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FootballFanatic

Achey Joints For Days

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What do ya'll do for achey joints? I took some tylenol....and i've been in bed but I ever hurt in bed..

Any advice?

PS: I don't think I've been glutened and at first I was worried it was the flu but I've had the pain in the joints for days and not really any other symptoms.


10-06 Diagnosed Urinary Tract Infection (Allergic to Cipro, Bactrim, Macrobid, Doxycycline, Monocycline, Penicillin) - This UTI is still present with no symptoms.

10-06 Diagnosed "Acid Reflux" (Nexium didn't work)

12-06 Endoscopy diagnosed Gastritis (Negative Bioposy)

12-06 Negative bloodwork for Celiac Disease, Diagnosed "Gastroparesis" - Started Zelnorm

1-07 Diagnosed "IBS-C" - Still taking Zelnorm

3-07 HIDA scan to check gallbladder which was fully functional.

3-07 Zelnorm taken off market, started Domperidone

4-21-07 Emergency Appendectomy (FUUUNN!)

7-24-07 Enterolab results came back positive

Gluten Free since that night....

...Still not feeling great.

"Don't expect constant success, but strive for constant growth."

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I usually take asprin rather than tylenol because it helps with inflammation. Hot baths also help a great deal and for me cutting out soy made an incredible difference. When my arthritis was still active I used a hot parafin bath for my hands that also helped ease things a great deal and made my hands soft also.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I used to get the aches quite frequently prior to going gluten-free. Now the severity and frequency have lessened considerably. Ibuprofen was the only thing that ever touched the pain, and even then it only lessened it. I used to get up and go for a walk when it got really bad. For some reason the activity helped. But I recall that some research says that acitivty does help some arthritis patients.

Violet


"My mother always told me, it's okay to play with a man's mind

as long as you put it back where you got it when you're done with it."

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I had experienced increasing severe aching in joints and muscles since being diagnosed with celiac disease. I hadn't seen a doctor since I was first diagnosed with celiac disease over 11 years ago since at that time they said there wasn't much that could be done. But as things progressed to the absolute worst, I decided to go seek medical help. The doctors I saw a year ago said the pain was a result of "getting old and wearing out." I just refused to believe that 43 y.o. is getting old and wearing out.

After careful diplomatic negotiations with several physicians, one of them finally decided to test my D3 levels. The D3 levels were deficient and I started taking mega doses of Cholecalciferol (D3). After a few months, the pain was greatly reduced. After 6 months, I am virtually pain free. I take 5,000 IU of D3 daily. A very serious side effect of D3 deficiency is osteoporosis (I tested positive for boarderline osteoporosis.) It is the D3 that regulates the absorbtion use of calcium in the body.

You might also consider getting your B12 levels checked. A B12 deficiency can cause permanent nerve damage and pain. I was found to be deficient in B12 as well. Because my GI system will not absorb the B12, I am getting injections twice monthly.

You will have to be persistence with your doctors because most of them don't like to be questioned. They would rather just give you any one of a number of pills and send you on your way. I fear that had I not been persistent I would have been dead or at the least severly diabled. And for no reason, for all of my symptoms were easily treated given the right diagnosis. celiac disease is not laughing matter. I have suffered much in the past 11 years due to physician ignorance and apathy.

Thankfully, I am on the mend and doing so much better.

Best wishes,


akceliac

Gluten-free Casein-free since 1996

"For I the Lord thy God will hold thy right hand, saying unto thee, Fear not; I will help thee." Isa 41:13

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The D3 is a good topic to bring up. you might try, for now Fanatic, supplementing with cod liver oil. (yes, they sell it in capsules). If you're still at the beginning of this joint pain, then you may be able to rectify the situation naturally, without visiting a doctor. I think everyone should take cod liver oil anyway, but it will give you the vitamin D and it won't be synthetic, which is important. Do you live somewhere you can get out in the sun? Try spending 20 min, then a half hour, then an hour in the sun every day, if you have time. That's the other natural way to get vitamin D. Low vitamin D levels have also been associated with increased cancer risk, so it's a good thing to avoid regardless.


If you're going through hell, keep going. ~Winston Churchill

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This is kind of funny but would a tanning bed's UV rays give me vit. D or is it only the sun.

That's a good question now that I've thought of it. It doesn't seem like lights could synthesize a vitamin but who knows.

When I started tanning Monday is when this kind of started...


10-06 Diagnosed Urinary Tract Infection (Allergic to Cipro, Bactrim, Macrobid, Doxycycline, Monocycline, Penicillin) - This UTI is still present with no symptoms.

10-06 Diagnosed "Acid Reflux" (Nexium didn't work)

12-06 Endoscopy diagnosed Gastritis (Negative Bioposy)

12-06 Negative bloodwork for Celiac Disease, Diagnosed "Gastroparesis" - Started Zelnorm

1-07 Diagnosed "IBS-C" - Still taking Zelnorm

3-07 HIDA scan to check gallbladder which was fully functional.

3-07 Zelnorm taken off market, started Domperidone

4-21-07 Emergency Appendectomy (FUUUNN!)

7-24-07 Enterolab results came back positive

Gluten Free since that night....

...Still not feeling great.

"Don't expect constant success, but strive for constant growth."

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This is kind of funny but would a tanning bed's UV rays give me vit. D or is it only the sun.

That's a good question now that I've thought of it. It doesn't seem like lights could synthesize a vitamin but who knows.

When I started tanning Monday is when this kind of started...

A run of the mill tanning bed would NOT, it's probably taxing your system. It's MUCH better to just get out in the sun, or get some full-spectrum lighting online and install it in the place you sit the most at home.


If you're going through hell, keep going. ~Winston Churchill

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I get a good amount of sun each day, I am in college and walk between classes, walk my dog, run errands. I'm sure I get about 30 minutes on an average day.


10-06 Diagnosed Urinary Tract Infection (Allergic to Cipro, Bactrim, Macrobid, Doxycycline, Monocycline, Penicillin) - This UTI is still present with no symptoms.

10-06 Diagnosed "Acid Reflux" (Nexium didn't work)

12-06 Endoscopy diagnosed Gastritis (Negative Bioposy)

12-06 Negative bloodwork for Celiac Disease, Diagnosed "Gastroparesis" - Started Zelnorm

1-07 Diagnosed "IBS-C" - Still taking Zelnorm

3-07 HIDA scan to check gallbladder which was fully functional.

3-07 Zelnorm taken off market, started Domperidone

4-21-07 Emergency Appendectomy (FUUUNN!)

7-24-07 Enterolab results came back positive

Gluten Free since that night....

...Still not feeling great.

"Don't expect constant success, but strive for constant growth."

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I get a good amount of sun each day, I am in college and walk between classes, walk my dog, run errands. I'm sure I get about 30 minutes on an average day.

Do you wear sunscreen or does your lotion/moisturizer have sunscreen in it? I used to get plenty of sun, but was always slathered head-to-toe with SPF45 or higher. This was largely out of fear of developing skin cancer - 3 generations of women on my mom's side (including mom) had skin cancer. Then I was dx'd as being vitD deficient. The dr put me on 2000IU of vit D daily, along with an rx (no kidding, he actually wrote one out) for 15 minutes of sun a day without sunscreen.

There's a lot of excellent information at the Vitamin D Council website. www.vitamindcouncil.com


2/05 GERD

3/07 Multinodular goiter (suspicious for follicular neoplasm as of 11/07)

5/07 Iron, vit D, and B vit deficiencies (all of them), but particularly B1, B5, B12 and folate

6/07 Elevated mercury, subclinical hypothyroid, adrenal fatigue, CFS

9/07 Endo/Colonoscopy - neg biopsy (only took 2 samples), diverticulosis, benign polyps

10/07 PCOS (cysts in breasts, ovaries and cervix)

10/07 Major reaction to wheat challenge. Minor reactions to corn, dairy, barley, and refined sugar

2/08 Candida (per Doctor's Data)

3/08 Lyme disease (clinical dx), began tx

3/08 Intradermal allergy testing - high for wheat, beef, pork, tuna, and corn - moderate for almonds, chicken, coffee, eggs, garlic, gluten, green peas, milk, rice, soy, sugar, tomatoes, green peppers, celery, sesame, garbanzo, mushroom, cabbage, strawberries, and spinach.

4/08 Began tx for babs and bart

4/08 Slightly elevated titres for EBV and HHV-6. IgG1 deficiency.

"What doesn't kill us makes us stronger... and stranger."

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Do you wear sunscreen or does your lotion/moisturizer have sunscreen in it? I used to get plenty of sun, but was always slathered head-to-toe with SPF45 or higher. This was largely out of fear of developing skin cancer - 3 generations of women on my mom's side (including mom) had skin cancer. Then I was dx'd as being vitD deficient. The dr put me on 2000IU of vit D daily, along with an rx (no kidding, he actually wrote one out) for 15 minutes of sun a day without sunscreen.

There's a lot of excellent information at the Vitamin D Council website. www.vitamindcouncil.com

Actually, the ingredients in most sunblock are rather toxic. It's very difficult for your liver to handle. People need sun, there are societies on the planet who live in the sun all day long and don't have any skin cancer, but they don't eat a modern american diet.


If you're going through hell, keep going. ~Winston Churchill

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August 19 I woke up with BOTH hands, wrists, especially the thumb joints hurting unbelievably bad. I could barely hold a glass. All this cropped up overnight. OK....I'd been doing a bit of cheating with some junk things involving gluten and sugar, not a lot, but a little. I guess it added up finally and BOOM, major joint pain. Although I've had various aches and pains before, I've never had anything like this and it was a real wakeup call for me. I eliminated gluten of course, but also sugar and I went on the Atkins diet because I not only want to lose a bit of weight, but I did it before and felt really good on it. The joint pain started going away pretty fast, and now it's completely gone except for a tiny ache in my right thumb.

Atkins really agrees with me--the total lack of sugar and starches is the key for me as I am 100% certain that they affect me badly. It's not just the gluten!


CAROLE

-------------

Enterolab 1/2006

IgA & tTg Positive

DQ2-0201 (celiac) and DQ1-0604 (gluten)

Casein IgA positive

Mom has 2 celiac genes

Both kids have a celiac gene.

Lots of celiac disease in my family, both sides.

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