Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What The Heck?

moonmaiden

By moonmaiden
in Coping with Celiac Disease

Recommended Posts

moonmaiden Newbie
moonmaiden
Posted

I have been messed up with an ever-changing assortment of ailments over the years. Dx with Hashimoto's Thyroiditis about seven years ago (I'm sure I've had it for decades). I've suspected (off and on) that I have gluten issues.

I think I might have that "silent" kind that shows itself in autoimmunity. I have had stomach issues here and there too, and always thought it was a touch of IBS or something. Gastro stuff has never been my major problem - it's always been endocrine. Early menopause/infertility/thyroid/osteoporosis. I also suffered with scalp lesions for most of my adult life and it definitely cleared when I was gluten free.

Last March I quit smoking. Felt great for two days and then it was somebody slammed me through the floorboards. Dx with "Adrenal Issues" treated with hydrocortisone/thyroid meds. All kinds of issues ensued - intense bloating, weight gain, pain in my feet, legs. Horrible depression. This adrenal thing made sense to me because one autoimmune disease can lead to another and thyroid/adrenal tend to go together. I've since read that there's a connection between smoking and protection from adult celiac disease (?)

I was good gluten-wise only on and off. I was never really convinced that I had it.

I've weaned off the steroids and I'm on less thyroid meds thanks to a couple of weeks on anti-fungals - made the biggest difference so far. I've been gluten-free for about two months straight.

Here's the thing: The other day, I ate almost half a box of sugar-free Whitman's candies. I was so starved for something sweet.... I didn't realized that one of the ingredients was "wheat".

Well, I've been so sick for two days - it's incredible. This time it's my stomach big-time. I had all kinds of gas and diarrhea - spent hours in the bathroom the other night. Finally that resolved but I still have the abdominal pain and bloating - a nasty "full" sensation in my guts.

Is is possible to go from the silent kind of celiacs to full blown celiac after abstaining for a while?

I'm not real big on conventional medicine but I am scheduled for a blood test next month.

The doc told me that in order to test for celiac disease I'd have to load up on gluten -- I DON'T THINK SO...

Incidentally, my chiropractor muscle tested me and told me I have both a gluten intolerance and a parasite - I'm also scheduled to be tested for Lyme Disease. I spent five years as a plein air painter here in the beautiful (but tick infested) Hudson Valley - so it wouldn't surprise me.

You don't have to tell me -- I've learned my lesson -- from now on, I read every label.

Thanks for any input/sympathy/ideas/notions/advice

Sick and Crazy (not necessarily in that order)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

The blood work may very well be negative but it won't hurt to have the test if you want it done.

I've found that good practitioners as far as muscle testing can tell you what you need to know. Go off of gluten and continue with the lyme testing. Does your chiro or doctor us Igenex? If not, you'll want to order the paperwork from them. You'd need to have the blood drawn on M-W to be able to overnight it to them.

www.igenex.com is the website.

glutenfreeontario Newbie
glutenfreeontario
Posted
Here's the thing: The other day, I ate almost half a box of sugar-free Whitman's candies. I was so starved for something sweet.... I didn't realized that one of the ingredients was "wheat".

Well, I've been so sick for two days - it's incredible. This time it's my stomach big-time. I had all kinds of gas and diarrhea - spent hours in the bathroom the other night. Finally that resolved but I still have the abdominal pain and bloating - a nasty "full" sensation in my guts.

I just wanted to mention that SUGAR-FREE candy/chocolate/cookies/drinks contain artificial sweeteners... which are known to cause digestive problems.

Sugar alcohols include: Xylitol, Mannitol, Sorbitol, Isomalt, Maltitol, Lactitol... and others.

"...because they are not completely absorbed, they can ferment in the intestines and cause bloating, gas, or diarrhea. People can have different reactions to different sugar alcohols. Careful experimentation is advised."

Open Original Shared Link

If they don't have sugar alcohols, they most likely contain aspartame... which can cause a whole bunch of symptoms - including digestive ones.

I avoid artificial sweeteners... except in gum since the amount consumed is so small... and I'd rather not bathe my teeth in sugar :P

wowzer Community Regular
wowzer
Posted

Glad to hear you quit smoking, I'm still working on that one. I know for me going gluten free, now if I accidentally consume it, I am much more sensitive. Definitely the body is saying I don't like this. I do think mine was set off because of auto immune. I have been on synthroid for close to 20 years. I am still working on the CC issues. I hope you are feeling better soon.

JNBunnie1 Community Regular
JNBunnie1
Posted
Is is possible to go from the silent kind of celiacs to full blown celiac after abstaining for a while?

Sick and Crazy (not necessarily in that order)

YES!!!!!! Absoposilutely! I used to have a two-day reaction to gluten, now it's thirty days.

debmidge Rising Star
debmidge
Posted
Here's the thing: The other day, I ate almost half a box of sugar-free Whitman's candies. I was so starved for something sweet.... I didn't realized that one of the ingredients was "wheat".

Yup, just like prior poster stated....Advice: sugar-free candy has sobitol or some other unnatural sweetener. These sweetners cause diarrhea is some people. This could have contributed to your intestinal upset.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Why are they waiting a MONTH to do bloodwork? ??? Why didn't they do bloodwork two months ago?????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Why Celiac Diagnosis Still Takes Years—and How to Change That

    2. JoJo0611
      - JoJo0611 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Awaiting Biopsy results

      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.
    3. cristiana
      - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement

      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area. I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who had real pain when she turned her torso in a certain...
    4. emzie
      - emzie posted a topic in Related Issues & Disorders
      1

      Stomach hurts with movement

      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body...
    5. Flash1970
      - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      3

      Shingles - Could It Be Related to Gluten/ Celiac

      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain. That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral. It does lessen the symptoms. If it is in your eyes, see an ophthalmologist. They have...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,455
    • Most Online (within 30 mins)
      7,748
    jscal6
    Newest Member
    jscal6
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):

  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • JoJo0611
      Awaiting Biopsy results

      By JoJo0611 · Posted

      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Stomach hurts with movement

      By cristiana · Posted

      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Stomach hurts with movement

      By emzie · Posted

      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      celiac disease and braces

      By Scott Adams · Posted

      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.