Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain


I'm more celiac than you

Recommended Posts

jknnej Collaborator

OK this will sound weird but since going gluten-free two weeks ago my tummy feels great but my head is foggy, tremors in hands, light headedness, joint pain.

Why are all of these symptoms coming when I eliminate gluten? So confused...any ideas?

By the way, I also have an abundance of yeast...what do you eat on a yeast free diet? I'm assuming no sugar/no bread but that is very hard.

Also, what is casein in? That's a new term for me.

Jennifer


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



llj012564 Newbie

Hey jennifer casein is dairy ;) ..... I have to follow a gluten-free C/F diet also no egg no soy amoung others if you are looking for a calcium sup go to www.GFCFDiet.com its a website for kids that have to follow both diets but they have lots of great vitamines. :) Lora

jknnej Collaborator

Ok, so what on earth is left to eat if you cut out gluten, casein, soy, eggs??? Veggies and meat? I could NOT live on only that. I'd rather just get sick.

plantime Contributor

Since you have been glutenfree for two weeks, your body might be in detox stage. The symptoms you are having could very well be your body finally eliminating the gluten from your system, and trying to adjust to not having to fight it any more. If you truly prefer being sick over not eating the foods that make you sick, then have at it. It's your body, do as you please with it, just don't complain to me about being sick. Of course, if you are like me and are just blowing off steam and frustration over the severe restrictions of the diet, then I really sympathize. It is very hard to do, and sometimes I wonder if death would just be a better option. I feel that this is a normal feeling, and I must work through it, and stop looking at the negative side. Instead of thinking of all the foods I cannot have, I focus on the foods I can have. I ate a very delicious fruit cup at Wendy's today, and did not worry one whit about gluten. There are positives, you just have to look for them.

Guest Leidenschaft

:blink: All I can say is WOW!!! I almost feel guilty with the few symptoms I have! Can anyone tell me if there is a relavance to the amount/severity of symptoms and the severity of damage to the intestines?? I guess what I'm trying to get at... if I'm not feeling as sick as some from any contamination with gluten, am I also not having as much damage done to my intestines?

Basically I know I've been "glutinated" when I rush to the bathroom first thing in the AM. Diarhea... I know I've been REALLY "glutinated" when I go a second or maybe a third time.

I do have irritability often, however I can also blame that on PMS, stress of owning my own business, working 16 hour days 7 days/week, financial burdens, etc....

I think I'm most frustrated by the pain in my left shoulder, however I've also been told this is tendonitis/bursitis/frozen shoulder... My job is very physical and it seems like I'm always getting hurt, hands, neck, shoulders, back. I also have a VERY hard time sticking to a vitamin regime due to very irregular meal times. Next month I get blood work done to see what my vitamin levels are at... I'm hoping my body is starting to absorb more nutrition from my food and I won't have to take so many pills everyday. It's been almost 13 months gluten-free, and for the past two months I've let me vitamins slide completely... I tell myself it's to be ready for the bloodwork, however it's more a lack of ability to get them in my face daily! <_<

I really appreciate this board, I've been gluten-free for a year and in denial for 15 years, I don't know what took me so long to learn more about the people who suffer from this bizarre disease! I can't believe the variety of symptoms, no wonder it's so misdiagnosed! :o

Looking forward to learning more from the REAL experts! :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Confused about HLA-DQ Celiac gene test result

    2. - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

    3. - trents replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

    4. - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

    5. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Confused about HLA-DQ Celiac gene test result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,439
    • Most Online (within 30 mins)
      7,748

    Birdgeek
    Newest Member
    Birdgeek
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • ainsleydale1700
      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
    • heart390
    • trents
      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
    • heart390
      Because a close friend has had Celiac for years - I've eliminated gluten after the ER said all I had was a huge pocket of gas several years ago.  The gluten will be my 4th autoimmune disease.  Thanks so much for all your input!!!
    • trents
      @ainsleydale1700, the additional test information you provided is very significant! Here is the important part: "This test detects IgG antibodies to tTG (tissue transglutaminase), and was performed because your IgA level is below normal. The immune response that occurs in celiac disease often leads to IgG antibodies against tTG." It looks to me that you may be a "seronegative" celiac. The frontline diagnostic tests for celiac disease are IGA tests, especially the tTG-IGA. However, another IGA test ("total IGA") was done to check you for IGA deficiency and you were found to be deficient. That means that the usual IGA tests done to diagnose celiac disease, such as the tTG-IGA, would not be reliable. That is why the IGG testing was done "reflexively" (which means in response to the results of a previous test, i.e., the total IGA test.). The IGG tests are not quite as reliable as the IGA tests for diagnosing celiac disease, meaning, there are more "other" possible causes for elevated IGG test scores. The IGG test did give a borderline positive result, however, so the physician ordered the endoscopy with biopsy to check for damage to the small bowel lining that would be caused by untreated (continuing to consume gluten) celiac disease. The biopsy showed no damage so the doc concluded you do not have celiac disease. However, the monkey wrench in the gears of the doc's conclusion is that he gave you permission to proceed with the gluten free diet which would have allowed for healing of the small bowel lining to commence. How long were you gluten free before the biopsy was taken? And how much damage to the small bowel lining was there to begin with? If the damage was minimal, it might have been fully healed by the time the biopsy was done. And the symptoms you describe involving vitamin and mineral deficiencies, tooth enamel loss, cessation of menses, neuropathy, constipation alternating with diarrhea . . . IMO all scream of celiac disease as opposed to NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.