Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach Pain


newceliac

Recommended Posts

newceliac Enthusiast

Did anyone have a problem with nausea and stomach pain after diagnosed with Celiac and going gluten free?

I have been gluten free for almost 2 months. I accidentally glutened myself about 1 1/2 weeks ago and it was miserable.....cramping, constipation (i get constipation), extreme anxiety and angry feeling, etc. It took about 1 week to feel better.

I felt better for a couple of days and WHAM, this morning I woke up feeling bad. I find it hard to believe I have been glutened again because I have been extra careful and have been watching everything I eat. I am very nauseous, a pain right across the middle of my stomach, and indigestion. I am also constipated.

Does anyone had to deal with the nausea and stomach pain after diagnosis?

I am getting extremely frustrated. I am trying so hard to eat right and do everything I am supposed to. It seems I have had a lot more bad days in the past couple of months that good days.

I also feel like that my husband gets tired of me talking about the pain during the bad days. At work, I have no support up there. Most people think because I look OK, then I must feel fine. They think I just need to cut out certain foods and I will be fine. The boss has had cancer and underwent chemo so she has the attitude that Celiac is not serious. If you don't have cancer, whatever illness anyone else has is trivial. I am not downplaying cancer because I have dealt firsthand with cancer as my mother and mother in law both had cancer.

It is depressing to be going to all this trouble to "eat right" and still not feel good!!!!! I just constantly worry that I may eat something that may make me feel bad.......and I am scared that I should be feeling better by now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



FootballFanatic Contributor
Did anyone have a problem with nausea and stomach pain after diagnosed with Celiac and going gluten free?

I have been gluten free for almost 2 months. I accidentally glutened myself about 1 1/2 weeks ago and it was miserable.....cramping, constipation (i get constipation), extreme anxiety and angry feeling, etc. It took about 1 week to feel better.

I felt better for a couple of days and WHAM, this morning I woke up feeling bad. I find it hard to believe I have been glutened again because I have been extra careful and have been watching everything I eat. I am very nauseous, a pain right across the middle of my stomach, and indigestion. I am also constipated.

Does anyone had to deal with the nausea and stomach pain after diagnosis?

I am getting extremely frustrated. I am trying so hard to eat right and do everything I am supposed to. It seems I have had a lot more bad days in the past couple of months that good days.

I also feel like that my husband gets tired of me talking about the pain during the bad days. At work, I have no support up there. Most people think because I look OK, then I must feel fine. They think I just need to cut out certain foods and I will be fine. The boss has had cancer and underwent chemo so she has the attitude that Celiac is not serious. If you don't have cancer, whatever illness anyone else has is trivial. I am not downplaying cancer because I have dealt firsthand with cancer as my mother and mother in law both had cancer.

It is depressing to be going to all this trouble to "eat right" and still not feel good!!!!! I just constantly worry that I may eat something that may make me feel bad.......and I am scared that I should be feeling better by now.

Me too! I use zofran for nausea and take some pepto if the pain is really bad. You will have to talk with your doctor about getting zofran, but I would use pepto until you do, it should help with the pain, nausea, and indigestion. I also just try to drink a lot of water. I have the problem with constipation too. I drink smoothies with I feel bad. Bolthouse farms makes one called Blue Goodness that I like or you could buy some blueberries, bananas, apple juice, and blackberries if you like them. It's a bland mixture and the fruit should help with moving things along.

Hope you feel better, our symptoms are almost exactly alike so message me anytime. I'm only a month ahead of you, at 3 months gluten free.

ALSO, have you checked all the manufacturers of any medicines you take?

miles2go Contributor

Hi newceliac,

Sorry you're having such a hard time with no support. It can take up to a few years to get back to feeling better. You've found a safe place here...welcome! Everyone will give you the support and info that you need, but it's going to take some time and a kind of ridiculously steep learning curve, but after a while, it'll be like second nature. I still need to remind myself to take my reading glasses to the grocery store after two years worth. :D

Margaret

LilyCeliac Rookie

You are not alone in feeling this way. Everything you have said has been the exact same for me as well.

I was diagnosed 5 months ago and I am still not feeling better. Some days I notice a change and that I am feeling an improvement but then there are days where for no reason I feel awful again, even when I know I haven't been glutened.

I have had two set backs in the 5 months where I accidentally consumed gluten and the week after that I felt horrible!!

I think that the internal damage from those accidents are what has contributed to me still not feeling better.

Our stomachs have been damaged and I think it takes a long time to heal which means we wont be cured right away even if we are 100% gluten free.

All we can really do is stick to the diet the best we can and hope that in time our bodies will heal and our hard work in being gluten free will finally feel like it's paying off. I definitly know how frustrating this all can be. And it is even more frustrating that people can't see our pain! It's hidden. Our symtoms are something only we can feel which makes it hard for anyone to fully understand what we are going through.

My Doctor said it could take a good 6 months (more or less depending on the person) for a Celiac to start feeling better.

I hope this helps!

Joss Rookie
You are not alone in feeling this way. Everything you have said has been the exact same for me as well.

I was diagnosed 5 months ago and I am still not feeling better. Some days I notice a change and that I am feeling an improvement but then there are days where for no reason I feel awful again, even when I know I haven't been glutened.

The first thing I noticed is that I can now breath through my nose ( I am asthmatic) and no longer have to breath through my mouth. When I wake up in the morning I don't have a dry throat and no longer need to drink during the night.

The other thing is that my ears unblocked. Well that is until I did a gluten challenge and they blocked up again. :angry: Now I know that I can never, ever go back to just playing with eliminating gluten. I am getting very serious indeed.

blueshift Apprentice
Did anyone have a problem with nausea and stomach pain after diagnosed with Celiac and going gluten free?

I have been gluten free for almost 2 months. I accidentally glutened myself about 1 1/2 weeks ago and it was miserable.....cramping, constipation (i get constipation), extreme anxiety and angry feeling, etc. It took about 1 week to feel better.

I felt better for a couple of days and WHAM, this morning I woke up feeling bad. I find it hard to believe I have been glutened again because I have been extra careful and have been watching everything I eat. I am very nauseous, a pain right across the middle of my stomach, and indigestion. I am also constipated.

Does anyone had to deal with the nausea and stomach pain after diagnosis?

I am getting extremely frustrated. I am trying so hard to eat right and do everything I am supposed to. It seems I have had a lot more bad days in the past couple of months that good days.

I also feel like that my husband gets tired of me talking about the pain during the bad days. At work, I have no support up there. Most people think because I look OK, then I must feel fine. They think I just need to cut out certain foods and I will be fine. The boss has had cancer and underwent chemo so she has the attitude that Celiac is not serious. If you don't have cancer, whatever illness anyone else has is trivial. I am not downplaying cancer because I have dealt firsthand with cancer as my mother and mother in law both had cancer.

It is depressing to be going to all this trouble to "eat right" and still not feel good!!!!! I just constantly worry that I may eat something that may make me feel bad.......and I am scared that I should be feeling better by now.

You will keep making mistakes from time to time so get used to it.

There are stretches that I use to relieve symptoms. I get down on my back and put my legs into a semi-yoga position. In other words, one leg is bent so that the heel is near the butt like a usual yoga position while the other leg actually crosses over with the knee bent pointing skyward with the foot placed in front of the Yoga leg's shin. I stretch the same side arm as the yoga leg up and over my head with the elbow on top of the head. Tension should be felt along the one side and the back while the gut up front slowly relaxes. I do this without a pillow and my head is tilted backward. I hold this position for 20 minutes and will lean on my right side when I yoga the right leg. Then I switch to the left leg and left arm overhead. Sorry if that was too many words...

Also, try investing in a medicine ball that is about the size of a basketball. Wedge the medicine ball between one side right under the rib cage and the floor. Do this while lying down and rolling over onto the ball slightly.

Study plyometrics and learn to develope your core muscles and the flexors.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question

    2. - ElenaM posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      I think I am gluten intolerant

    3. - JulieRe replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question

    4. - Ceekay replied to slkrav's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Gluten free beer ?

    5. - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,895
    • Most Online (within 30 mins)
      7,748

    catsrlife
    Newest Member
    catsrlife
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed ranitidine for it several years back, which was working to reduce my gastric reflux symptoms but then the FDA took ranitidine off the shelves so I stopped taking it. I had a lot of ups and downs healthwise in and around that time (I suddenly gained 20 pounds, blood pressure went up, depression got worse, and I was diagnosed with OSA). At the time I attributed my change in symptoms to me taking on a new stressful job and didn't think much else about it. They did give me a replacement gastric reflux drug since ranitidine was off the shelves, but when I went on the CPAP for my OSA, the CPAP seemed to correct the gastric reflux problem so I haven't been on any gastric reflux drug treatment for years although I still do have to use a CPAP for my OSA. Anyway that's a long story but just to say… I always feel like I've had a sensitive stomach and had migraines my whole life (which I'm now attributing to having celiac and not knowing it) but I feel my health took a turn for much worse around 2019-2020 (and this decline started before I caught covid for the first time). So I am now wondering based on what you said, if that ranitidine i took could have contributed to the yeast overgrowth, and that the problem has just been worsening ever since. I have distinctly felt that I am dealing with something more than just stress and battling a more fundamental disease process here. I've basically been in and out of different doctor specialties for the past 5 years trying to figure out what's wrong with me. Finally being diagnosed with celiac one year ago, I thought I finally had THE answer but now as I'm still sick, I think it's one of a few answers and that maybe yeast overgrowth is another answer. For me as well, my vitamin deficiencies have persisted even after I went gluten-free (and my TTG antibody levels came down to measurably below the detectable limit on my last blood test). So this issue of not absorbing vitamins well is also something our cases have in common. I'm now working with a nutritionist and taking lots of vitamins and supplements to try and remedy that issue. I hope that you continue to see improvements in working with your naturopath on this. Keep us posted!
    • ElenaM
      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of these after I eat gluten. Could I have non celiac gluten sensitivity? Thanks anyone else with these symptoms?
    • JulieRe
      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.