Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Celiac?

YNGRL

Recommended Posts

YNGRL Newbie
YNGRL
Posted

I am trying to figure out what is wrong with me and my son and I suspect we are celiac. My symptoms are. On a regular diet where I eat just like everyone else does, (not dieting) after lunch I get extreme abdominal pain. Pain that doesnt go away with passing gas or going #2. I try to walk it off but the only way I can get it to go away is by lieing down till it goes away and it will continue until I do that. Its wierd because it happens right after lunch everytime I stop dieting and watching what I eat and its not fair! Seriously, I dont want to diet for the rest of my life eating apples etc! Even if I eat those microwave smart ones I get the seizing of my intestines attack. I know that I have to pretty much stay away from vegetables. I cant eat brocolli, gum with fake sweetener....etc because those start me on the cycle of pain. I had a partial bowel obstruction and I was soo miserable it was horrible and It all starts when I start eating like a normal person would. The abdominal pain and immediate seizing of my intestines and bloating are my symptoms oh and CONSTANT gas and not just regular kind, the kind that will clear a room and thats embarrasing!!! I dont seem to have any others except that i have dark circles under my eyes..and still have acne and Im 28! My mom says they I have always been a sick kid (person) that I was always complaining about my stomach when I was little just like my son is doing now and I looked like an allergy kid just like him so that

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Welcome to the Board!

Celiac has over 200 symptom and you and your son seem to have many of them.

There is a specific blood panel for Celiac which consist of five tests. It is also important to remain on gluten until your testing is over. Any other testing, other than an endoscopy exam will not diagnose Celiac.

There is a great deal of information on Celiac here.

YNGRL Newbie
YNGRL
Posted
  • Author

I just realized the exzema we get is a symptom also.n I get it on my hands....I dont have it now but it comes and goes.

Thank you for your reply. I just wanted that affirmation that I was not crazy, or a hypochondriac. If anyone else has symptoms like mine I would love to hear your stories. Being able to identify with others really relieves some stress until that doctors appointment comes.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748
    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.