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Joint Pain


I'm more celiac than you

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jknnej Collaborator

OK this will sound weird but since going gluten-free two weeks ago my tummy feels great but my head is foggy, tremors in hands, light headedness, joint pain.

Why are all of these symptoms coming when I eliminate gluten? So confused...any ideas?

By the way, I also have an abundance of yeast...what do you eat on a yeast free diet? I'm assuming no sugar/no bread but that is very hard.

Also, what is casein in? That's a new term for me.

Jennifer


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llj012564 Newbie

Hey jennifer casein is dairy ;) ..... I have to follow a gluten-free C/F diet also no egg no soy amoung others if you are looking for a calcium sup go to www.GFCFDiet.com its a website for kids that have to follow both diets but they have lots of great vitamines. :) Lora

jknnej Collaborator

Ok, so what on earth is left to eat if you cut out gluten, casein, soy, eggs??? Veggies and meat? I could NOT live on only that. I'd rather just get sick.

plantime Contributor

Since you have been glutenfree for two weeks, your body might be in detox stage. The symptoms you are having could very well be your body finally eliminating the gluten from your system, and trying to adjust to not having to fight it any more. If you truly prefer being sick over not eating the foods that make you sick, then have at it. It's your body, do as you please with it, just don't complain to me about being sick. Of course, if you are like me and are just blowing off steam and frustration over the severe restrictions of the diet, then I really sympathize. It is very hard to do, and sometimes I wonder if death would just be a better option. I feel that this is a normal feeling, and I must work through it, and stop looking at the negative side. Instead of thinking of all the foods I cannot have, I focus on the foods I can have. I ate a very delicious fruit cup at Wendy's today, and did not worry one whit about gluten. There are positives, you just have to look for them.

Guest Leidenschaft

:blink: All I can say is WOW!!! I almost feel guilty with the few symptoms I have! Can anyone tell me if there is a relavance to the amount/severity of symptoms and the severity of damage to the intestines?? I guess what I'm trying to get at... if I'm not feeling as sick as some from any contamination with gluten, am I also not having as much damage done to my intestines?

Basically I know I've been "glutinated" when I rush to the bathroom first thing in the AM. Diarhea... I know I've been REALLY "glutinated" when I go a second or maybe a third time.

I do have irritability often, however I can also blame that on PMS, stress of owning my own business, working 16 hour days 7 days/week, financial burdens, etc....

I think I'm most frustrated by the pain in my left shoulder, however I've also been told this is tendonitis/bursitis/frozen shoulder... My job is very physical and it seems like I'm always getting hurt, hands, neck, shoulders, back. I also have a VERY hard time sticking to a vitamin regime due to very irregular meal times. Next month I get blood work done to see what my vitamin levels are at... I'm hoping my body is starting to absorb more nutrition from my food and I won't have to take so many pills everyday. It's been almost 13 months gluten-free, and for the past two months I've let me vitamins slide completely... I tell myself it's to be ready for the bloodwork, however it's more a lack of ability to get them in my face daily! <_<

I really appreciate this board, I've been gluten-free for a year and in denial for 15 years, I don't know what took me so long to learn more about the people who suffer from this bizarre disease! I can't believe the variety of symptoms, no wonder it's so misdiagnosed! :o

Looking forward to learning more from the REAL experts! :D

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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