry about diet and skin care products is overwhelming me at times. I have eczema so I scrutinize every label on everything making sure it doesn't have gluten in food items and doesn't have anything that will upset my eczema etc.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cheri A Contributor

((hugs)) BTDT. You didn't say how old your daughter was. I just sent my dd off to a Halloween party with a friend. She had to bring a package of store-bought cookies to the party. I bought Oreos for her to contribute. I sent her K-Too cookies and pretzels to eat for herself. Most of the time, she is okay with always being different. However, there are times that the tears flow and then we just cry and agree that it's not fair. Life isn't fair sometimes. But look at all the good things she CAN eat, and that I make for her. Its usually a short lived pity party.

shan Contributor

my daughter, not yet 3, is sooo good about not accepting, and if the substitute teacher gives her something, she'll say "but it has gluten in it, miss!"

BUT we just tole her that her 1 year old brother might be able to eat gluten and that made her almost cry :( Then i felt bad for her!! Poor thing thought that all kids can't eat gluten and now her little brother can hopefully :) but i know she won't try gluten - the pain is too much for her!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,694
    • Most Online (within 30 mins)
      7,748

    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.